Hi Michelle

Yes an Onwards and Upwards is the best way:-D and by the way you write about your Mom she is also that "Onwards and Upwards" young Lady:-)

Give your Mum My Best wishes and a little hug (we all need those)
And dont you forget to look after yourself also xx

Tom xxx

Hi Nicki and Sam

Well its all been said re the SCT, mine went well was in hospital for 16 days and 5 of those was very very tired (flu like is a good term for it)

Oh not forgeting the Runs, gosh did that make the Nurses Laugh, I threw away more pairs of underpants than i do for my grandkids lol

Both of you Keep strong and have Sam rest…[Read more]

Thanks Bridget, fastest holiday booked so far dont think we can beat it, booked on friday about 2.30 and fly sat at 10.15 pm, yes I do need the break need some sun on the back of my fat neck ha ha

Hi David, ye i also tried and failed to reply but was blessed with an "EDIT", thanks and am sure we will have a great time, both of us are well…[Read more]

Hi Tom hope you and Elaine have a great holiday , will recharge your batteries for the cold winter love Bridget x

A warm welcome to all that eventualy got here:-D and am sure by the time i get back from my jollie's we will have transported a lot more 😎

Have a great week and i will see you all when we get back 🙂

Iccle ole Tom xxx

Hi David and web team I had the same problem when trying to reply to Toms post Bridget

Hi Gavin I am not too sure I can help much with your decision as each of us is different . I did go for the chemo option , but in my case the damage was extensive and severe and I was stage 3 when diagnosed. If your general health is good and you havent too many related problems then you may choose to wait ,but I would discuss it further with your…[Read more]

Hi Min I am lucky as I have only been breathless a couple of times ,iy must be a bit scary.I do occasionally have nose bleeds , nothing dramatic and usually when my platelets are a bit low .Good news about the kyphoplasty ,I just wish it was suitable for me but not so My mum who is 84 frequently tells me off for lifting anything as she worries I…[Read more]

Hi Stuart a big thankyou to all of you the site is becoming even better each day!!Its great that you are taking our ideas on board too Thankyou again Bridget

Hi Michelle so pleased mum is doing well and still going to disney on ice , it will do her the world of good It does take a bit of time for the reality of mm to sink in but once you accept it you can put it to the back of your mind and get on with living Your mum sounds like a very strong minded lady which will keep her going Please pass on my…[Read more]

Hi John welcome to the crazy gang !!! I think the best thing about this site apart from the wonderful support we give each other is the humour and refusal to be ground down by this lousy illness Take care Bridget

Hi Nicki so glad to hear Sam is doing well please pass on my best wishes What a lovely photo of the two of you . Hopefully Sam wont have too many roblems , lack of appetite and and energy are fairly standard just make sure he doesnt overdo it when he gets home love Bridgetx

Hi Kevin you really have been through it this yearheres hoping that was your last hospital stay for a very long while !! Constipation is the bane of my life too but luckily it hasnt been bad enough to need to be admitted. Mst morphine is brilliant , makes life much more bearable Take it easy love Bridget

Hi Nicki,

The idea of 'worse' is relative. Sam's system has just been given a massive jolt through chemo… or perhaps jolt isn't quite apposite, perhaps scour is better. His system has been scoured by the mephalan and he has had some really good stuff washed out with the bad, good stuff like his immune system and suchlike. He will have to…[Read more]

Hello John

glad you found the site have just managed to find it myself not good at adding the picture yet

Regards Jo

Hi Norman welcome to our gang sorry you find yourself here though As Min has said you will always get answers on here and all the support you need from people who understand and care . You definitely should not have to put up with pain ,I have extensive bone damage and take mst morphine and severodol for pain Pain relief is the first issue dealt…[Read more]

Well ur in And Welcome xxx

Ian's got the same camera as Gill – not enough exposure. Welcome Ian, we are getting there… here.

Dai.

Hi ( sorry you didnt put your name ) trouble is myeloma is so individual its hard to compare treatments In my case my doctors take the whole package into account before suggesting treatment , which means scan results , bone marrow biopsy as well as paraprotein levels.If you feel comfortable with the consultant the perhaps asking the question…[Read more]