Hi Susan
Yes I was on Thal, I got through it pretty well to be honest, yes I went on sick for a year had all it done in 09 and am now Pleased to say drug free and still in remission, my ext visit will be 14 Feb,

Keep well and hope it all works well with little or no side effects
Love Tom Onwards and Upwards xxxx

Hi Jenny

Well I was on CDT and was pretty much the same, I went on sick in the May (that would have put me nearly finished. My third cycle, so am sure it's same as mine.
Good luck with it and hope it puts you in remission.

Love Tom Onwards and Upwards xxx

Hi Keith

Good first week, keep your eye out for constipation that was a devil for me if I got lax (no pun intended) and never took the mess to keep me regular.

And don't forget the water, I would say a little more than 3 Ltr a day as I suffered urinery infections and was told to drink more.

Keep well Keith I did 5 cycles then SCT.…[Read more]

Hi Keith,

Well so far so good, even if it is very early days. Your Nuets are holding.perhaps building and the rise in your HGB is good news too. 🙂

I do hope that the CDT helps to get you back on track and as long as your bloods hold out you could go several cycles, perhaps reaching remission or a healthy plateau. I know that being on…[Read more]

Hi Megan
I was given "The Card" but I don't carry a wallet and the bracelet works for me.
And it's important that we have the information about our bloods and our MM

Tom xx

Hi Susan
A warm welcome to the site.
Am sure I can't advice you what to do, but I can tell you I was on CDT then onto a Successful SCT all in 2009, I am now in remission and drug free and still doing well , it has had it's moments over the year and a bit to be fair but it is a doable .

Where are you being treated ? As some on here might be at…[Read more]

Hi Susan

Sorry to hear you have Myeloma,but welcome to the club,it is very mind blowing when they tell you!!!,i cried when our own doctor told us,my thoughts were how do you control a cancer that goes all round the body in a blood supply.I had a lot to learn,and i have to say it takes awhile to take it all in.

My husband is on the Myeloma X1…[Read more]

[quote]It's strange to think that when Patrick was having Bendamustine treatment 2 years ago it was not very well thought of. In fact I remember suggesting it to one of our gang and she said that her Doctor had told her that it was a waste of time. [/quote]

Hi Tina,

That was also my original impression based on information and opinion of a…[Read more]

Hi Tebebe

Your more than welcome, am please you found a site that is specifice to you, but pop in every now and then and let us know how you are getting on.

Love Tom Onwards and Upwards xx

Hi Phil

I have an SOS Talisman Bracelet Like one here ::::http://www.medical-bracelets.co.uk/SOSBracelets_Men.shtml

Got mine Localy and it has a "Fold up sheet" inside that gives you space to put Contact details, allergys and things that need to be told to medics before treatment starts, hope you never have to use it 🙂 but it puts my mind…[Read more]

Hi Maureen,

I am sorry that Ian is not responding to his treatment as quickly as you and the medics might wish. His anxiety seems to be holding him back and I know from experience, as do many on this board, that hospital is hardly the place to raise his spirits… home is the only place to give him a real chance of that, Being positive,…[Read more]

Hi Terry,

Our paths and treatments have followed very closely, Velcade was also magic for me (not the process, old school cannula not the new subcut unfortunately) but the MM came back within weeks of finishing treatment despite reaching total remission. 🙁

I have one rest week left before starting C2… getting a little better and…[Read more]

Hi Tebebe

Sorry you had to join 🙁 us but a warm welcome anyways now you are here.
Seven Children wow I have three Sons all grown up and yes I/we found it pretty easy to tell the kids as we had been through it before with my Young bride (breast cancer) but I know its hard, it depends on how old the Children are as to how much I would tell…[Read more]

Hi Andy and all

Pleased your doing Good Andy and I as a MM'er super glued my fingers crossed lol (only joking lol) your doing well Andy and am sure its a blessing for those that have had to start new treatment to know people like you do well with it 😀

Keep going strong My Friend and stay strong.

Tom Onwards and Upwards x

Hi Peter

And I got this in my Email :::::

PeterJames has posted to a discussion you're monitoring:

Subject:
RE: Harvesting for SCT

Message:
Hi to one & all out there
Came into the Christie yesterday , set upon straight away , Hickman , line installed & drugs into me in quick order
Late pm had my dose of killer chemo , but…[Read more]

Hi Lesley and Jill

Sorry I cant help on this one, Just wanted to wish you Luck.

Love Tom "Onwards and Upwards" xx

hi Steveo

my kidneys were working only at 20% when we discussed SCT they still are I was told there was every chance with the chemo that went along with SCT it would probably put me on dialysis I didnt want to take that chance so no more was said hope this helps you
Regards Jo

Hi

It is so nice to see such positive reply,s to Mari.No matter how many people tell you there is light at the end of the tunnel,you find it hard to believe until you can see it for yourself plus we all know how this illness can change to become a fight for your life.no matter how old your children are,you still worry how things will turn…[Read more]

Hi

I can only tell you about my hubby,admitted with AKF,but kidney function improved,after a few blips,pneumonia which left him with wholes in his lungs plus blood clots,resulting in injections for 8 months, finally,referred to Kings for SCT.

Had SCT,but a reduced dose of chemo,enough to do the job,it worked SCT successful .
He had 2…[Read more]

Hi Tina & Etta,

I hope you both enjoy a long and trouble free remission. It is so good to see/hear good news on the board… keep in touch now and again to let us know how you are getting on. 🙂

Regards and best wishes

Dai.