The best of luck to you both Min, if anyone can do it you can.

I am forever amazed by the recovery from a doubtful position, my own included. I have just started my second cycle of Velcade and I hope for the best, especially as I look and 'V' side-effects and Dexness aside, I feel so well. Ok, I have my physical restrictions but they are both…[Read more]

Hi Carol,

In remission and riding horses is hardly likely to draw much sympathy:-) But I understand where you are coming from, there is always the fear that it might be 'more' than 'just' arthritis and wear and tear and that is totally understandable and for that you have both my sympathy and empathy.

Refuse complacency from your medics.…[Read more]

Hi Jo

No not possible round trip of at least 160 miles,journey alone with bone pain would be bad for him.

It,s not so much the myeloma trials,It is the conditions which seem to go hand in hand with it,Slim complained of pain in side for a long time,we thought bone pain, when the cat scan was done turns out lots of wedge shape holes plus…[Read more]

Hello Eve

Is there any way you can change hospitals and get into one of the London units with such better standards of care I believe Kings and UCH are really good I attend Uch they cannot be more careful and caring do you think now Slim is home he could take the journey I really do hope the CDT works for him
and he will feel better soon
Love Jo 😉

Hey Roberta

Trust me girl you dont sound Crazy (well not as crazy as I) and if you need to vent what better place than here amongst friends and nearly Family 😎

Its a great thought if we all moved into an Estate (near a hospital ha ha) and then we would have neighbors that knew we get grouchy and tired after a hard days work. it could be…[Read more]

Hi Bridget

Its good to know they are with you and very knowledgeable in the drugs regime that needs to be used, I dont have a Mac Nurse, but hope if I need one she/he is as good as yours 😀

Like David I am pleased to say I am pain free (ish) unless I push myself too hard:-S

All the best on this wet Bank Holiday

Tom "Onwards and…[Read more]

Hi Min and peter

Sorry to hear about treatment causing a Bloomin big blip in both your lives, I cant add nothing to the good points above as I am still in remission so can just send my Love and Hugs to you Both.

Tom xxx

Hi Carol

Sorry to hear about your Pain:-( no one should have to suffer the pain.

I see you do Horse riding (they scare me) I hope it isn't that that causes the pain? I know after I do things at home/garden I normally suffer a bit of pain.

I am about 16 Months post stem cell transplant and am in remission.

Good luck on your pain…[Read more]

Hi Min like Peter I am now over 3 inches shorter than I used to be my remission lasted 18 months , which is not a very long one but neither is a very short one . It is an interesting thought though I have not seen anything to suggest spinal damage might affect remission time Hopefully you will get lots of answers which give an overall picture…[Read more]

Hi Carol welcome to our happy little band , I am sure you will get lots of replies. Bone pain is very common and doesnt necessarily go after an sct . Your consutant doesnt sound very helpful perhaps if you had a chat with the specialist nurse and rxplained how difficult it makes life being in constant pain . I have extensive bone damage and the…[Read more]

Hello Dia

you must let us know when you release your CD,s I think I would probably
like Etcetera as it has a mixture of what I like especially jazz and blues but i do like shanty bands they make for a really jolly evening. fingers crossed for the velcade lets hope it gives you loads of energyxxxxx

Love Jo 😉

Hi Tina,

I recently wrote this as part of a response to another thread in the 'Off Topic' section. It regards Janet and her watching over me.

'I catch her, in quiet moments, with her eyes upon me, quietly drinking me in, assaying her thoughts… and I leave her be.

I am her here and now, she is my beautiful. In the days to come, through…[Read more]

Thank you Jo. 🙂

Primarily I am a folk singer/songwriter with 30 years experience of folk clubs and performing solo and in a range of folk/folk rock bands… plus 15 years playing in a Ceilidh Band and 7 years singing with a Shanty Band.

But when it comes to songwriting I write across the board… from jazz to hip-hop, pop to country rock…[Read more]

Miss, miss, me miss!

Vivid dreams of the highest order in Technicolour TM with all the bells and whistles.

The whole body super-twitch (usually when I am about to drop off) is a classic, I would love for someone to set me up in laboratory conditions with forty strategically placed cameras etc. to capture the moment in slow motion. I…[Read more]

Hi Min,

I wish Peter the very, very best with his treatment. It certainly does not sound very pleasant, having been through most of that at one stage or another but it is a plan… and hopefully a plan that will get him his shot at the SCT. I appreciate that the medics are warning Peter that he will feel very ill with this radical treatment…[Read more]

Hello Dia

like the song I beginning to enjoy all your music 😎

Love Jo xxxx

Hello Min

so glad they have have come up with a new plan, THALIDOMIDE is a bit of a wonder drug I so hope it works again for Peter. Did you know how they dicovered it worked for MM they were treating patients for Leprosy and they happen to treat some one who also had MM a eureka moment the MM was put into remmission and they discovered it was…[Read more]