Hi Min

He will not let me stick anything up his bottom LOL he must be getting better his dignity is coming back,!!!!;-)
Seriously Min its a bit of a fight with Slim,he takes so much,just does not want to try any more,looks if its starting to work,should do drinks it out of bottle>:-(
As for weight gained some then had v&d and lost it.Sorry…[Read more]

Hi Angelheart,

I am sorry if you think you have been ignored… unfortunately your post sort of wandered away in a factual section and has been unlikely to have been seen by most of us on the site.

Twice welcome, please come back and say hello. 🙂

Dai.

Hi Pat and Jane
Min and jo ,s advice is good,just want to add it is important to drink a lot of fluid as you need to clear kidneys,to be honest your mum seems to be doing ever so well,it must be hard living on her own,if i am correct the nurse on this site can put your mum in touch with some one with same condition,ask Ellain ?

Might be worth…[Read more]

Hi Heath,

I am not familiar with, nor have I ever heard of PCL and I thought that my knowledge of blood related diseases was pretty good. I am heartened to hear that you got so much 'extra time' with Sue… remarkable given the prognosis and the accepted mean rate. 🙂

But I am aware of it now and will keep a keen ear out for any other…[Read more]

Hi Jane,

Welcome to our small but very supportive world. I truly wish you were not here and I hope that your Mum can get through her CDT without too much more side-effects… it does work marvels and when she is though the other side she will know that it was worth it.

As I said, I truly wish you were not here… but as you are and re:…[Read more]

Dai
I have thought about it Dai,do you remember my old post[can I have a moan]that other eve ranted and raved,had high blood pressure,needed a g&t to calm down,everything was so inefficient,time wasted,and do not get me wrong Dai it still is,but it has become the norm,and I have got use to it,we still wait hours for tablets,we have appointments…[Read more]

Hello Min

How you can think to write so much in one go is marvellous I am glad to see it looks like the thalid is starting to work for Peter lets hope he gets a good long term result this time 🙂
Love Jo x

Hello Eve

How is slim doing now is he feeling any better and putting on weigh and back on the treatment it a shame we have had such bad weather because a drop of sunshine would probably do him good
Love Jo x

Hello Jane

I took thalidomide as part of the CDT regime I found that if I took it last thing at night and the steriods first thing in the morning I managed to sleep most nights I am afraid constipation seems to be a common theme with any of the treatments I found prunes and figs helped but some times had to resort to movicol which can be given…[Read more]

Angelinax

Nice to hear from you I am glad John is feeling much better perhaps you will be able to get him home soon and back on track

Lots of love Jo 🙂 😉

Thank you Dia and Eve

for my birthday wishes. Dia i Will look forward to a happy birthday song

Love from Jo xxx

Dai

Love the song ,it,s lovely,glad to here your feeling better after your poo problems:-) ,Its nice to wake up in the morning and read your post brings a smile to my face
Angelina.have been wondering what was happening with you and John,not a good time for you,glad things are improving,Slim and I laugh about him seeing long legs in riding…[Read more]

hi Gina
Hope you mums out and is on the mend,:-)

MOnday,Tuesday and Wednesday at doctors,no infection,but blood counts done,changed doctor in practice,feel someone is listening to me at last,
Slims gone from one extreme to another from D&V and general feeling ill and BP low.Now feels much better,but no bowel movements since Sunday,been dosing…[Read more]

Oh Angelina, I am so very, very sorry and deeply saddened to think of John having to suffer such a miserable and disorienting time… never mind the amount of pain he must have felt in order to keep on forcing down the medicine. I am glad for you all that he is recovering and that he has no recollection of his state and behaviours. I hope that…[Read more]

Belated Happy Birthday Jo, I hope you had a good day. I will have to find a happy song now for while I like 'Bonnie Boy' it is hardly celebratory. :-S

Much love and many happy returns. 🙂

Dai xxx

Dia

what a nice song for my birthday on the 14th the bealtes wrote a good one about my age 64

Love Jo x:-) 🙂 😉

David,

"Living and the Dead Tour of England and Scotland – 2011"

What a wonderful and thoughtful idea made even more wonderful because you actually planned and executed it. 😀 😎

The Welsh side of my family is quite easy to find as generally they live in the same hole… or next door.:-D The London Irish (Mother's Father's side) and…[Read more]

Hi Willywinkie (great name Lol)

Am very pleased your Dad is home and you are all geting used to the words chemo through to stemcell transplant, we all have got used to them though am sure that they still scare us at times 🙁

As for the words that you read on here being an Inspiration:-D its story's like your Dad's that inspire people what…[Read more]