Hi Peter

Since 2003 you have done very well pity about RT but if it solves the immediate problem,then it must be worth it.

10 years to anyone on here is all good news,the fact that you now need more treatment is a bit of a bummer,but that's what we are here for to support each other when times are hard,age does not come in to it.
Slims…[Read more]

Yer correct you lot its nice to be nice BUT Lol, and Eve am sure you shouldn't tell us Slim was having his curly's played with Ha ha xx

Love Tom

Hi Ian

well am pleased to seem to have found what it is hope the reductions work and your soon back on your feet (no pun intended Lol)

Keep strong

Tom Onwards and Upwards

Hi Sue

Well Sue the reason they say oh,and walk away,or go in as you come out,is they cannot face it and by looking away they think it will not happen to them,but when something like this happens to them,who do you think they will go to for support and advice,I am sure I do not have to tell you the answer.

I had a conversation with a…[Read more]

Hi David,

The radiotherapy in 18 months or so is not such a long shot as it first seems.

Say you get 12 to 18 months from the Velcade (it's usually a pre-cursor to a 2nd SCT but gives you a fair remission on its own merits) by that time, as you get ready for the next step to Revlimid (and Dex of course) the newly licensed drug therapies from…[Read more]

Hi Maureen,

The trouble is I have no idea when my neutropenia has lifted. I finished my 2nd infusion of Bendamustine a week last Tuesday and then I was sent home for the best part of 3 weeks to allow the chemo to do its job and then for my bloods to recover. 😎

So Janet will have the Grandchildren at their home tomorrow which we know will…[Read more]

Take it was… but take it all the same, at a much reduced rate and avoiding all but the closest of family for the first 6 to 8 weeks or so until your bloods get to normal or better.:-)

Take this time just to look at each other, chill out and get addicted to daytime TV… so when fitness allows you can rummage around the car-boot sales as…[Read more]

Hi Tom

We only live 20 miles from France,and they are so moterhome friendly,believe it or not its cheaper to spend a month in France,than a week in this in UK.So if we manage to go away it will be France.

Now Slim looks well,if anyone ask how he is I say fine,because if truth be known they do not want to know!!! And they don't want to know…[Read more]

Hey Eve when you go off in the Moterhome bring yourself and Slim down to Sunny Scunny we have a nice place for the capming fraternaty pretty near us in Sunny Scunny 😀

Andy

I was at work today when some one asked me how i was doing and as i started to tell him another workmate ? walked in and heard our chat and said "Oh are we on about…[Read more]

Hey Girls and Guys

As for lack of saliva!! its been a long time since i was in that position but I used Chewing Gum 😀 and I know a lot of you Ladies wont use it? but it worked for iccle ole me 😎
As for the food I was some time before i could eat big what i call Sunday Dinners, but it came back after about 6 months post SCT with a…[Read more]

Hi Rob
And a warm Welcome to you and well done to you.

After my SCT in 2009 (Dec) I went onto Zometa for 2 years am now in remission and drug free 😀
The Zometa might give you symptoms of Flu but that will soon wear off.

Good Luck and well done so far 😀

Tom Onwards and upwards

Hey Andy thats good so you say if you reach a a point then the drug company pay ALL cost of the drug??

Tom Onwards and Upwards

Hi Jean and Frank
Your welcome and hows things doing ?? you dont want to sit in hospital watching bad movie's get Elaine on Ipad for Face Time it will do you both good Lol.

You all stay well now and Dai you are correct.
We should have a thread Just for you dai as your words are words of Comfort and Wisdom my Friend 😀

Love Tom Onwards…[Read more]

Hi Georgina

you know I cant answer for your dad but i can tell you what I just might do if I was offered a 2nd SCT First I would look at how long i got in remission with the first, and 2nd how good the alternative is Ie the drug only route, when i got better from my one and only SCT I said openly that I wouldn't have a problem having a 2nd, but…[Read more]

Hi you two
Pleased its going good good luck for resuts on that dreaded BMB

Tom Onwards and Upwards x

Hi Louise

Not a problem its now a wait and mor wait 🙁 but in the end it is worth the wait 😀 , your dad and you all will be thinking will it ever get better (we did) and one day your dad will wake up and feel 100% Better, not his old self am sorry to say but Better 😎 and that is what all this SCT was for its good to feel that better…[Read more]

Hi Peter
Now I am confused (know it dunt take much lol) am now not sure who to look for on FB lol, is it Stevenson or James ha ha.

Tell your Middle Granddaughter to add me to yours and you can find me as tom.lappin.5 Me thinks but av got a photo on mine so you will spot me he he.

I also dont do good as its not as much fun.
Catcha soon…[Read more]

Hi Sarah and Henry

Its always strange when Meds change with no discussion :-S and am sure you do always ask?.
But I was on Zometa and had that for two years post SCT, just had flu like symptoms for a few of the treatments.

Sarah, Frank keep eye out for Jaw problems as it can have problems on the Jaw bone.:-/

Keep well.

Love Tom…[Read more]

Hi veronica and Georgina

No problems please ask away about anything.

I was diagnosed in Jan 2009 first line of treament was CTD I had 5 courses of it, that led up to my SCT in December 2009 in Castle Hill Hull.
Now in remission and Drug free now 😀 and I now only go see Consultant every four Months.
Dont forget ask away things i cant…[Read more]

Hi Sandie

Now do I say well done in having Osteoporosis :-S Yes i think I should 😀 .
Its not good but its Better than having MM :-S .

I think you should ask if R/T will help ease the pain in your back??, let us know what exercise they say you can do as am sure it will be same as us MM folk should be able to do 😉 .
Am Pleased your Mum…[Read more]