Hi Nicki,

It was good to see you again at the clinic and to finally get to meet Sam. He looked extraordinarily well and seemed to be bouncing with energy and life – long may it last!

Sam has responded well to his treatment and his SCT and if he gets a good length of top-end remission then who knows what will becoming available down the…[Read more]

It is a powerful piece of writing, made so for me because of its immediacy and connection to the here of here and the now of now and summed up in:'"Someday" and "one of these days" are losing their grip on my vocabulary. If it's worth seeing or hearing or doing, I want to see and hear and do it now.'

As do I… and I am quite happy to find such…[Read more]

Hi Nikki its lovely to hear things are good for you and Sam As you said its hard to imagine that it could be that way when you are facing the worst myeloma can throw at you!! Enjoy your holiday love Bridget x

Dear Gaye it really does seem so unfair that you should get no relief from the pain as others have said its something we are all told we wont have to endure I will be thinking of you on Thursday and hope like mad they can finally do something for you . Kathleen I am so sorry you are having a rotten time , I can only imagine how rotten 2 or 3…[Read more]

Hello Kath

just wondering how you are as you havnt posted just lately I hope you are ok 🙂

Love Jo xx

hELLO gAYE

So sorry your RT treament has not worked I hope they can sort you out and give you some relief:-) glad the pomalidomide is holding the MM lets hope it soon starts to get rid of it my thoughts are with you

Love Jo xx

Hi Wendy,

I've had tinnitus for many years, a throwback to the nerve deafness I picked up from 14 years as a miner. I can get it quite bad, usually when I am very tired or run down although, for the most part, I can block it out and send it into the background where it becomes an almost non-existent irritant.

Saying that I have noticed it…[Read more]

Min I think that is lovely,

The pen often means more than the spoken words,I just wish I had the gift,
I have looked on life as a learning curve,for a long time,I honestly believe,that some of the bad things that have happened in my life,an awful lot of good has come out of it too.

I use my denby arabesk and my crystal cut glasses every day…[Read more]

Gaye, you are an Angel. 😀 🙂 😀

You have been an inspiration, confidante, caregiver and friend to me and to so many on this board. I hate the idea of you having to endure pain 🙁 – it was the first thing said to me after my eventual prognosis back in June '09 – 'at least in this day and age, from this point forward, you will not have…[Read more]

Hi Eve,

Music complete but my vocals are very tired – I'm feeling much better after a really good night's sleep (7 hours straight , unexpected but so grateful). My sisters coming over for an hour this afternoon and Janet's on 'Big Birthday Party Duty' for Alfie (5) so I don't expect her back until 7ish – so 5-6.30 set aside for laying down a…[Read more]

Hi Angelina

Sorry to hear about Johns Problem 🙁

I have had CTD then SCT and so far am doing good only need Zometa once per month, so cant add to this apart from wishing John well 😀

Its been said John is in the best place and being looked after.

Wishing John a seedy recovery to get home soon.

Love

Tom "Onwards and Upwards"…

Hi Liz

I also say phone the Hospital and or the contact Number they gave you.

None of us are the same so need different drugs/meds at different times.

As for me I never hold back calling if need be, we all know our own bodies and what feels "Just not right" is when i call, pleased to say though Not had to call them for some time now :-D…[Read more]

Hi Gaye

Dont we know (or most of us do) about being blooming weary:-S I never know when am getting? (or do i just choose to ignore it?) but my young bride Elaine knows it well:-D so in that matter its all looked after

Good Luck on Thursday 😀 and dont let them make poodles with the Balloons he he

Love and Hugs

Tom "Onwards and…[Read more]

Hi Ali

Am sure when the SCT is due Guy will cope with it well:-D

and Positivity is a great thing, I feel it makes you better faster (but thats just me Ha ha)
Worry not about being busy and not getting on, just dont forget anything troubles you we are here for you.

Love
Tom "Onwards and Upwards" xx

Thanks Dai

Will look at that,Slim goes back on ctd week Tuesday,hope I can fatten him up a bit,they seem keen to put him back on it.I wait and see how he improves.
In need of finding some alternative treatment,

Have you started the music for the lyrics of angels? best wishers eve

Thanks for the info Dia America is so much more advanced than us it gives me great hope for new treatments
Love Jo x

hi Everybody
I cannot be much help to you ,only to say weekend or not make that phone call,I have learn,t that you do not hesitate,if in doubt listen to you instincts.

My husband ,has just come out of hospital,They make clinical judgement on a daily bases but at the end of the day you know your partner.
The problem seems to be everyone,reacts…[Read more]

:-0 :-0 and I mean :-0 …. and all that time I was blaming the medics for not turning up the gas.

You are a bad man.;-)

dai.

Gosh, you are all coming out of the woodwork now. 🙂 Liskeard is a lovely area… mind you the whole of the southwest is for the most part idyllic. I lived in south Somerset for several years and loved every single minute of south Somersetshire life.

I lived in a small village called Norton-sub-Hambdon, on a lane in the lee of Ham Hill,…[Read more]