Hi Roz,

The bain of my life is my PN – I'm a martyr to the tingles.:-/

Mine is definitely worse when I'm tired or when I feel off in some way – a bit like my Tinnitus. If I didn't have PN I reckon I would mark myself 80% mobile, with it about 65%… but given the alternatives I'll take it.

I'm sorry that Michael has PN on top of…[Read more]

Hi David,

My ankles have a permanent dry and scaly feel, with a bluish tint to them and several small to medium almost burn like marks above; all left over from radiotherapy elsewhere on my body (so I'm told). They improved no end in the summer (17th, 18th and 19th June and 23rd and 24th of July) when the sun got on them but alas grotify when…[Read more]

Hi Roz
So Sorry to hear what you are all going through 🙁 if you haven't had enough, Make that Complaint and hope it wont happen to anyone again.

Another Cyber Hug WooOOoooooooSh Now that one is bigger xx

Hi David sorry I havent had anything like that but if it doesnt itch and isnt spreading its probably ok A few people have posted about rashes that began when they started treatment but theirs sounded more widespread.When you think about it its not surprising really as our poor bodies are bombarded with all these poisonous toxins all at once .Hope…[Read more]

God knows that we can be eternally grateful to and for the NHS for its 'not for profits' services and levels of care and I am sure that each of us can testify time and time again first hand about the wonderful personal experiences we have enjoyed – but if we don't conversely flag the bad practices and bad personal experiences, then things will…[Read more]

Roz no wonder you and Michael feel down I agree with Michelle now is the time to go through PALS and complain !!Write it all down before you contact them to help you remember .It sounds hopeful as Michelles complaint at the same hospital was dealt with quickly Good luck but dont wait do it today that way you might have some peace of mind love Bridget x

Hi Roz
your welcome re the "Cyber Hug" and am sorry you got cut off on the phone to Michael, Bridget is correct phone the Nurse Station am sure they will be more than happy to help.

Cyber Hug on its way (WWOOoooosh) there you go Roz you now have it

Tom xxx

Good morning great to see this site developing before our eyes .Would it be possible to have a category for people who are in hospital to post their news,updates etc It would make it very easy to find and reply quickly which can mean a lot when you are suck on your own for weeks at a time Thankyou again Bridget

Morning Roz sorry to hear you had a bad night I think we all need our partners reassurance before anything scary so no wonder Michaels nervous If you hadnt finished your conversation perhaps you could ring the nurses station and ask if they could let you speak to Michael? x

Hi Sarah good luck to you both just think you are nearly there, now in a free from treatment time it will be worth it .I am due to have my second sct in the new year , it will be my last as I cant produce any more cells ( they are using the ones frozen last year) As for retail therapy sounds good to me and any strange presents you buy cant be as…[Read more]

Yippee I was getting worried you were going to disappear into the world wide web thank goodness the web team sorted it ! love Bridget x

Thankyou Roz what stunningly beautiful photos !! The giggling baby elephant has made my night Hope all goes well with Michaels transfer tomorrow ,try not to worry too much and get some rest love Bridget x

Hi Michelle so sorry to hear mum is not well hopefully the anti-biotics will get things sorted quickly When I had pneumonia last year I was very ill but within a couple of days of being on iv anti-biotics I started to pick up very quickly Stubborness is a good as well as bad trait by the way , its what keeps you fighting and your mum is a…[Read more]

Hey Roz and all you others that download this I have to tell you its GREAT, Oh Roz what a great job you have done on it 🙂 I am gonna do one myself soon so as they say "Watch this space" Thanks for the Push Roz xxx
Not forgeting "One Cyber Hug On Its Way For You Roz" WOOoooosh (sent it) xxxx

As title says and al be back Love to you All xxx

Good morning Gaye I just finished reading about NICE being stripped of of its power to refuse or sanction drugs too Lets hope they dont replace one system with another!!Am I right in thinking gps will now decide? Either way its going in the right direction As Tom says onwards and upwards!!x

What lovely grandchildren you have Tom they must give you so much joy and they look like real characters too !!My eldest grandson is 10 going on 100 I reckon puts me in my place anyway !! x

Lovely pic Tom good to see the infamous crocs and socks at last !!Your grandson is a little cutie Hope you and the crisps had a good weekend love Bridget

Great Photo Lee 🙂

And Gaye am plesed you at last seen the "Socks with Crocks" Photo ha ha.

As for the Spanish shirt Elaine and I were in Spain when Spain wont the Cup, and I bought it that day to wear at nite 😀 It was as you imagine a great nite when they won :-P, baby Jack Loves his Football shirts so got him one also, now when he comes…[Read more]