Well Good Luck for the next one Amelie, am sure it will be a success like the last one (more so with Bridget and I on the team ha ha) 😎
Now do I hold? Or Bang??:-S

Tom xx

Hi Jean

Well I dont feel so bad now:-D I was told Jan 2009 that I have MM but (am sure he told me) dont know what type:-S as for my results? well [u][b]I have been of the opinion [/b][/u]that if Dr is smiling when I go into the room Am Happy 😎

But thinking what Eve says, I think I should take more notice of what I have:-/ am sure I at…[Read more]

Min
Still thinking of you and yours but will say more prayers for you all on Wednesday.

Am sure it will be a great day to remember the good times you and Peter had.

Lots of Love and Hugs

Tom xxx

Good Luck Chelle, hope it runs well 🙂 keep us posted on how it goes.

Love
Tom "Onwards and Upwards" xxx

Hi David, do you think it might be time to start up again he he, mind you this lot will be a spray job :-S

Tom

I am ensconced in Fishguard, looking out of a picture window 10' by 6'… and framed in the window, is a photo-perfect combination of landscape and seascape. Bottom right I can see the old harbour of Lower Town where they filmed Dylan Thomas's 'Under Mlkwood' in 1972, with Richard Burton, Elizabeth Taylor, Peter O'Toole, Glynis Johns and Victor…[Read more]

Hi
How about a nice easy one

YELLOW
Love Eve low

Hi Jean
I use it all the time,If your unsure of anything there is a good library site,on here.
When this first started I was told Slim had MYeloma,and it was not compromising the cord,and that was it.Everything else I had to ask about,but when you are told new things your are in shock.Since then I have used this site and libraries to find out…[Read more]

Hi Jean thank you for that one! My word is — ULTIMATELY The next letters are— ELY love Bridget xxxx

Hi John good to hear Cecilia is doing well please pass on my best wishes. There is nothing worse or more painful than people digging around in your arm trying to find a suitable vein !! We have to put up with enough without that too. Ask about a PICC line they are brilliant! They work on the same principle as hickman lines but completely under…[Read more]

Hi John
Slim has the same problem,he is also on Velcade to,I have suggested a picc line but they are worried about infections.
What I do is try to get him drinking a lot before blood test,and I have bought a hot water bottle which I fill at home,and rap it up in a pillowcase,which is applied to his arm all the way to the hospital,it seem to have…[Read more]

Hi Jean
There is a book called Myeloma your essential guide.
It is excellent,you can read it in little bits to take it all in Myeloma UK should be able to send you one,I got mine from the hospital along with other books about cancer.
If you ask for results of test and use the book it helps you understand them,plus it helps to know when bloods…[Read more]

Hi Ivan
how is your leg doing?????
Eve

Hi
Mine is YOUTH

Leaving UTH

best wishers Eve

Hi All
Sharon what are you on now.
It does not look if Slim will be given the option of SCT,because of lung damage with septic pneumonia,after doing 6 cycles of cdt and finding it has increased in the bone marrow to 80%,I have to wonder if trials are the right way to go?,they measured the success bench marker in free light chains,which actually…[Read more]

Hi Ted

Do you know I always thought it would be some form of what they call "Recreational" drugs that would be a possible cure 🙂 I can just picture us at our hospital visits all Spaced out he he.

Here is one Paper article about it…[Read more]

Morning Sally (gosh i hope you dont read this post at night:-D )

Am pleased your Dad is feeling better and you and yours are now also feeling the same 😎

As for the Transplant I know a Lady who has had MM for nearly 10 years and not had a Transplant due to other complications and is doing Ok 😀

And Eve is correct with the "Dex" when I…[Read more]

Hi Sharon
Must admit I search for everything concerning this disease,you just live in hope ,that there is something out there,that will work,and actually cure Myeloma.

I think the answer lies treating it why it is still contained in the marrow.
They are talking about 10 years research for Ecstasy.I also think some Myeloma,s are easier to…[Read more]

Hi Sally
Good to know your dads feeling a little bit more cheerful,it is a shock to the system when you are first told,and there is so much to take in.

Slim found it easier to do a big chart with the cycle on,easier to keep track of the pills,he kept 2 pill boxers one for hospital pills and one for own doctors pills.
I think you will have to…[Read more]

Hi
Just asked the brains
SEXILY
Now you can tell it was Slim who thought of that one!!!!!

ILY