eve replied to the topic 1 step forward and 1 back or is it 2 forward and 1 back.? in the forum End of Life and Grief 11 years, 7 months ago
Hi Sarah
Nice to know you look in and trying to get on with life,how many lambs this year,I bet you are glad to be in the south,those poor animals up north have taken a battering .
Grief does have to be done your own way, its a year on 24 for Matty,seems like yesterday,Slim came out of hospital,as it was all to much,next month it will be…[Read more]
tom replied to the topic Now how much "Off Topic" is this in the forum Off topic 11 years, 7 months ago
Am sure you could cut the feet out and let your legs stick through, and am sure it will keep you warm in Coffin 😀
Don't forget photo (before you need the Coffin ha ha
Tom
DaiCro replied to the topic Stem Cell transplant, given go-ahead in the forum Treatment 11 years, 7 months ago
Hi Tom,
Mid-June seems far off but its only 7 or 8 weeks away… the time will fly but try to enjoy it as much as you can. The further you go along the MM path the more you will want to jam the brakes on.
There are plenty of blogs about the experience of SCT's and even some excellent recollections and SCT 101's… but unfortunately they…[Read more]
tom replied to the topic Now how much "Off Topic" is this in the forum Off topic 11 years, 7 months ago
I just might take it to Asda and have a walk round Lol
Tom xxxx
tom replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Hi Peter
Bald? me?? well I must have a look in Mirror, am sure I have a good head of hair? al be back in a few mins ?
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WOW am Bloomin Bald :-0 Now I wonder when that happened???
Might have to look at "Wigs" what Colour should I have??
The "Red" will do you the world of good 😀 and may I say nowt wrong wi your eyes…[Read more]
tom replied to the topic Now how much "Off Topic" is this in the forum Off topic 11 years, 7 months ago
Thanks folks as you can see I love it and am comfy in it 🙂 Dai you Must Post a photo for us all to see.
Tom Onesie'd and Onwards and upwards xx
tom replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Aww Helen
Am, sorry you got the confirmation about the relapse 🙁 big hugs to you (hug)
And as for all over the place you are entitled to a bit of that but it will soon be time to take the new challenge on and go down a new route.
Fingers crossed for you Helen 😉
Love Tom Onwards and upwards xxx
tom replied to the topic Signposts and Sounding Boards in the forum General 11 years, 7 months ago
Yes good post now all we need is a few Newbie's to start it off 🙂
As Tom says we have deadlines to beat.
eve replied to the topic Anxiety in the forum Side-effects 11 years, 7 months ago
Hi Mandy
Welcome,,everyone on here will tell yo the Myelma journey is like a rollecoaster ride,mentally and physically ,everyone is different,plus add the equation of carers ,you get a real mixed bag!!!!,so every thing yu are feeling is normal.
It sounds if you are doing well,had a few blips,but on track,to help your back!!! Plus SCT,it…[Read more]
DaiCro started the topic Signposts and Sounding Boards. in the forum General 11 years, 7 months ago
I noted that Jet has been asked to speak at the Nottingham INFODay next Saturday giving an account of patient experience and all well and good, I am sure she will give a good account of herself and her experiences.
Perhaps campaigning is not seen as a function of this forum but there is a small part of me that thinks our combined experience.…[Read more]
DaiCro replied to the topic Now how much "Off Topic" is this in the forum Off topic 11 years, 7 months ago
Well that brought a smile to my lips when I needed one… 😀 😀
Now, I've got to get myself one of those. 😎
Dai.
tom replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Hi Helen
Well it's a shame you ain't on Face Book, but I have posted the Onesie on the General board as I don't want to shock folk with a chest infection ha ha.
Love Tom xxx
tom replied to the topic Now how much "Off Topic" is this in the forum Off topic 11 years, 7 months ago
Well that one worked its on lets try another one Ha ha, me Relaxing in Onesie ha ha
Hope its not too much of a shock he he
Love Tom xx
tom started the topic Now how much "Off Topic" is this. in the forum Off topic 11 years, 7 months ago
And here it is For Helen, a photo or two of my Onesie.
tom replied to the topic Keith Hindmarch in the forum General 11 years, 7 months ago
Dear Keith and Sue
My Thoughts and prayers are with you both at this time.
Am sure you knew you were getting closer and I hope its a comfortable Journey.
Ellen Many thanks for the info, and if it possible to send our best to them Both I would greatly appreciate it.
Love to you Both
Tom xxxx
DaiCro replied to the topic Zometa 'flu' in the forum Side-effects 11 years, 7 months ago
Thanks for the tip David, I will try that approach and see if it works. 😎
Dai.
DaiCro replied to the topic Keith Hindmarch in the forum General 11 years, 7 months ago
I think Keith knew that this stage was near but was hoping that there would be one last treatment that might extend his life by a few months. More than anything he wanted to be well enough for one last holiday with Sue… Cape Verde was his choice but anywhere would have done.
He started Bendamustine a Cycle ahead of me but it didn't take due…[Read more]
DaiCro replied to the topic Light chains down again in the forum Treatment 11 years, 7 months ago
Hi Maureen,
I have been following Ian's progress and I am so glad that he is doing so well… but… while I can understand stopping treatment to allow Ian's body some respite by way of letting him recover from his bedsore etc., I don't understand why treatment has not continued now that the shingles have gone and he is on the mend. kappa…[Read more]
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 7 months ago
Hi Sarah
And Thanks (gosh I do wish I could Blush) x
I hope Life has slowed down for you now as am sure it cant all be rush rush rush? or can it?
And you are welcome
Love Tom xxx
DaiCro replied to the topic New in the forum Newcomers 11 years, 7 months ago
Hi Ann,
Welcome to the forum, I am genuinely sorry you had cause to seek us out but now that you are here I am sure you will find us supportive and willing to share the sum of our experiences. The first thing I should say is that you will never be guilty of the act of 'it's just me'… I assure you that will never be the case. Big things,…[Read more]