Good Morning Roz I am so glad the nurse is keeping you informed and I hope she gets that meeting arranged quickly Have they checked Michaels calcium levels ? If it is too high it leads to confusion , which could be sorted easily I am crossing fingers and toes the weather doesnt stop you going to see Michael , its a nuisance for us all !!love Bridget x

Hi Debs so glad it hasnt been too awful for you The taste thing is my worst side-effect I can just about tolerate everything else but I love my coffee!!Keep an eye on those bruises and mention them when you go as you could be getting low on platelets Take care love Bridget x

Hi Donna

So sorry for the delay in posting but have just found your posts.

So Sorry that they said nothing else can be done for your Dad, its a bugger of a illness is this MM, and I hope your dad proves them wrong.

Love and Best Wishes

Tom xxx

Dear Donna I am so sorry to hear the doctors think your dad is untreatable and I really hope he can prove them all wrong love Bridget

Hi Scott welcome to the crazy gang !!Sorry being flippant but you will find lots of support here from smoulderers and those of us who have mm Look forward to reading your posts Bridget

Hi Donna it does sound as if calcium could be causing your dads confusion , my father-in-law had similiar earlier this year Once they got his calcium lowered he got back to normal fairly quickly. You are wise to get a second opinion hope you get some answers Best wishes Bridget

Hi Sandie hope things go well for your mum she sounds as if she is coping with it ok As for the biopsy it can be painful so your mum should ask to be sedated, I always do , then its just a bit sore for a couple of days. What a lovely time for a wedding hope the weather behaves Best wishes to your mum and I hope you get your results soon Bridget

Hi Fran

Hope your doing OK now you must be getting closer to your counts being spot on,take it easy for the time being and you will soon be on top form again 😀

Tom "Onwards and Upwards" xx

Hello Kathleen

We can never win can we at the moment I am at least two stone over weight because of the steroids what ever I eat seems to put weight on me the season now is comfort food steamed puddings you can get induvidual ones dumplings stews with lots of beans and potatoes hot c:-) rumpets and butter all really fattening but I suppose…[Read more]

Hello Norman

I have had a monthly infusion of Parmidronate for the past 18 months the first few times caused a bit of bone ache in my legs but since then I have been fine only problem is I have deep veins so it takes two or three digs to find one
Keep well Jo

Dear Gaye you have done it again !!This made me laugh out loud too Hope you are enjoying a not too snowy sunday love Bridget x

Hi Roz,

I never received a visit from a cleric of any denomination but I can understand why Michael might open up to a stranger… and not tell you about it.

He most likely thinks of her as someone who is discreet and used to being a confidante; someone to whom he can pour out his misgivings, his fears and his sense of hopelessness -…[Read more]

Hi Roz and Michael

Am pleased Michael is talking to some one now 😀
I also did have a good chat to a lady at Castle hill, it wasn't easy as bless her she made me cry :-S and i dont/didnt normaly do that:-/ but hey Roz do you know it worked for me? yes Elaine (my young bride) and i talk about our problem when the need pops its ugly head:'-(…[Read more]

Good morning David,

I remember this stage well – waiting to bottom out (most like Tuesday or Wednesday) followed by the 'interesting' plateau for a few days before the magical 0.01. Once they consider you have reached the plateau you will be woken up each morning for blood samples (a bit optimistic for the first four or five days but you never…[Read more]

Haha Tanjooberrymutts from me too x

Hi Kathleen you have given me a good laugh this morning I can just imagine the look on your daughters face !! Talk about putting his foot in it !! love Bridget x

Hi Gill hope you and Stephen are well Are you in snowy France or snowy England ? Do the french cope with winrty weather better than we do ? Like Stephen I rely on mst but the pain is increasing despite upping my dose and being on dex and velcade. My doctor didnt say what type of surgery they were thinking of and until the surgeon has seen the scan…[Read more]

Good morning David I hope you had a good nights sleep You are in the best place at the moment its blooming freezing out here!!I hope today is a good one for you and your happy-o-meter stays at 10 As Jean says you are an inspiration to us , if only we were all as cheery as you love Bridget x

Hi Roz as others have said I have had a visit from clergy too , nothing heavy just offering a chance to chat Please dont be upset by Michael talking to the vicar its often easier to talk to a stranger, usually because we dont want to upset those closest to us It doesnt really matter that this lady is a vicar either , it must be better for Michael…[Read more]

Hi Georgina hope you are well . I had been on parmidronate for almost 4 yearsand my doctor felt a change would be useful Also there have been some studies which have shown that zometa when used with dex and velcade has had an effect on myeloma cells . love Bridget x