Hi Min

glad peters kidneys are ok mine are good and stable at the moment but i do get swollen ankles in the evening but they are ok in the morning I think it is to do with fact I have to drink at least two litres a day which is really hard for me at the start it was three litres i felt like I was drowning, I really hope Peter responds to…[Read more]

Hi Gaye,

I hated taking the dex when I had my CDT, until Janet proposed mixng them in a small pot of yoghurt – which sorts of glides down without being chewed.8-)

I know you will keep us posted re the pompoms (there you are Min) and I want you to know just how much I appreciate your commentaries on these treatments etc.:-)

Much love xxx

Dai.

Hello Min

Managed to do it took a picture from my lap top camera hadn't thought of that, its not very good but you can now at least see my moon face caused by the steriods I am on at the moment to help my damaged kidneys, are Peters kidneys ok now mine are working at about 40% I luckily managed to avoid dialysis but only by the skin of my teeth…[Read more]

Thank you to all of your replies. I only had a local anaesetic. My first one was done by my clinical nurse, who was off sick, but next time I may well ask for sedation. They are trying to get me on the trial with Revlimid, but I shall know exactly on Thursday. Will let you know and appreciate all of your support. It helps when you talk to other…[Read more]

Good Morning Kay
ouch another painful bone marrow I have had three all painful because I did not realise you could have some sort of sedative will ask next time
any way your consultant may not be right life is full of supprises lets hope its one of those times
Good luck regards Jo 🙂

Hi Kay ouch!! there is nothing worse than a painful bmb.Do you have sedation? I would never have a biopsy done without sedation and it should be available to you Good luck with your results love Bridget

Thank you.

xx

This is realyy clever where do you find these little snippets to amuse us

Love Jo 🙂

Hello John
welcome to this site I dont expect anybody really wants to join but now you are here you will find much help and support and you will learn much about the condition more than most clinics will tell you.
Good luck with any future treatment
Regards Jo 😎

Hi Kathleen thank you lovely to have you back I hope you are keeping well love Bridget x

Hi Laura sorry you and your mum are having to go through this but joining this forum was the right thing to do , there are lots of lovely people who can support and advise you There are quite a few of us who were diagnosed around the same age as your mum and a growing number of people under 50 as well It does take time to get over the shock when…[Read more]

Hi Keith great to hear everything is going well . Dex is a monster but it generally does the trick and its wonderful when the pain goes away . Fingers crossed your remaining cycles go as smoothly . love Bridget

hi i tried to do that but it didnt work i think i need to use another image
but i cannot remember how to do it

Best wishes jo

hi Min

tried that it didn't work I shall just have to get another image if I can remember how to do it i am not very good with technology.
I have had sciatica for the last six weeks( agony )I have had some relief I went to an accupunture clinic it really helped with the pain thanks for trying to help me hope you feel better soon
Love Jo x

Dear Gaye I really feel for you , there is nothing worse. At the moment I take Severodol for breakthrough pain , although morphine based it doesnt knock you out . I also use the heated pads which do help. Hopefully your rt will happen quickly once they have seen your mri results love Bridget x

Morning John
And I am pleased other folk lose not the plot but the posts they send he he am pleased it aint just me 🙂 Sock in dryer :-0 do you not know the price of electric Ha ha :-S

And Ron
Well Nawty Email's do cause a flurry 😎
Yes am sure we could all do with Our/your good news posted, I know what you mean about shouting it from…[Read more]

Hi min

I have tried several times to do my photo it always comes out blurred i must br doing something wrong but I dont know what :-S
Regards JO

Hi David
The posts I lose are ones that I send and they never turn up he he Lord knows where they have gone ha ha
Yes its great to hear the words doing great see you in three months 😀
As for the anti biotic mine was an anti viral I think :-S I haven't been on anything for Months cept the Zometa 😎

And Hi David
yes 13 months is great…[Read more]

Hi Min

Fingers crossed, retirement i can really recommed it this will be time for you to do what you want most of the time, if you are like i was working full time for most of my life its a return to freedom

Good luck Jo 🙂