David

You are part of the liberation movement and dont you forget it

Love Jo x 😎

hi Sarah

I was made to wear a liberty bodice hated it mine had button which attached
to my fleecy lined knickers (YUK) had to wear them all winter but only knee socks so legs got chapped all winter so not so toasty

Love J0 x:-)

Hi Gaye
sorry hear your back pain is not much better will they be able to operate if the RT doesn't work how are you getting on with your new treatment have you had any results yet

Keep well
Love JO

😎 hi Ladies and gentleman
I have found bras a pest most of my life as I have always been on the plump size and more plumpish on steriods I had to wear one I have found a sports bra with good support and no bones the best when my ribs were painfull I popped 3 ribs which was agony
Onwards and upward

Love Jo 😀

Hi jon
You are going to have down days;I do and its my partner who has mm.He has just finished dexa starts again Friday.Iknow he is a bit down right now but being a man keeps it all in.It would be lovely to have a magic wand and turn the clock back,Try to keep chin up regards eve

Hi girls this is certainly a hot topic and I agree bras are a painBut now that I am the size of a house it is actually just as uncomfortable to go without, oh for the days when my nickname was ironing-board!! It has added to the image of militant mmers marching in protest –bra-less and hobbling !! love Bridget x

Hi and welcome sorry you have had to join us but you have found the right place for info and support It sounds as if you have a good medical team looking after you which helps a lot if you have confidence in them It does get easier as begin treatment and get to know the ins and outs of various treatments but I remember how confused I was initially…[Read more]

hi hmason

Lot older than you but based in Deal Kent,Try 50 age group a lot out there,My partner is in 6 th day of treatment on myeloma X1 trials he got ctd side.He comes under the same consultant but not seen the big man'Worth trawling site as I found it very helpful and reassuring there are people out there who have been on this journey a long…[Read more]

Hi Eve
I also know how well this site feels to me Its like putting on an old pair of shoes 🙂 you know the tatty ones we just wont throw away 🙂

And as for worrying? well I worry about not worrying ha ha.

Does your partner not want to tell his daughter? or is he just waiting till he grasps the MM facts?

As for it changing our lives?…[Read more]

Brilliant game David I enjoyed playing it got all the countries correct
but not in the right places

Love Jo :-S

hello Jet

I have been reading your blog I hope you are feeling a bit better now I know the shock must have been terrible for you if its any consolation I did not lose my hair during trearment(CDT) your hair looks wonderful such a lovely colour
Love Jo 😎

Hello Ruth

I can relate to your worries MYELOMA is an awful diagnosis at any age but 29 is so young you will get all the help and encouragement you need from this site which may become important to you as you are seperated from your partner the hopital may be reluctant to give you any real information
Good Luck Jo

Hi Eve I am glad you find this site helpful ,I know its a lifeline for me .You didnt say how long your partner has been diagnosed but if it wasnt long ago you are bound to still be in shock and trying to come to terms with such a life changing illness But it does get better , life may be different than before but nothing stays the same forever. It…[Read more]

hi everbody

I would just like to tell you all how helpful I find this site,I never mention my partners name because his daughter does not know!! long story.

It is very hard sometimes I understand his feelings but as a very open person it is hard,he is just the opposite of me.If your can not do anything about it why worry about it!!!!

I…[Read more]

Hi Ruth what an awful shock for you no wonder you feel frightened and alone .If I were you I would avoid searching the internet for information as a lot of whats out there is out of date and can be frightening .I agree with Jet the specialist nurses are great and very easy to talk to If you dont feel thats right you can ring the info line on this…[Read more]

Hello Jon

WELCOME to the site it is the very best place for support help and information especially to know you are not alone all the odd and disturbing symtoms you may get there will always be someone who has had it before and can talk it though with you I hope they sort out your pain soon good luck for the journey
Keep well
Jo 😎

Haha lets just settle for irreverent anarchists!! Bridget

Hi Gill sorry to hear Stephen is having a rough time . When I was on velcade the fatigue was a major side-effect, I wasnt able to stay on it for long so I dont know if it gets better over time Fluid retention was also a problem for me , I think it is the combination of dex and velcade Does Stephen take Ferusimide ? It would be worth getting hold…[Read more]

hi jonny

Its my partner who has mm,I have found this site very helpful it has certainly calmed my fears.my partner is in his 5th day on myeloma x1 trials he got ctd branch.I can only say he is better than he has been for many months; Jets story is so similar to my partners.

I can only advise you to get things in place in advance,eg blue…[Read more]

nicki
I have only just joined this site,and to hear there is light at the end of the tunnel is good news.We are just starting are journey ,one we did not expect to be on.It gives me hope for the future,one thing I have learned from this site is to be positive,I thank you all for that regards eve