brocho replied to the topic Pain Relief Changeover in the forum Treatment 15 years, 1 month ago
Hi Eve thanks for that , I was told its the liver getting used to morphine that leads to higher doses At the moment I am relying on Severadol just to get through the day Hopefully the Macmillan nurse will ring and up the Oxycontin dose soon , if not Iwould rather go back on mst morphine at least Tlcan function better on that Take care love Bridget x
brocho replied to the topic V3/1 Bad news… Excellent news… in the forum Treatment 15 years, 1 month ago
Brilliant news Dai you and Janet must be on cloud 9!!! Heres to the next results being a big fat zero!!! love Bridgetx
DaiCro started the topic V3/1 Bad news… Excellent news…. in the forum Treatment 15 years, 1 month ago
I woke up twice during the night of 19/20th with a completely dead left arm… I have had this feeling before (to a lesser extent) when I have slept heavily on a limb but this time the arm was hanging down at my side. Janet managed to get it back to almost normal on both occasion but my hand remained numb and 'heavy'. I woke in the morning and…[Read more]
eve replied to the topic Pain Relief Changeover in the forum Treatment 15 years, 1 month ago
Hi Everybody
Slim was changed to Oxycontin in hospital,when we asked why,told it was better because it worked longer up to 12 hours,I think they said it was opium based,morphine mst worked faster,but the body gets use to the drug and becomes less effective leading to higher doses.
As for Tramadol Slim was taken off them again by hospital as…[Read more]
BADGER replied to the topic Pain Relief Changeover in the forum Treatment 15 years, 1 month ago
Hi Eve
Dont you wish you could bosh some people i did try to say something else but i swore and they would not pA:-( ss the post GRRRRR!!!
lOVE Jo x:-(
BADGER replied to the topic Revlamid in the forum Treatment 15 years, 1 month ago
Hello Colpot
that is a brilliant response 41 courses how many years is that a lady inmy clinic has been on it for three years like you she has a reduced dose now
fingers crossed this keeps working for you all
Love Jo:-) 😉
brocho replied to the topic Memory Book – right or wrong? in the forum General 15 years, 1 month ago
Hi Angelina your girls sound lovely and such beautiful names Whatever you decide about a memory book they will cope because they have you to guide them through it , Sending big hugs to you all love Bridget x
eve replied to the topic Carer's Watch in the forum General 15 years, 1 month ago
Thank you Dai
Dai you are in the right,It does get me down,today was another hospital day,believe it or not we were only in there for one hour miracles do happen.
I think you are right care,s do get overwhelmed,many cannot express them selves,i must admit my spelling has got much better since I have been posting,but my grammar needs…[Read more]
DaiCro replied to the topic Pain Relief Changeover in the forum Treatment 15 years, 1 month ago
Hi Bridget,
I have no idea of the equivalent values of each of the different type of pain-killers… perhaps Ellen could tell us. I assume the MacMillan nurse did and that you simply react better to mst. I was put onto 80mg mst am & pm (160 total) on initial diagnosis of secondary bone cancer, primary unknown, 3 years ago.
My GP went…[Read more]
DaiCro replied to the topic 2nd SCT in the forum Treatment 15 years, 1 month ago
Hi Gill,
Fingers crossed indeed.
I hope that all of Stephen's discomforts and pains disappear quickly… to be replaced by renewed energy and steady improvement.
Dai.
DaiCro replied to the topic Carer's Watch in the forum General 15 years, 1 month ago
Hi Eve… and you too Eve… 🙂
I do understand the duality of our behaviours and our moods and I suppose I might be guilty of over-reacting… but I'd rather fall flat on my face… time and time again, rather than watch one of ours fall by the wayside because we didn't see the warning signs, :-/ 🙂
I wonder how many carer's have done…[Read more]
tom replied to the topic Carer's Watch in the forum General 15 years, 1 month ago
Thats the spirit Eve
Choose your Battles and save your energy 🙂
as for your post t[can I have a moan] well dont we all want/need one 😎
think we all need to add telling our G.P's about MM mine aint a clue about it:-S as for the ward that Slim was in you go for it Girl am wi you 😎
Love and Hugs
Tom xx
tom replied to the topic Angelheart, tucked away, found and bumped here… in the forum General 15 years, 1 month ago
Hi Angelheart
Sorry your post might have been lost? and I hope you find this reposted one.
Hope all is well look forward to hearing from you.
Hugs
Tom xx
tom replied to the topic mum is in hospital in the forum General 15 years, 1 month ago
Hi Gina
Great to hear your Mum is back at home 😀 not be long before Mum is up and running (well not running fast)
Hope you soon get the phone call for ur Mum to start the treatment.
As for me well I am still in remission and my Dr says I look bloody well for someone who has Cancer? hey but dont we all on our good days Ha ha
Love…[Read more]
tom replied to the topic A Quick hello in the forum General 15 years, 1 month ago
Hey Roz
Never ever feel you are on your own, ye we might only be "ON-LINE FRIENDS but you lot are worth your weight in gold, so keep on nipping in and if you have had a bad day let us know am sure we can help.
And dont you worry bout post 2 girl cos we all love you and want you to look after yourself and we will support in any way we…[Read more]
tom replied to the topic Memory Book – right or wrong? in the forum General 15 years, 1 month ago
Dear Angelina
I am sorry to read John is not doing so good, lets hope its still only a small blip in the MM saga.
And the Memory Book trust me Angelina you do what you feel for yourself and your Daughters and am sure the book starting early is not a problem it makes it easier than waiting.
Am sure Family and Friends will understand why…[Read more]
tom replied to the topic A ray of hope in the forum General 15 years, 1 month ago
Way To go Steve and Mari, and that Bike ride is more than an "Onwards and Upwards".
Great news and am sure newbie's and us oldie's will have perked us up 😀
and am sure when you were on the finish line and watched Steve cross it am sure you had a tear or two.
Well done to you both and thanks for the GOOD NEWS 😎
Tom One "Onwards and…[Read more]
eve started the topic Education Needed. in the forum Off topic 15 years, 1 month ago
Hi Everbody
Has anybody noticed sometimes when trying to post it comes up inappropriate language!!!!! its happened to me twice,I have read the post again and thought what have I said,!!!!
The word they disliked was h-e-l-l used as[you might think who the -h-e-l-l is eve]in Roz post.
Thought i would tell you case anyone else is having…[Read more]
eve replied to the topic A Quick hello in the forum General 15 years, 1 month ago
Hi Roz
You hav not heard from me before,so when you posted again I thought if I replied you might think{who is eve]:-)
I came on this sight in February husband has mm.but do not think you are forgotten I read all your posting because i had to know what the future held,I have thought many times how you were getting on,so many people come on…[Read more]
eve replied to the topic Diarrhea in the forum Side-effects 15 years, 1 month ago
Hi Wendy
Sorry to here you are in hospital,Raging diarrhoea not nice,but you are in the right place,if it was a infection they would most probably not like to have admitted you! fluids is the big one with diarrhoea,and being an impatient any test will be done earlier.It must be very hard to cope with living on your own,
Hope your well soon love eve