Dear Gaye I am so glad you have got a date now , at least they can start to relieve your pain and hopefully it wont be too complicated. For most of the time now I dont have that awful pain , it does come back for a few hours at a time but its not constant and I can deal with it Havent seen any daffs yet but its definitely milder and brighter , at…[Read more]

Hi Jen and Keith the disappearing veins are a problem for me too and in fact it is the one thing that can reduce me to tears! At my hospital they use PICC lines, these are a fine tube fed through a cannula in your elbow , up tp tour neck and then down to a major vein in the chest It is completely painless , being fitted and removed , only a small…[Read more]

Thankyou for making me laugh out loud!! Hard to believe but even harder to keep a straight face Hope you have a good day love Bridget x

Dear Min I hope you enjoyed your birthday and now you are officially allowed to grow old disgracefully !! You can now wear outrageous hats, jump in puddles , talk to yourself and answer , in fact anything you fancy ! Of course the men in white coat may come after you !! As for men in white coats– Sacha could definitely charm me into feeling…[Read more]

Hi Keith really good to hear you and Velcade are getting on so well Long may it continue!! love Bridget

Hi Angie
A warm welcome to you, hope all goes well with your Mum's treatment.
You will know by now anything you need to know just ask 😀

Hi Clara

The same warm welcome is sent to you this is one of the best sites around so you will feel at home in no time 🙂

Love Tom xxx

Hi Steph

Sorry you have had to join this mad Band of folk, but a warm welcome to you and yours.

I wish you and your nan all the best for this Tuesday.

love Tom "Onwards and Upwards" xxx

Thanks for the laugh David it cheers up the day
Love Jo 😎

Hello Min

Glad to hear Peter is feeling better now.Good news about your redundancy
when I was first diagnosed in the january Geoff wasa due to retire in the march his company let him go three months early with no loss of income or pension which was marvellous. I have the Myeloma diary it is really usful as you say, got it at the London…[Read more]

Hi Clara welcome to our merry band . At the moment you must be feeking so overwhelmed with it all but it does all become clearer. My advice would be not to google everything but take it one step at a time Myeloma is such an individual illness andthe descriptions of stages etc on the net are very often outdated now Newer treatments are emerging all…[Read more]

Hi Angie, I'm in the same position, my dad has just been diagnosed so trying to read up and take in as much info as possible, yes i am now googling words and treatments that are completely alien and trying to digest what they mean and what different levels indicate. Its is a lot to try and take in but I'm using this forum and reading posts that…[Read more]

Hi everyone my diary was given to me by my specialist nurse perhaps yours may have some of their allocation love Bridget x

Hi Angie welcome from me too , you really have found the right place for answers and support .Even if your mum and dad arent up to reading up on myeloma yet they will be glad of your support As Min has said it does get easier to understand as treament gets going and the initial shock wears off. In the beginning it seems to take ages for treatment…[Read more]

Ha ha David good one to start the day !! love Bridget x

Dear Gaye how are you feeling ? Any news on your rt yet? I am now addicted to scandinavian tv police dramas on bbc 4 .Wallander got me hooked , even better than the Kenneth Branagh versionNow on Saturdays we watcg 2 hours of danish drama , The Killing I highly recommend it lots of characters that you care about and very well acted As long as…[Read more]

Hi Min I hope increasing the dose does the trick this time too In the past dex has caused water retention problems for me so I have Ferusomide at the ready Could your itching be caused by anxiety ? You have so much on your plate and the waiting for a date cant help , hopefully your lovely employers will let you go very quickly I hope you are doing…[Read more]

Dear Min thankyou thats very reassuring . I realised today I had slipped up in taking Revlimid at the same time as dex so tomorrow I will take it last thing and hope to sleep like a baby!! What dose of dex was Peter on? I am on 40mg for the first 4 days of each cycle and was told it may be possible to reduce it after a short while. Your new…[Read more]

Hi,

On here for the fist time, Dad was told he had AL amyloid 2 weeks ago and had bone marrow biopsy taken 6 weeks ago. Up until today we were told he did not have cancer. On meeting a consultant to start a course on tablet chemo today it was briefly mentioned about myeloma, we were told that we should know this from bone marrow biopsy, news to…[Read more]

Dear Min I was pleased to see on another post that Peter is feeling a bit better this week , long may it continue Yesterday was my first dose and it wasnt a great day ,I just felt yuk all day and very lethargic What surprised me was I didnt get a rush of energy from the 40mg of dex at all , I had hoped it would override any tiredness from the…[Read more]

Hi David how very true Unfortunately politicians newly in power are like junior doctors and would have us believe they and their strategies are much better than anyone else before them Ha ha!! love Bridget x