Hi Megan And Phil

When I had my SCT and went back for tests at Castle Hill in Hull I was booked in and put in a side room then a Nurse used to come in and take my Bloods/Temp then take me through to another waiting room and put me in another side room and then the Dr came for me took me into his room and told me all bout my results, On the…[Read more]

Dear Sal

Yes I recall your posting about Jim, and am so sorry he lost his Short fight with this dreaded Disease.

I send my condolences to you and your Dad's (Jim) Familay and Friends.
Keep in touch if yopu wish

Love Tom xxx

Hi Jean

Wow he is a Little Cracker, one Handsome little Lad, I bet you are all well chuffed, now go out and enjoy the shopping we dont want to see him in a frock now do we.

Love to all 😀

ps can you just give him a wee slap as the devil has more hair than I lol 😎

Pat Baby Beatrix is a cutie, so so Tiny aww Now am gonna have to…[Read more]

Jaqui

I hope all goes well on Friday and I am sending you Cyber Hugs to help you get through this difficult time.

Love and Hugs Tom xxxx

Hi Dai

Hey am pleased your results are getting better My Friend 😀 and its a shame about having to wait for more results as i know its a worry having the wait.

So as you say Carry On 😎

Love to both you and Janet

Tom Onwards and Upwards x

Home is where the heart is… and the TV, sound system, bed, toilet… etc. etc. Familiar things that may seem trivial to some but are of vital importance when recovering from a major procedure like a SCT.:-|

Take it easy and take it slow,,, very slow. Rest up, don't try too much too soon and don;t feel guilty about chilling out and…[Read more]

Hi Sue and Michael

Am sory the snow didn't allow you to get to the Hospice and I hope you get soon now the weather has got better.
Am pleased you found help with the District Nurse and Mac Nurse,I hope the stair lift Lifts Michael's spirits as am sure it would be great to get into another room.

Its a Bloomin Shame you are left at the…[Read more]

Well done Stevo

lets hope you have a break after eight or one over the 8! i have had a temporary break from velcade been in hospital with a chest infection temp of 39 and all that, after a few days on IV anti b,s nearly back to normal as for MM Murky Mud Blood disorder from the depths of hell come to mind:-
Keep well love Jo x

hi Phil

sorry you have had a bug 2 years well done keep it up we need good news
Love Jo 🙂

My PN started with my frontline CDT… put down to the 'T' of Thalidomide. It was mainly in my feet with only the slightest sensation in my hands. The second wave came with Velcade, which exacerbated the PN in my feet and calves and started to show in my fingers and hands. I am now on Bendamustine… which includes weekly Dex and Daily…[Read more]

Hi Vanessa

Once you have had SCT you are again randomised for maintenance or not. My husband got no treatment,at first I felt he had lost out,but it does give you more time away from the hospitals.

He now goes for Zometa every 2 months boods and urint taken for trials plus we try to get appointment with consultant the same week,so that…[Read more]

Hi Steve

Good luck on cycle 8 and I hope the side effects are low.
As for trying to remember what it's like without the side effects well trust me it won't be long till you can't remember side effects.
Stay Well

Tom Onwards and Upwards

Hi Phil
Sorry you have The Bug, I hope it's soon cleared, and may I say Happy 2nd Anniversary, and hope you have a healthy run through to your 3rd.

Tom Onwards and Upwards

Hi Vicki and Colin

Well snow or no snow am sure you prefer the Countryside to town 😀
As for the BMB "Gas and Air" wow I just get a Local Injection then they dig in Lol, and all I want to have is a few large Vodka so that when the Local wears off am in a drunken state lol, am sure it will be Ok but I do feel for you both as the wait is near…[Read more]

Hi Steve
I am doing great thanks, hope you are same.

Now a new name lol am told I can't cuss lol, and yes the spammers need casterating and am up for that job.

Stay well Steve and if a name crops into my head al post it lol

Tom Onwards and Upwards

Hi Vanessa

Sorry you have Had to join us.

I can only tell you the chemo keeps on working after the cycle is finished.

My husband finished chemo a year ago around Christmas and he had gone down to 6 he did not have his SCT until May I between all this he had another blood test taken and it was 2. I was worried at the time they were taking…[Read more]

Hi Lisa
Your welcome, and yes it is good to be here and get some one who is going or gone through the same, getting info before you need it gives us that heads up.

You both keep well.

Love Tom Onwards and Upwards xx

Hi Grayham

Yes it is very scary,I think we all felt like that even careers,specially when they tell you there is no cure.we have all been there got over the shock asked the same questions ,my husband was like you,never took a pill or had a headache,well he has made up for it in the last 2years,our home has seemed like a chemist at times.

It…[Read more]

Hi Graham

A warm welcome to the Site, sit down make yourself comfy and ask away.

Me ? am 57 had CDT then stem cell transplant in 2009 now drug free and doing great.

Keep well Graham

Tom Onwards and Upwards
Al av a look at your photos too 🙂