Hi Gill I replied about half hour ago but it has vanished , the first time those gremlins got me!! Blooming laptop fell asleep before I did last night but I am always up till at least 2 and often later The annoying thing is the pn in my feet gets me up about 6 am whether I want to or not . I do hope you can get some rest today and it looks like…[Read more]

Dear Gill I had to read your post 3 times before it sank in my god no wonder you are in pieces! I have been told no more sct either but no-one has suggested giving up hence the revlimid Surely we just carry on with the current and most suitable drug and there must be new trials coming up . Steven and I are the same age and it is so incredible to…[Read more]

Hi Chris these chest infections can be a pain to get rid of ! Arent daughters lovely and its always nice when they come to keep you company, not too sure how I always end up cooking thought!! No I am not in remission When I relapsed and was on Velcade for 3 months but it didnt work So now its fingers crossed Revlimid can do the trick , I am just…[Read more]

hi kieth

I am following your story closely I am not on velcade yet they tell me it will be my next treatment I am really not looking forward to the DEX as I am a type 2:-/ diabetic so have to go on insulin as steriods really raise sugars I think about you all,all of the time hopeing everyone is successful

Good Luck with the next SCT

lOVE jO XXX

Hi Andy we we are all whippersnappers really!! As Debs said the under 50 site is great and I think you will find it helpful but I will look out for anymore younguns ! love Bridget

Hi Chris sorry to hear you havent been well , chest infections are really horrible I am struggling with one at the moment!! Hopefully you will be back on top form soon How are you getting on with the lenilimide? I must admit I am struggling with Revlimid , nothing too major just dont feel great most of the time ,mind you I am not falling asleep so…[Read more]

Hi Andy I think you might be right there , an under 30 group would be a very exclusive one !! I should think you were pretty peed off when they gave you the diagnosis, how old were you?!! To be honest I was 51 and still thought I was too young to have myeloma Take care Bridget

Hello David

Where do you find these things thanks for the laugh

Love Jo x

Well all the replies have certainly cheered me up and made me smile. At least I know that all the money I have spent on clothes I will save on having my hair coloured and cut and also save money on waxing for a few months 😀 All my old clothes are stored safely in my loft (could not look at my size 10 clothes now I am a 14) and a few of my…[Read more]

Hi Sarah I am on weekly GSF to boostr my neutrophils whilst on Rev . I do occasionally get pain but for the most part its not a problem Hope Frank doesnt have to put up with it for too long . Is there something else he could have or perhaps a lower dose love Bridget x

Thank you, email on the way. I am very interested in this development, especially as I already have PN courtesy of my CDT course of treatment.

Much obliged 🙂

dai.

Hello Jean

So glad you had a good holiday It does make a difference good luck at the next appointment and all will be well my appointment is the week after Easter I will get my latest PARA results so fingers crossed please let me know how Frank gets on
Love Jo xxed

Hi EVE

have you tried good old vanilla complan I made a milk shake from it with fresh bananas or strawberrys you can also thicken savoury soups with it there is also something called build up they give it out in the renal clinics
pobably not all that pleasant just a hold your nose job

Love Jo:-P

HI Everybody

Thanks for the info on Maxi-Joule Bridget,I tried doctors for a product you could sprinkle on food,told only certain products on nhs.E Mailed one manufacture who sent soup samples through to district nurse for me,not very nice.Will try this see if it works.
Perkymite I would give anything to see Slim drink,a glass of wine or even…[Read more]

Hi Eve I wondered if you have tried Maxi-Joule to help get extra calories into Slim? It is a white powder , tasteless which you sprinkle onto or into foods and it bulks up the calorie count It can be put on anything from mashed potatoes , scrambled eggs , in fact just about anything ! I used to have to use it for my very fussy daughter who has…[Read more]

Hi Keith good news that you have a possible date for your sct. One good thing in using your frozen cells is you wont have to go through the harvest process again , it can be a real pain second time around ! It wont be long before you are feeling tip -top just make sure you dont overdo it in th early days You have such a strong positive attitude to…[Read more]

Hello Jean

Did you have a good holiday with no problems are you all nice and brown
Love Jo x

Hello David

I really enjoyed that you do find some good things

Love Jo:-D

HI everybody

Thank you for confirming all those side effects poor Slim going through the lot, hard to watch at times.The only thing he has not done is put on weight,in fact this worries me,tried every thing,he cannot stand any of the soups and drinks to build him up,and his food intake is very poor,says he feels full all the time,would be…[Read more]

Hi Jet

Yep I kept my Lashes 😀 mind you it was the only hair i had left, and when it was growing back I could have took a bit of old rough samnd paper to my body to stop the itching lol.

No you wont need fals lashes and as for the wig some ladies look sexy with no hair 😀

Tom "Onwards and Upwards" xx