Hi Gaye

I also am sorry to hear you have been under the weather of late 🙁
But am very pleased to hear you ar getting some NEW stuff to help batter this bloody MM Good Luck on that (sounds Good)

I know you will keep us posted

Love Tom xx

Dear Roz

I am so pleased you got through the day and your reading went well.

I know you will have had loads of advice but mine is only to take one day at a time, as they tell me Time is a great healer.

Love and Hugs to you.

Tom xxxx

Hello Keith

Sorry the monster is back we are all waiting for this dreaded phone call
I dont suppose its ever as bad as the first time we are told it just as if there is a ticking time bomb in us and we just dont know when its going to go off really good luck with the next lot of treatment lets hope it gives you a good long remmission
Keep…[Read more]

Hi Gaye
when I went to the myeloma open day in London there was a lecture from a visiting proffesser from America, who spoke about varius treatment and Pomalidomide was one of them he said that the results were very positive sometimes on their own and some times combined with a steriod he seem to think it was going to be one of the next best…[Read more]

Dear Gaye sorry you have been having a horrible time , like you I had forgotten how bad the back pain can be , I hope you get your RT soon Great news about the Pomalidomide hers hoping it will blast the lousy mm to smithereens so you wont have to worry about treatment for a long time Happy new year Gaye love Bridget x

Hi Ron thats really interesting and I wonder if others have been warned of possible risk , it was never mentioned to me.Sorry to hear Pauline has been having a hard time and I hope she continues to feel better so you can both get back to your golf when the weather improves . I feel better than I did but I must admit the pain in my back is…[Read more]

Hi Keith thankyou that really helps to get a picture of the process I would have been expecting immediate pain relief too , at least now I wont be impatient.I am sure it wont be too long before a more specific therapy emerges.I have just read a piece on cancer treatment origins and I amazed that the first treatment wasnt till 1942 and came about…[Read more]

H Sharon I hope you are back home now and all went well .I have my appointment with radiologist this week and cant wait for my radiotherapy . Although I know a lot about it I am still a bit nervous about having radiotherapy so I would love to hear how you found the experience When will you find out about having velcade? Keep smiling your beautiful…[Read more]

Hi Gill I agree with Sarah , there must be something in the sct process which makes the desire for a dog a necessity !! In my case I dream of a little dachsund but I reall cant expect Jeff to do the walking etc so I am stuck with the furry grandson Looking forward to seeing pics of the puppy when it arrives love Bridget x ps maybe the…[Read more]

Hi Sarah your comment about feeliong selfish for working jumped out at me You are most definitely not being selfish and I am sure Gordon doesnt think so either !!In some ways its reassuring when my other haif goes off and does his own thing , it makes life seem more normal if that makes sense On the other hand if you feel the time is right to stop…[Read more]

Hi Gill sorry but as others have already said dex was a part of my recent velcade treatment Mind you it was a fairly low dose taken only 2 days a week so not as bad Stock up on ear plugs , buy yourself an i-pod even and pretend you cant hear for those dex days !!Heres hoping your peace loving hubby wont suffer from too much dexatude though love Bridget x

Hi Amelie great news about Johns remission ,long may it last The only advice I can add regarding infections is to have the pneumonia vaccine which lasts ten years .I had this vaccine 2 years ago and although I did have pneumonia last year it is likely to have been more severe if I hadnt been vaccinated love Bridget x

Dear Roz I am sure it must be very tough for you at the moment .Try and take it one day at a time . What a brilliant amount of money for myeloma uk , you should feel very proud that people who knew Michael felt able to donate love Bridget x

Hi Roz,

My thoughts were with you on Friday, I appreciate how difficult it must have been but well done you for getting through your reading.

I agree with the advice about taking a holiday and perhaps the best way to do it is to go to Teignmouth, in the early spring, when life is recycling and take Michaels ashes with you. It could be…[Read more]

Hi Keith,

I'm sorry my take was proven wrong but I wish you all the best in catching it quickly and maintaining a repression of your MM.

Regards

Dai.

Hi Amelie,

It is good to hear John's positive news. I think that we are more perceptible to infections in general because (I believe) infections and bone marrow are closely connected and our bone marrow is weakened by the disease.

There is a product here called Vick's 'First Defence'. It is a nasal spray used to fight infection at first…[Read more]

Hi John I would like to add my welcome too , this lovely group of people are the best support you can get . Best wishes Bridget x

Hi Jenny I am sorry to have missed your post until now but you have been given lots of good advice already Would it be possible to take your step mum for lunch or something and try and talk to her on neutral ground. her fears are probably so overwhelming she cant see how you all can help .I hope your dad is continuing to improve , as lots of us…[Read more]

Hi Min I have crossed my fingers and toes too and really hope you get accepted You certainly deserve to do the things you have always wanted too love Bridget x

Hi Keith

Well thats a Bugger aint it.

Am sure you will cope with round two Better than you did with round one as they say it gets easier:-/

All the best for Monday and hope the treatment you decide on will have little or no side effects 😀

Tom "Onwards and Upwards"