Tom what is it with you and cucumbers, I like them in a good strong glass of Pymms:-P 😎 😉 Love Jox

Hello Gill
welcome to this site not the words you would want to hear, You will find many friends and a wealth of good information and support go ahead have a good drink for your birthday and why not I was diagnose in jan 2009 I was 61 I have been in plateau since may 2009 no SCT due to major kidney damage
GOOD LUCK 😉
Love Jo

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

Hi Peggy

A warm welcome to our ever growing band of MM'ers

Yep I was same but I didn't put them both together for some months after I started treatment.

Am sure you will get the help you need as and when for you and your Daughter, if not shout out loud.

Good Luck on the treatment you start and have a good day for your Birhtday (well…[Read more]

Hi Gill

First dont listen to Eve "re the drink" as its done me the world of good over the last 40 years lol.

But seriously a warm welcome to the site but sorry you had to join.
I was Diagnosed in Jan 2009 and had CDT then Stem cell harvest leading to a Stem cell transplant in december 2009, and am still in remission and doing good:-D still…[Read more]

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right…[Read more]

Hi Peggy
My if you have not got enough on your plate and this has happened you must be devastated.What a start to a birthday.It will get better,I know that it does not seem this way right now,but there are people ahead of you with not just myeloma,but extra problems as well so you are not alone on this journey.

Its my husband with mm,I also…[Read more]

Good news Keith, great news in fact, seeing what you have been through to get there. 🙂

As you say, relax and bring it on.

Dai.

I quite often see her at City Hospital, Nottingham but not for about 4/6 weeks come to think about it. I have been attending the day case unit, yards away from the consultation rooms and where the Stem Cell Harvests are carried out… but I haven't seen her in there either. I'll keep an eye out on Monday.

Dai.

Hi Jo

The young bride is doing great, and as for keeping me in check (just looked behind me to see she aint their;-) ) well she has a hard job doing that Lol.
Take a look at the photo and see how much I spoil the young bride (tom looks over his shoulder to make sure she cant see)

Hope your Doing Ok Jo xxxxx

TOM
You will never be just a mere mail hows the young bride, still keeping you in check

Love Jo:-P

Hi Joanne

Am pleased your Father in law is now on the treatment regime, and the advice I can give is for the pending treatment is Rest and take one day at a time:-D

Your Father in law will have his off days/weeks? but you will know it wont be "Him" it will be the drugs:-/ and not forgetting you and mother in law need your rest…[Read more]

Hi Gill

Well what a great lot of replie's you have 😀 and am sure I cant add anymore to this great advise you already have.

BUT am a Mere Male and you know we have to have our penny's worth 😀

First am sorry you had to join this great site, but also to let you know its also the best, its a roller coaster but to make it short, I am now…[Read more]

Dia
your daughter has a good voice shame someone doesn't pick her up she is to good for tribute bands any way if the Velcade works Majorca is only a couple of hours away
Keep Well
Love Jo8-)

Yes fingers crossed for you Jet hopeing all is well with you I have looked at your blog you havn't posted for a couple of weeks
Love Jo;-)

Good news Keith

good luck with the SCT fingers crossed for you see you on the other side
well fit and happy

Love Jo;-)

Hi Helen

Am Pleased your Mum is getting better, and am sure the Zometa will cause no more problem:-D
As for me well roughly I was diagnosed in Jan 2009 went on CDT, then had stem cell harvest and leading up to a Stem Cell Transplant in December 2009, went back to work In May 2010 on light duties, and thats where I stand now, and the only…[Read more]

Hello gILL
What a shocked state you must be in it took me at least three months before I could come to terms with it I just didnt want to speak about it.
the phone line to myeloma uk is so valuable, there is a specialist nurse to talk to I found it such a help because you feel so alone when you go to the specialist take a pad with all the…[Read more]

BTW folks… feeling much better today… the PN is still on the edge and I am feeling shattered… but generally feeling much better than yesterday… the idea of 10 rest days is a misnomer… you do have a rest from the treatment… but not from the side-effects. 🙂

After all this you just end up hoping that the way you feel is down to the…[Read more]

That's fine Gill, I apologise if you think I was having a go – furthest thing from my mind. 😀 :-0

We have what we have an we have to deal with it… I would just like to see a bit of humanity thrown in to the mix. The medical staff have to be so careful… they can be damned for saying too little as much as saying too much… and we know…[Read more]