Hi Susie

Sorry in my late reply and am sorry I cant help as so far i have a little bit of back pain but its (or so am told) arthritis ???   am sure your bloods will tell your Consultant if the Myeloma has kicked in and my advice would be to talk to him or his secretary and ask for more bloods to be taken and let them have a look.

Good Luck and…[Read more]

Hi Graham

Sorry for the delay in my reply, but a warm welcome.

I am age 58 now and had my treatment CDT in feb 2009 leading up to my SCT in December 2009 was in remission and drug free for four years,

So what you are going through is a doable but you will have to listen to your body and when it tells you to rest rest its the only way.

My…[Read more]

Hi Keith

Well done you are running nearly 🙂 as for the weight loss mine was a fair lot but my Dr (GP) would have told me that should be my normal weight ha ha.

as for hunger am on it with the Dexam afraid but al cope with it and start to cut down. keep on going like you are Keith

Tom Onwards and Upwards

Hi

I would agree with Rebecca,I think it is very important to know at least the basics in terms of bloods and results of test,so this has been my job as a carer,but saying that I do not always tell Slim the whole facts unless he ask me.

As time goes on other factors come in to play,that may effect your body,in Slims case it was a blocked artery…[Read more]

Thanks izzie.

yes I hope your new drugs help ease your pain.

Helen I am a granddad to six and our home has got toys from one end to the other these iccle toes are used to standing on lord knows what and lord knows how sharp it is, haha

love from iccke ole twinkle toes he he

Tom onwards and upwards x

Morning Rachel

sorry to hear about your Brother, and I wish him luck in the road to remission.

i was diagnosed in 2009, had CTD leading up to the SCT in dec 2009. That gave me four years remission and drug free.

my myeloma has returned and am now on Velcade and Dex, just started my fourth cycle on it and to be fair it’s treated me pretty good,…[Read more]

Stanley

Your More than welcome my Friend and to be fair helping others does help me so am sure i am being a bit selfish ha ha.

your getting on good with  your Bosses thats a good sign it makes the treatment bearable if you have one less worry

Tom Onwards and Upwards

Hi Izzie

Good Luck with the pencil in SCT but the sooner the ink is on the better lol,

I had a bit of PN  in 2009 whilst on CTD but not too much that it bothered me to be fair, just near got rid of it when the darned MM came back (was told December 5th) now on Velcade once per week subcutaneous and my iccle Dex, can just feel a slight change i…[Read more]

Hi Maureen and Ian

As if Lol, we had a great time in Chester its a great place, am sure we didn’t rest as much as we would have done abroad and it was nearly as expensive.

We would go back to Chester as we both loved it

Hope you two are doing OK

Love Tom Onwards and upwards xxx

Hi Stanley

Good Luck in your treatment, I was on CDT in 2009 prior to SCT same year.

I was four years clear and drug free after my sct  but as i knew it would come back it has, now on Velcade forth block first session go every Monday for it.

Back to the CDT I had to go on sick half way through my Third block and was off work for one year, that…[Read more]

Hi Keith

Sorry you have been unwell Keith, I went through that when I had mine in 2009, even post SCT i was near bedridden for about a month, the young bride used to make me a pack up and flask for me when she went to work (in case i wanted to eat ) it took its time Keith to be honest but one morning I just woke up and felt OK and i mean OK just…[Read more]

Hi Poppy

Fiona is right,take the time now,as time goes on your gran will not be able to enjoy your company.
People choose there own time to die,so no one can give you a time limit.
As long as your gran is comfortable and not in distress or pain,it will not matter if you are on holiday or not.
It’s a sad fact of life that many older people are not…[Read more]

Honest I will look at the link to see why my pistol get half left x

big hugs Jo xx

Hi Jo

yes am sorry about that

tom
how dare you party with out me How is the velcade treating you or is it those pesky steroids have they given you a date for the SCT is is still wait and see love to Elaine
Big hugs jo xx

Hello Andy EVE and david

my every sympathy to you all Andy you hospital sounds on top of things thank goodness cannot say the same of yours Eve and David its a big worry to me what sort of care I will get if I need the hospital again it was pretty good last time but who knows who you will
get another time it seems a bit of a lottery get well…[Read more]

Hi eaglesham

sorry to hear about your dizzy spells yes I had them when I had CDT in 2009, and to be fair I had to go on sick leave halfway through my third cycle, I was then off for a full year that took me through my SCT and recovery of that.

it put me into remission for four years so I feel it was worth it that so I am doing it again but this…[Read more]

Hi Ali

As Helen says ,it’s good that life has been normal for sometime and the Myeloma locked away!!

They usually pick up the Myeloma in the bloods,so the cat scan could be old damage,did mum have damage in the same area last time!!
If it is a new Plasmacytoma it can be dealt with on Chemo,Slims old damage and new damage showed on a MRI Scan,so…[Read more]

Hi Andy

We have been having whoops!!!!,so I thought I would tell you about it! So you have some idea about Whoops,s!! Lol

As you know Slim was in hospital discharged yesterday at 1 pm, home tired and looking forward to bed!! I was reading his discharge letter,because I had asked early about blood results,only to find his HB read 75,eventually I…[Read more]

Hi Andy

Yes I am very tired,you would think with Slim being in hospital,that I would have some peace of mind???.
Any way he is coming home today,and will feel far more comfortable with that.

He has to go into A&E,you go through the whole routine,3 hours on A&E moved to back room,no beds,he was moved to a ward eventually, not specialised,they…[Read more]