Hi Joanna

Welcome
Sorry you came off CTD due to being sick, but am sure you will go back on it it, its a good treatment worked for me in 2009 and yes I was sick with it off and on two stints in hospital (Early days) but stuck with it and here I am in 2013 in remission and drug free 😀

Now how's that for "words of encouragement" Good luck…[Read more]

Hi Terry

Yep I remember you 😀

Now work?? Now I enjoy my workplace and work Mates so I made the decision to carry on working (for me no one else) and so far its done me good, had a few dips when I felt should I but soon came back to yes I love it 🙂 .

I am blessed by working for a company that has looked after me and has sorted a job…[Read more]

Hi Terry

We all know about MM,it is how you see it,and how it effects your life.!!!

Take mM out of the equation ,and do what ever Floats your Boat,my husband believes look after number one first,might seem selfish,but it works for him. As a wife and mother,I have different priorities ,??? Or is it just the fact that women are natural…[Read more]

Hi Terry,

I remember you posting last year, as a football fan your name earned instant recognition.:-)

Yes, the waiting around is an awful time… the not knowing, the struggling to let go of the remission status and the reluctance to fully accept that you have indeed relapsed. If it is a blip then your relief will be profound… but if…[Read more]

hi David
I am about to start cycle 5 of Velcade I have it once a week with cyclo and dex day one and two so not so bad I also have pamidronate once a month
my PP are now down to 4 so all good except the blip with a dose of pnuemonia been ok in the main
Keep well
Love Jo x

good news Andy and steph

lets hope this is the start for you so you achieve an SCT GOOD LUCK
fOM jO X

Hi Tom

I didnt give it to you honest!! I had a temp of 39 when Geoff phoned the
Hospital doesnt it make you feel rotten I hope you will be better soon penicillin soon put me right they said in the hospital they have had so many chest infections that turned into pnuemonia so you be CAREFUL DONT WANT YOU TO GET GET ANY WORSE:-(
lots of love…[Read more]

Hello Vicki and Colin

thanks for your kind thoughts I am on the mend now
Love Jo x

Hello Jane

thank you for your kind thoughts
Love Jo x

Hi Scott

thanks for you kind thoughts I am ok now but the kidneys didnt like the Anti B;s I think they are settling down now sorry about the bendamustamine
Have thought about CDT AGAIN it worked first time for you it could work again better than knocking your kidneys out with an SCT
hOPE THINGS GO WELL FOR YOU I start Velcade again this…[Read more]

hi Tom

you are not kidding thanks for worring about me a big (((HUG FOR YOU))
from one of your flock Baa
Love Jo x

Hi Eve
Could you try and get him refered to The new McMillan cancer centre at Uch
its state of the art I have recommnded Dia trys as his hospital seem to be mucking him about I suppose you would have to go through McMILLAN BUT ITS WORTH A TRY
lOVE jO X

Hell Dia

thanks for your kind thoughts i have been worried about you and your treatment I do hope they came up with something for you or else you will have to try another hospital can you get down to London I go to the UCH once every three months they run a state of the art cancer unit funded by McMillan I wonder if you spoke to them you could…[Read more]

Hi Helen
I am back up and well not running but getting there once they used penicillin which fortunately I can take it soon cleared up I am starting Velcade again this week as the bloods are ok lets hope this was just a blip as you know I havent shut my self away I cannot bear it so there is always a bit of a risk but i have to live my life the…[Read more]

Hi Pat
yes its does frighten you especially when its difficult to breath lets hope this next round of treatment puts you right so you can get off to Canada and hug that grandaughter Geoff took me to Dorset for the weekend it was a bit wet but a nice break
Take care Love Jo x

Thanks Maureen for your kind wishes
Love Jo x

Hi Eve AVOIDED THE SWORD THIS TIME!
Glad Slim is doing ok Tom and Jean posted on face book and my daughter answered them as my husbands does not do forums i dont know about slim but Geoff is not keen any way starting velcade again on wed:-P
Take care
love Jo x

Hi Charlie and Mary

SCT already seems like you were new on here not long,you had a few blips and now going forward for SCT.:-)

Well you have has good advice from above,it is hard work once there home,are you having it done in Southampton or Kings,try to get the SCT out of the way first,. My advice is do not bother to buy new clothes…[Read more]

Andy
Am sure you are going to get used to this "Good News" not be long before you know its gonna be good in yourself.

Every Day is Certainly "A Gift"

Stay well Andy and you and Steph have a Great time in Greece.

Tom Onwards and Upwards x

Andy I Hot Nite last Nite (aint my young bride the lucky one lol) no but had a bit of a temp last nite pillow and covers wet :-/ so decided to stay at home today and think about work for Tuesday.

So had a good lay in till 9.30 up and showered breakfast then dog for his walk, so far so good 😉 phoned work and told them I cant tell them if I…[Read more]