Hi Dai
There,s me thinking you had gone off on holiday and not told us,in case we were jealous 😉
Glad your back,you have been missed(a little bit).:-)
These things do not go unnoticed when are lyric and musician man goes missing without a telling us:-( as they have chucked you out,bruised and batted, but fit for duty,we hope to be hearing…[Read more]

Hi Eve

is everything going on ok with Slim at the moment I know you hd a good hospital visit but have they told you if his treatment is working yet I do hope so. Are you feeling not so stressed now i do hope so
Take care regards to Slim
love Jo

So glad to hear from you Bridget I was really worried for you I hope they soon sort out the pain and you will be back to your cheery self looking forward to you getting back on line will e.mail you when I get back from wales we are taking our grandson for a weeks holiday:-)

Lots of love JO XX

Hi Scott

I will look forward to your post good luck for next week I will have to give you an answer the week after as we are taking our grandson to Wales for a week
weather forcast looks terrible but hey ho that british weather for you

kEEP Well
love Jo 😎

Hi Bridget
Nice to hear from you,sorry they have not got the pain under control,funny the way some drugs work for one person,but not another,go back to what works,Try to enjoy the day,it is lovely and sunny down here on the coast.
Best Wishers Eve

Hi Gill20
May i just say everyone seems to suffer with bowel problems.You have to make sure you take a laxative on a daily bases otherwise you have a build up,even then you will find yourself needing a toilet very very quickly,after awhile it becomes the norm.part of the course with the medication.
Gill the one in hospital,my husband has been in…[Read more]

Hi everyone bless you all for caring Sorry I havent been around but I have been struggling with Revlimid and changing these wretched painkillers! Half the time I am out of it and the other half I am asleep Last week I saw a consultant who specialises in palliative pain care and he altered my Oxycontine dose from 70mgs twice a day to 200mgs twice…[Read more]

Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve

Hi Gillian aka Gill C 😀

Good Luck with it all and you seem to be doing ok with it as for the sickness I was on antisickness tabs for months after my SCT, and the bowels am pleased its a distant memory 😎 yep Control never in your life I dare not go far from a loo after anything to eat or drink as it didn't stop long, Lord knows how I got…[Read more]

Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself…[Read more]

Hi Shirls

sorry you are not feeling so good at the moment I hope it passes soon
how are your aches and pains from the fall, i know its good to be positive but I try but do have some down days
Keep well
love JO 🙂

Hello Scott
I see you may be taking the same route as me I chose not to have SCT as the full strength chemo could have finished my kidneys off completly. When I was diagnosed Jan 2009 I had really bad kidney failure due to MM my creatinine was 485 and I was on the verge of dialysis it is now (last reading 239 ) after CDT which I finished april…[Read more]

Hi Everybody

Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to…[Read more]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

Hi Helen

Pleased you are finding the info Good for you all:-D and its great to hear about others that are raising money for the dreaded MM:-(

As for the Stem Cell transplant:: oh what can I say?? well to be honest I feel that is has been well worth the off days that I had during my "Recovery" and to be fair it was (cept the growth…[Read more]

Hi Claire
I was diagnosed in 2009 and only started treatment this year. It was a watch and wait for me too. I was monitored with blood checks and my consultant said that the treatment would make me more poorly than the disease at that stage. They can tell so much from blood tests and intervene before you get, as the others have said, the bone…[Read more]

Hello Peggy
So sorry that you have joined us – but at least you know what your dealing with now and this site is a big help – just about the only place you can have a "little rant" as everyone understands completely – were all in that place at times. It´s difficult to let off steam with loved ones as you don´t want to upset them any more than t…[Read more]