Hi Megan. I have not posted on this site for a while (which I feel bad about as it is so supportive). I have been reading your daily diary regarding Phil's SCT. I had mine in Barts in sept 2011. I was put in an isolation room after a few days, only because there were so many men that they could not have men and women together on the transplant…[Read more]

Hi Keith,

I was in the Day-Case Unit yesterday for bloods etc and signed up for the Bendamustine… which I will start on Monday. Consult at 10.10 then a short wait until 11.30 for my Bendamustine.:-)

My treatment is slightly different to yours. Bendamustine on Days 1 & 8 with daily Thalidomide every evening throughout treatment and 40mg…[Read more]

Hi Vickie and Colin

Sorry to hear about the unplanned visit, but us MM ers are or will get used to the unexpected :-S
Get well Colin and stay well.

Tom Onwards and Upwards xx

Hi Keith

Well I hope next year is good for you and all of us next year 😀 am sure its no too much to ask is it??:-S
Good luck and hope the bloods help you sooner rather than later.

Tom "Onwards and Upwards" x

Hi Megan

Yes am sure Phil will be Jel when he knows about my white board with results posted every afternoon 😀
It looks like you might not have a Transplant Ward ? if Phil is kept in same place before he leaves you will have to have a walk to see if the ward exsists Ha ha.

But the haematology ward at our Local (Scunthorpe General) was…[Read more]

Hi Mary

Just thought I would ask how you are? hope you are doing ok

Love Tom xxx

Hi Megan
I hope your first day back at work went well? and they let you get a few bo bo's sneaked in during your shift ha ha.
As for the blood results at Castle hill where I had mine done blood results were writen on a board in my room every day and the nusre talked me through them and that was great 😀 I was told everything all the way…[Read more]

Hi Megan
Phils doing great it sounds better than mine 😀
Keep up the good work and Megan dont forget yourself I hope you are getting plenty of rest and sleep.

love Tom "Onwards and Upwards" xxx

Hi Dai

Well I am pleased Christmas came and went and didn't leave you with anything nasty 😀

I hope young Alfie is soon over his grown up Flu.
Good Luck on the next round and lets pray that the side effects are short and Kind.

Tom "Onwards and Upwards" x

Hi All,

Xmas came and went quietly… just me and Janet due to Flu Bugs, colds and sore throats spread evenly amongst all the immediate family… the most devastating with young Alfie (6) going down with his first grown up flu… which stopped us spending Xmas day with the family. 😛

At the Day-Case this afternoon… bloods checked and…[Read more]

Hi Gill

I am in NZ,one daughter in Turk and Caicos island,Ruth lost Matty is this Christmas is hard for all are family but we might not be allot get her,but Matty is never far away,so no matter were you spend Christmas,there will always be that feeling of absence .

Gill you have your grandchildren to keep you going,so promise yourself,you…[Read more]

Dear Gill

My heart goes out to you at this sad time and with that I am sending the biggest and tightest Cyber Hug I have ever sent (HUG;;;;;;;;;;;;HUG)

I Hope that has helped you a little bit, I honestley cant say I know how you feel because I dont and if I am unfortunate to find out then I hope I also have the great folk on here to give me…[Read more]

Hi jean

Symptoms are palpertations,but have to be very low,drugs are awful to take,so stuff him with bananas plus apricots,make sure he eats at least two a day,that a potassium aby way.if he starts to feel unwell it's a bit like starting a heart attack,it is important that it is corrected,why not go and collect physcription.

Have a good…[Read more]

And I Dai

Have a great day I know you wont/cant have what you want today and thats A Tea with the Family due to Fections 🙁 but you will have next year and do what I do get two birth dates (good enough for her Maj good enough for me 😎 )

Hope you have a good time

Love from us two Lappins xxxx

Hi Keith
Sorry to hear bout your counts :-|, I hope they and you get well for Santa as am sure you know he is on his way ready or not he he.

Dai shame your Birthday tea is put on hold ( another on its way next year ) have a great birthday Dai, am sure that guitar will get a good airing,enjoy.

Tom " onwards and upwards "

Hi Steve
A warm welcome to the site.
Am sorry I can't help re kidneys but I see you have a reply that has helped.
Good luck on your road to remission .

Tom " onwards and upwards "

Well done Andy great amount of money.

Tom x

Hi Megan and Phil
Well done on your new pad, am sure you will love it,it's lonely but you can snore as much as you want.

Talking of that you must now be near the " I don't want visitors" so don't take it too hard Megan when Phil is asleep through your visits lol.

Stay well you two it's as you say a waiting game.

Love Tom " onwards and…[Read more]

Hi Keith,

One of the factors in taking me off Revlimid was a Platelet reading of 90, My Platelets had dropped over 4 months from 150 to 120 to 100 to 90… and their concern was that if the Platelets kept dropping they might not be able to get them back under control! Looking at your readings their reasoning seems a tad dubious.:-/

While…[Read more]

Wow David that is looking great, but am sure we have no rush to fill it he he, but it looks great I just might send you my dimensions for one for me ha ha.

Stay well and store coal in coffin for many a year.

Tom " onwards and upwards " x