Thankyou Gill its good to know somebody else has the same hobby as me !! Tee-Hee love Bridgetx

Hi Bluebird the there are quite a lot of people who had to wait months for a dignosis.In my case it was about a year , during which time 3 vertebrae were destroyed and it was only major reconstructio surgery that prevented me from being paralysed. The trouble is myeloma is a rare cancer and few doctors such as gps and junior hospital doctors will…[Read more]

i am so sorry to hear about your brother what a terrible shock which I know for you will hard to come to terms with I send you Big HUG you have every right to be angry Myeloma uk started the take 2 campagn for this reason as too many people have a late diagnosis as so many doctor ignore the symtoms which a simple blood test could solve my thoughts…[Read more]

Hi bluebird

my sympathy to all your family,My partner has mm,and it is hard to deal with,IT is rare only 3000 cases a year in Britain most doctors will only come across it once or twice in there working lives.the symptoms can be many illnesses,only bone marrow test will confirm 100% that it is mm.

Most people put it down to back…[Read more]

I am so sorry to hear about your brothers, it must be very hard to accept they arent there. Hang onto all those good memories you have which will be with forever and just take it a day at a time love Bridget

Hi Gill

LOL needed that,eve

Hi Sarah the last episode is on bbc i-player for a bit yet The new gets good reviews too Roll on autumn love Bridget x

Dear Gaye that sounds hopeful I cant remember where Mr Malloy works but he is a specialist in myeloma fractures , I think it may be the Royal London though. Apparently when he looked at my x-ray there was a lot of head shaking .He couldnt believe how little of my spine was left!!So surgery would be too dangerous for me but I really hope they can…[Read more]

Dear Gaye it seems so unfair that you are still suffering an unbearable amount of pain despite the rt .I suppose it would be risky repeating the rt but has anyone suggested any other options ? Is surgery possible ? There must be something they can do and I hope they dont keep you hanging on too long Its a good job you are a tough old bird like…[Read more]

Thats wonderful news Shirley, no wonder your smiling like a cheshire cat! Its great to hear such positive news, love Clara xxx

Hi Tracey,

My Dad is on his 2nd lot of CTD for MM, he doesn't have any intolerences so I can't help with your connection there however my Dad was diagnosed with amyloidosis in January and MM in February so I can understand somewhat the minefield you have to go through and I send my best wishes to you on your journey.

Can I ask if you have…[Read more]

Hi Keith

Pleased it is going good for you 🙂 as formeav got to grips with it on Good days:-D and am not having any treatment Cept Zometa infusion:-S

and Debs as for the feet mine also but thankfully no pain some time they just feel fatter:-/ or that I have something under my toes like wool:-0

And Gill ur comment ::::::::Stephen…[Read more]

Dear Susan

I am so sorry you lost a brother to this dreaded MM, and also give you my condolances on the loss of your elder brother, Life is so cruel.

I see you have just joined us, please stay with us am sure we can all rally round and help you in your hour of need.

Love Hugs and aslo Prayers sent to you and your Family.

Tom x

Hi Bridget

I too read the mail on line it saves buying a paper I was wondering how you are if you are now getting over the worst side effects of the revlimid
has you RT treatment relieved your pain

Lots of love Jo x8-)

Dear David

You are a very cheerful person always trying to give is a good story
I think your name suits you well keep us laughing

Love Jo x:-P

Hello Jean

I hope you and frank have a great holiday and come back nice and relaxed with a good sun tan
Love Jo 😎

Hi I too confess to reading the mail but I will say in my defence it is only because its the only free one now!! It was a good story though love Bridget x

Hi Perkymite

At least you have a good chance of not being infertile LOL,Perkymite what a lovely nam on wards and upwards 😛