Dear Tina I am so sad to hear Patrick has gone , your posts allowed us to know him a little and he must have been an amazing man The memories you have of your life together will get you through the dark days hang on to them Lots of love you Bridgetxx

Ah Tina my love, I am so, so sorry that you have lost your Patrick. My thoughts and love and sense of loss are with you.

Much love,

Dai. xxx

Hi Tracey 🙂

Sharpy is fine, Tracey is better. 😀 😎

Dai.

Hi Mavis thank you for your lovely kind words where would I be without you all !! I had a phone call today but the radiologists report of my mri wasnt ready Apparently they are going to discuss me in the team meeting on Monday though so fingers crossed Today I had to go to UCH to check out the swelling on my leg It wasnt a clot but they think it…[Read more]

Dear Lorraine of course you should offload sometimes and where better than here , we all understand what you are going through! As for the pains in your arms etc one of my problems with Rev has been the weekly cycle of absolute agony in my arms as well as everywhere else .I think in my case it is the Rev but whether it affects me more because I…[Read more]

Hi Marian I can see you have already been given lots of good advice and I cant add much except to say it will all make sense soon Far better they take their time getting all the right information to treat your dad so that his treatment will be just right for him and worth the wait Good luck to your dad and dont forget we are all here when you need…[Read more]

Hello Jean

fingers cross for the cruise you must be really looking forward to it especially with the family where do you hope to cruise to hope it is some where warm

Love Jox 😎

Hello Kathleen

I think it is very natural to be tired my husband did everything for me when I was at my worst it really got him down especially doing things like washing and ironing which he hadnt done before he has always cooked but it was slightly different when he had to do it all but he did all this cheerfully but I know it really tired him…[Read more]

Hello Jean

glad frank was right about the pulled muscles but he was a naughty boy to worry you so much how did he get on with the MRI scan hope it went went well I hope you get insurance for the cruise it will do you both good plenty of g&t's and not having to worry about driving..

Love JO XX

Hi MIn
Not good min,
I now know why they call those little girls who try to get you walking o/t,they go over the top,left Slim for 4hrs he was due to eat,have cat scan and have a rest period, this ot decided Slim was going to walk,ith zimmer with sticks and do stairs and Slim put on a great act and did the lot only to be exhausted for rest of…[Read more]

Hi Mari,

Well I'm following Stephen and Keith, so please tag along. 😀

We keep on getting rain warnings and deep blue graphics on the weather charts but little actual wet stuff. Janet's going out into the garden with the hose pipe and tools tomorrow. 🙂

Dai.

That is good to hear Angelina… I hope John's next treatment works just as well

I recently met a woman at the Nottingham infoday who had responded well to treatments but not to the SCT. I believe she managed 18 months after Velcade and five or near six years on Revlimid and still going strong. There's hope for us all. 😀

Dai.

Oh Jo here is Tom walking away Blushing he he 😎

Hi Marion

Ye its hard even for me and I am 55 years young 😀

As its hard to understand a fast talking Dr why dont you ask to have a copy of the notes that is sent to your dads Dr 😀 that way it can be read and re read until its sinks in 😎

I also have my fingers crossed for your Dad

Love

Tom "Onwards and Upwards" xxx

Hi Sharpy,

I started my CDT treatment in July 09 in a bad way with kappa light chains at 3,500 -they came down to 'negligible' after 2 cycles, complete remission after 3 and remained so after the 4th 'to be sure' cycle.

My consultant was adamant that I should press straight on to my SCT but I was not so sure because it took two attempts,…[Read more]

Hi Eve and Tom

Ditto not offended in anyway and tom you are looking gorgeous must be all the attention from the young bride :-S

Eve I do hope slim is feeling a bit better and now getting all the attention he needs

Min your posts are wonderful so full of help and information

Love Jo xx

Hi Sharpy

I have had two years remmision fingers crossed it lasts a lot longer,
didnt have an SCT due to major kidney damage had CDT for four months follow by a year on 100mgs thalidomide hope this helps.Para protien last month was in a band to fient to measure

Love Jo 😎

Hi Marian

So sorry to read your Dad has MM, but you have come to the correct place here for help and advice 😀

I was told in 2009 that I had MM and have had a stem cell transplant and doing good, do you know what treatment your Dad will be having? as we all have different treatment due to the MM

I wish your Dad well in his forthcoming…[Read more]

Hi Eve

Its a bit of a B-A-S-T-A-R-D this MM (see now av shown you he he)

Am sure Slim will be Ok its just getting his meds right that causes a big problem :-/

And as for Slim Looking in good shape, I think its an MM thing cos I know that all us suffering MM look bloody good to say what we are and have gone through 😀

Good Luck and…[Read more]

Hi min
just woke up, thank thank you so much,I need to know there is hope to give him hope,At the moment reading your message you could be talking about Slim I know I have left him tonight wondering if this is the end.The doctors do not know it,his attertude is I have got away with it for 66 years!!!!I suppose,because of his life style he has…[Read more]