Hi Emma and Mum

Well I bet your all pleased that a plan has been hatched and that your Mum is Happy with it 😀

Its Going to be a hard slog for you to go and visit at Hospital so Emma you take care of your self while your Mum is in hospital and getting constant help sit back and breath 😎

Just Make sure your Mum does not get too comfy…[Read more]

Thats Great News Michelle

Another Onwards and Upwards 😀 we are soon gonna need a bigger room 😀
Long may it continue.

Love Tom "Onwards and Upwards" xx

Great news Dia

lets hope this is the one everything crossed keep well and stay strong
BIG BIG (((HUG)))
lOVE jO XX;-)

Hi Charlie,

I had my only PE following extensive radiotherapy a month or so after being diagnosed with Secondary Bone Cancer – Primary Unknown (it took another year and a move from Pembrokeshire to Nottingham before I was properly diagnosed – long story).

My frontline treatment was CDT (Cyclophosphamide/Dexamethasone/Thalidomide) – so…[Read more]

Hey Emma am sending ciber hugs for you and your Mum I hope they will give you some comfort during this difficult time, I hope Monday works out good for you both and will sit and say "Gosh why did I worry about that"
so big big ((((((Cyber Hugs))))) for you both

Love Tom "Onwards and Upwards" ((((HUGS)))) xxxx

Hi Ann and Pete

Well I had two a day of the injections and the nurse bless her used the same needle left needle in and just changed the filler 😀
Side effects? pain in ribs and back for me for about two/three days and as the saying goes the more pain the better 😎

Hair well I lost mine shaved the head, lost all body hair cept eye lashes…[Read more]

Hello Vicki

I am sorry i cannot be me help but my thoughts are with you never give up stay strong
Regards Jo x

Hi Scott

glad you are doing ok on the Bendamustine as we are both in trouble with our kidneys i wonderd how yours are reacting to this treatment because it might be for me down the line
keep well
Love Jo xxx

Hi Jean

Well I have been known to watch Footy at the Club we drink in 🙂
I got three £5 notes for friends of ours that had George Best on limited edtions from Ireland a few years ago, so I do a fair bit re football memorabilia Ha ha not bad for a man that dunt do footy Ha ha

Off side rule :::: When a player is nearer the goal before the…[Read more]

Hi Tom

Well I had my transplant in December 09 I hhad Zometa infusion every four weeks in Scunthorpe General and that lasted 2 years.

I am now Drug free and in remission would i want to go on a trial?? if I am in remission I see no reason to take more drugs that would possibly give me side effects.

I was well and truly pleased when I came…[Read more]

Hi Jean and Frank

Well football :-/ am sure some of the men are crazy 😀 never liked it never understood it BUT two out of our three Sons are pretty good in the local teams and are well fought after at the start of the season to go onto other teams ??????? :-S
And tell Frank I have a Footy shirt that was Mark Wilson's (played for Man U)…[Read more]

Hi Sarah and Henry

Well one of the ways to go is Onwards and Upwards 😀 and we also have Vasbyte and the famous Whatever it takes 😀 and the oh lets get on with it saying 😎

I hope you dont have to take on extra work to get what should be given as a matter of course (dont do mucky chimneys lol)
And a well done to your Daughter on her…[Read more]

Hi Liz and Kev
Yep its Cold here these last few days but as for the hair I have plenty of hat/caps to keep the Bald pate warm Lol

Hi Mavis
Many Thanks for that and happy and cheeful is best for me i dont do Sad am pleased to say 😀

Hi Phil Jan and Sam 😀

Thanks for that and it is Great News and I have been told the next 12 years…[Read more]

Hi Emma and Mum

Am so sorry your Mum has had a fall and I hope its soon sorted.
Your Mum is a fighter as I recall when she found out about the MM she said "Onwards and Upwards" and that Emma speaks volumes about your Mum's strenth.

I do hope the consultant ask's your Mum what she wants and just lets you sit and listen because it is your Mum…[Read more]

Hi jean,

I have been following the thread and one point in particular… the untimely and shocking death of our good friend Paul. 🙁

Paul's death was truly shocking … he was young, fit and seemingly doing very well in his recovery following his SCT. Because of his relative youth and fitness perhaps we thought him invulnerable to…[Read more]

Hi Gill

And for that I am gratfull, yes am gratfull you mad it to the First talok at the Harris, and you are correct Stephen passing has not and am sure will not force you to move on as we all do things at OUR pace and not to fit in with this that or them.

I hope you go back and talk its better to talk to some one you dont know rather than…[Read more]

Hi Jean and Frank

Its a shame a lot of the Dr's and Consultant tell us how it is is if we have done all the study's he/she has done for the last 10 years or more :-S But hey ho am sure its what we have got to get used to (but mine is a slow talker and stops if he sees am confused Bless)

Hey I aint a Footie thingie?? what do they call them…[Read more]

Hi Dai

I hope they get back to you soon to let you know its been passed and can start it of soon (am the sooner the better type of guy)
As for the Thalidomide I was on Four Tabs a day (8pm) with my CTD. still got dodgy toes though Lol but if thats all I get then am Happy (ish)

Good Luck Dai

Tom "Onwards and Upwards"

hello Tom
i am sorry you have had to join us but you will find much help and advice here I havnt had any of these treatments or a sct I had CDT with 3yr and 6month remission have just started on velcade i chose not to have an SCT as my kidneys were very damaged and i didnt want to finish them off completely with the heavy chemo needed
Stay well jo:-)