Hello Maureen

when I had CDT i HAD 100MGS THALIDOMIDE everyday 40mgs of dex 4 times a week as well as a dose of cyclophosomide 250mgs once a week had this for 4 cycles it was the dex that effected me quite badly hope this helps
Jo

hi Vicki

has colin been offered thalidomide as a maint drug I had that and was ok with it, it could suit him better than some of the others
good luck with the remission
Love Jo x

Hi Robin and Jim

Looks like his Team are on the ball, am sure it will help going back into Jim's History as he has had a fair few problems for some time, he will soon be sorted its just takes a bit of time.
Give my Regards to Jim.

Tom Onwards and upwards x

Hi Mal and Bruce (clucky great tag lol)

Well done you two doing all that at home 😀 we have some friends down the road from us and he has his gear at home and he does his at nite so it is less problem during the day 😀

Good Luck with it all

Tom Onwards and upwards xxx

Hi Folks

Gosh am overwhelmed by the response both here and on Face Book 😀
Thanks for your best wishes BUT?? a lot of posts seem to mention Vodka?? do you think I should drink a bit now and then Ha ha.
Yes its great news and i wonder if thats because I Harvested enough for two SCT's but they put them into three bags and not two 🙁 I was a…[Read more]

Hi Maureen and Ian

Well I went through My CTD pretty well but i cant recall Dosage as mine was 2009 and i forgot he he.

Good Luck to you both and hope its a smooth Run

Peter your doing well I see keep it up and stay well

Tom Onwards and upwards

Good Luck for Monday Dai, and enjoy the week end (I just might wash the car??)

Onwards and upwards

Aww Pat

Thats Great News its not a Little thing its a great big Well Done You Thing8-)

I know how proud I was when I woke up feeling "Wow am better" after my SCT and I loved it.

Well Done again Pat so chuffed for you 😀

And Dai Great just bloomin Great 😀

Love to you all

Tom Onwards and Upwards 😎

Hi All,

Thank you for your continuing support and encouragement.:-)

I am feeling a lot better in myself, GCSF injections completed, 3 antibiotics finished so it's wait and see on Monday whether or not my Neutrofils are up and over the 1.0. I have another rest week before Cycle 3 and so the Neuts have to get up to at least 1.5 otherwise…[Read more]

Blooming good news Tom
onwards and upwards as usual keep on the Vodka must be working;-)
Love and Hugs Jo x

Hello Pat

As we say one step at a time dont you feel good when you achieve small things had a hair cut this week going for a colour on friday taking a chance why not#
bIG HUG FROM Jo x:-P

🙂 😎 😉 😛

Right words Dia as usual
Love JO X

Small things, little things, gentle things
Things that describe the way that I feel
Not sunshine or shadows
But smiles and side-glances
Little romances I know to be real

😎 😀 🙂

Dai.

Hey Tom, ho Tom, merry, merry, down… all in the Forest so green-o. 😀

Great news my friend… I am so glad that one of my contemporaries is getting a series of green lights… onwards and ever upwards. 😎

Most people on longer term remissions get on with their lives and drop in now and then… very understandable too… but you are…[Read more]

Hi Maureen and Ian

Am sure he will love it here ????as and when he comes on great folk on here.
Lets hope it's home soon for him.

Tom Onwards and Upwards

Hi Liz and Kev yes it is nerve racking even though you feel fine it's the Dr's Smile I need, yes al continue doing what's good for me but the vodka just one tonight (work in morning) but Friday heheh he xxx

Jean thanks ????but no club tonight work Friday am pleased to say.so the party is on tomorrow ha ha xx

Phil Jan and Sam , well done you…[Read more]

Hi Maureen and Ian
The hospital should be taking bloods on a daily bases if there is an infection,they do tend to give more tablets as a precaution,and this can cause Ian to be confused.when you go in check if his general ops are ok plus bloods,if you are not happy ask to see doctor who looks after him on a daily bases as consultants come every…[Read more]

Hi Tom;-)

All good news,but I swear you have more vodka than blood in your veins.8-) Slims just had another BMB as only way to tell what is going on,at the stage were you feel it might just give you a tap on the shoulder.

Lovely to hear,you have the all clear ,no wonder you went to Asda to buy more vodka Love Eve

Hi Tina

You are just behind Slim,he was randermised for no treatment ,but we are ok with that,we go to hospital every 2 months ,just to check every thing is ok.

slims just had another BMB as his. Does not show in bloods or urine,so 6 months BMB just to check it,s ok, will have results in March. Eve

Hi Robin

Myeloma is a cancer with no cure,but saying that your dad can have a lot of time in remission ,so all though it sounds bad,the more you learn the better you will understand it.Myeloma is such an individual cancer,and people react differently to treatment,one thing you will find on here is people who have travelled this path before…[Read more]