Hi Ladies
The worst thing that was ever said to me concerned my first grandchild who has cp.I was walking him,and met a male friend who new my daughter,and was explaining why Matty was in a wheelchair.
He asked if my daughter Ruth was going to keep him!!!!!!!I often feel like coming out with comments{no hes going out with the rubbish] just to…[Read more]

Hi Min
So sorry to hear peter,s not doing to well,but we both know how quickly it can turn round,a few days on a drip works wonders,Slim had a feed in his neck with lots of tubes to be able to have lots of drips,with machine,s going off every five minutes,not nice at all,It must be awful having to go home and leave him there.
I hope today…[Read more]

Oh Roz what a stupid stupid man to say something like that to you Its a wonder you didnt punch him on the noseJust goes to show even the healthcare professionals get it wrong sometimes love Bridget x

Hi Mavis well I came home from clinic with a whole bag full of pain relief today !!The Macmillan nurse upped my Oxycontin dose to 70mg yesterday and I now have some big plasters filled with local anaestheticto put on my back plus some Pregabilan Apparently Pregabilan is the posh version of Gabapentin and has fewer side-effects , also much more…[Read more]

Hi Dai glad to hear the pn is lessening and your bloods are behaving It wont be long before you are playing comfortably again , I cant imagine anything keeping you from your guitar for long !! love Bridget x

Hi Keith good to hear all is going well Iknow how you feel about getting away from blooming hospitals and all the stuff that goes with it!!Have a good holiday and it will boost your spirits ready for the sct and after that a very long remission Take care love Bridget x

Hi Mari wow! Thanyou for sharing with us it really does lighten the load to hear of someone doing such an amazing feat after all he has been through Mind you I think you played a big part in his recovery , you make a great team !!Steve must be a very determined man , I cant even ride a bike to the end of the street not due to myeloma just have…[Read more]

Wonderful news Mari,

Please don't feel that good news might be upsetting for those who have not managed Steve's success, quite the opposite, it is always a boost for me to see someone doing well off piste. 🙂 😎

My SCT, supposedly in the top 10% of responders, only got me 10 months and was therefore considered a failure… but I am now…[Read more]

Hi Roz,

Just a quick enquiry to find out if you have taken your south coast 'memories' holiday yet?

Dai.

Hi Min yes they can write scripts but as I am at clinic tomorrow I think she was being professionally polite , if you know what I mean ! Sorry to hear Peter has had to be admitted again, you must be at your wits end Ithink you can just ring yourself once you are on their books In the short time I have known my Mac nurse I would certainly call on…[Read more]

Hi Angelina reading all these lovely ideas on here has made me realise I too want to leave some memories for my children and grandchildren So tomorrow I am off to buy a notebook and go where the memories take me Thankyou for sharing with us and prompting me .I am sure your girls and Johnare going to love doing their books lots of love Bridget x…[Read more]

Thanks Michelle,

I am hoping that I'm down to zero before the next cycle and that cycle 4 will be my last… but as always I will be guided by my consultant and if she wants a 5th then so be it… I don't want to rush into a remission on a weak basis.

Please pass on my best wishes to your Mum, I hope they manage to re-kickstart her Revlimid,…[Read more]

I am all for a memory book, my children 34,30 & 26 presented me with a set book from W.H. Smith to fill in at my leisure three years ago – it remains blank but I should make a start.

I am glad that I have left it until now because it takes time to focus on what is general memories and what is important nitty gritty. The set book will be fine…[Read more]

Hi Wendy so glad you are home and feeling better There really is no place like home is there Stay well love Bridget x

Thankyou everyone for your support as always it makes the world of difference My lovely and very wise Macmillan nurse came today and has suggested increasing the Oxycontin to 70mgs morning and night plus increasing Severadol to30mgs Fingers crossed it works She was rather annoyed with the doctor for ignoring her other reccomendations for patches…[Read more]

Hi Bridget

Sorry to hear bout your pain:-( bit of a Begger this MM, hope you get sorted out 😀 and the pain is reduced.

Love and Hugs

Tom xxxx

Hi Michelle

Sorry to hear about your Mum and the setback she is having.

I also am chuffed the Dr is on the ball and sorting your Mum out 😀
Catcha Lata

Love and Hugs sent to your Mum (oh and one for you Michelle 😀 )

Tom "Onwards and Upwards" xxxx

Hi Jess
And sorry I cant help on this one? just wanted to wish you well, and add you could poss phone the Nurse and ask them am sure they could help on this one.

Hugs

Tom xx