Hi Min
Hope Peter is ok now and you can get away for a few days it will do you both good lets hope the infections stay away

Love Jo

Good luck dia I hope your next appointment is a positive one we are all cheering for you :-0
Love Jo

Hi Min thankyou for the info and I hope it keeps those bugs at bay love

Hi Keith good to hear things are still going well for you. As for the sct well at least it wont be as scary as last time! It does seem as if people are not having to spend so lo long in hospital post transplant these days so thats a bonus!!Keep on keeping on Keith ! love Bridget x

Hi Jet,

I think you are dealing with the info you are given in the right way for you. My dad who has MM leaves all the figures up to my mum and myself to look into and if there is some numbers that will give him a boost on his journey he is happy to hear about them but he doesn't want to be bogged down with anylising numbers he just want to…[Read more]

Hi Eve,

Glad you have had a moan, it then allows the rest of us to follow suit and let you know you are not alone! My Dad is being looked after by 3 different hospitals which don't communicate they all just deal with the part of him that they specialise in, they don't look at him as a whole person which is very frustrating as all conditions are…[Read more]

Hi Sarah crikey 230 lambs!That sounds exhausting, I am so impressed .It must be very rewarding though How long have you been farming? I have always admired the hard work it takes to look after livestock but could never see myself managing even before mm , too lazy! I hope Gordon feels better soon love Bridget x

Hi Min sorry I cant help but I have never heard of it ,what is it for? love Bridgetx

Hi Mark hang in there and hopefully they will pump lots of anti-biotics into your dad to get rid of his chest infection. I really hope you get some good news soon As Min said try and stay positive and dont forget we are all here for you Bridget

Hi Liz and Kev

I also had to have platlets too, two lots but it made me beter faster :-).
When I had my SCT I also slept that much in the last 6 days that I misse who came to visit ha ha, sleep is what Kev needs at the moment (and for a feww weeks after) it will all fall into place 😎 I would say about three months and Kev will be saying Wot…[Read more]

hi Mark

Hang in there Mark,Is it a tumour on the skull or lesions? try to be positive,It is hard,and no matter what anyone says you and your family are the ones going through this,Wish you well mark

Hi Liz and Kev

So sorry you had to join this site, but it is one of the best.

I had my SCT december 2009 so it is 16 months post transplant and honest I have never looked back, up hill for a few months then WALLA better 😀

Since I had SCT I and my young bride (Elaine) have just got back from Great Yarmouth, and had two fly away holls…[Read more]

Hi Bridget and Min

Thanks for confirming it,s not me going mad ,just tired.At the stage Slim ,s going hot and cold both awake all night then hospital for consultant.He had not been given zometa into 6 week of treatment,told tuesday when taking blood,no zometa,told thursday phoned lunch time to make sure not forgotten phoned back come in 1 hour…[Read more]

Hi Dizzyliz ( love the name!) welcome I am glad you found us. It must be very hard watching someone you love go through a procedure which makes you feel so ill no wonder it has got to you From this point though things do get better , once the blood counts start to rise he will begin to feel better , although it can seem ages before that happens…[Read more]

Hi Tracey,

Thats great news about the reduction in your light chains, it certainly is encouraging and makes the side effects of CTD worth it to see them reducing in such high numbers. My Dad got his appointment in for August 10th/11th at the royal free so we cross paths!
It is great to share info, after reading your post i googled nephrotic…[Read more]

Hi Fiona lovely to hear things are going well for your mum Its amazing how things can change in just a short space of time Good luck with your running , I am in awe as even before myeloma I have never been able to run!! Do let us know how you get on and I will look out for you on tv Best wishes to you and your mum love Bridget x

Hi Eve I am glad you feel better after getting that off your chest and thats one of the things thats so good about this site!! I do get frustrated by all the waiting around, the worst time is when you are waiting to go home from hospital and have to wait hours for drugs!! But now I try not to get too annoyed as it just makes me feel worse and…[Read more]

Hi Clara
Just wanted to thank you for posting your dads side effects as I have had every one of them as well. I am just about to start my 4th cycle of CTD. I started very well apart from being allergic to allopurinol which covered me head to foot in a rash – very attractive ! I have found I am getting more tired and feel "not quite there" for a…[Read more]