Hello Jean

I have not had a bad pain but do get tinges from time to time I am afraid I am with frank this time I am sick of going to the hospital so I just will not put everything down to MM I know its a bit naughty of us it must be in our nature

Kind regards Jo :-/

Hi Amanda just want to add my welcome to you and your sister , and your mum too of course . I think its brilliant that you and your sister are keen to support your mum ,( I dont like the word carer either!), and I bet she is as proud as punh of both of you . I think Debs made a good point about this time without treatment will give you all time…[Read more]

Hi Amanda, and sister

Sorry you have to join this band of MM'ers, but to be honest they are a great bunch of folks.

I have MM and was told in Jan 2009 and started CTD in Feb leading up to a succefull Stem Cell Transplan and Yes am with you Re the Carer? it aint for me, dont know what I would choose?.

And as for the "Lack" of treatment yes…[Read more]

Hi Gaye
I know i am fairly new on here and my partner Slim is only on his 23 day of ctd,I do not understand why everone seems to be on different pain relieve.I am concerned how much Slim takes although hospital is very pleased with progress he was taken off tramadol put on 10 mil of morphine a day plus paracetamol 500.This controls the pain to…[Read more]

Hello Gaye

I am so sorry your pain has not gone away I hope the RT soon begins to work
you must worry a lot about the drug not turning up I dont think these people realise what it really means to people like us you can do without the worry lets hope things get better soon.
Love Jo 😎

Hello Tracey

So sorry you had to join this site but this is the place where you will get help and support also you can phone the great people at Myeloma uk they are so kind and know so much about the condition you just have to give them a call.I had CDT which worked well for me I managed to tolerate a 100mgs of Thalidomide for a year after CDT…[Read more]

Hi Min they certainly did!! Mind you doesnt seem that long ago I was out partying till the small hours Hope you have a lovely hang-over free weekend love Bridget x

Well my 3 daughters got home at 5 am so I yhink its safe to assume they enjoyed Paddys day in the manner of the Irish !!( no offense) x

Thankyou Dai that is beautiful , I am totally in awe of your talent love Bridget x

Hi Kath thankyou its good to know it does get better Mind you the painful tenderness lasted the best part of a week this month so fingers crossed next month is better !! love Bridget x

Dear Gaye no wonder you are cheesed off you have been in agony for such a long while now. I do hope the rt starts to relieve it soon . I agree with you about pain relief though it seems to be hit and miss in some areasIn the days fo;;owing my op I was on Oromorph but I wont take that again as I couldnt stay awake longer than 5 mins I have found…[Read more]

Hi Tracy welcome to our world ! I do agree with Min about the information found on some sites , I know on this site the info is relevant and accurate.Have you checked the under 50s as well , there is also another forum for people under 5o which if you are interested there is a link for either Phil or Scotty if you e-mail them they can invite you…[Read more]

Hi Tracey

May I be the first to welcome you to this great group, I know its one that we didn't want to join 🙁

I also started on CTD then moved on to my Stem Cell Transplant, now 15 months post sct and doing bloomin good.

Good Luck on your treatment.

Tom "Onwards and Upwards" xxx

Hi Tracy

My partner Slim is on 21 day of ctd.He was on B12 vitamins for awhile.I cannot help with gluten intolerance.Slim was very healthy before all this.I think when you are first told about myeloma apart from the shock you start looking for reasons.Everbody will tell you this no one seems to know why or where it comes from,we are all…[Read more]

David

sorry you did not get remission from your SCT but my docs say plateau is pretty good and you could be in that stage for a long time fingers crossed
you are an inspiration to us also with your cheery comments and little jokes we are all with you SO CHIN UP 😛

Love JO 😎

Hi Clara I have those injections too and the best advice I was given is not to rub it and it definitely hurts much less love Bridget x

Thanks everyone, Dad has the hospital tomorrow they are going to give him some diuretics which should help, he has been putting cream on which has helped, thank you min! He's really struggling with the anti blood clot injection he has to take everyday, its very painful and he has a good pain threshold so its bothering him. Hopefully they can help…[Read more]

Dear Roz hang in there Today was a bad day but tomorrow will be better So many of your friends on here are wishing you well and sending good vibes One day at a time Roz love Bridget x