hello Sarah
I had a small dose of thalidomide 50mgs for a year after was ok with that then 2years 6months free from myeloma drugs had to take some tablets for the kidneys but nothing else hope this helps
Love Jo x

Hi David I missed the photo first time round :-0 and Thanks for letting me know Liz by your post, great photo it looks great in that 😎

xxx

Hi Vicki and Colin

am gonna whisper this so as Colin cant hear it , welcome home Colin hope your home for a long time, take care and stay well

Tom "Onwards and Upwards" xx

Hi Ann and Pete

Looks like it has been answered, but just let me say to Vicki and Colin, My line was a "Femoral Line" and those dangly bits I had down near my testies :-0 and that took some getting used to Lol, but so as not to worry you Ann and Pete its all well well worth it I sit here of a Sunday Morning in remission and Drug free 8-)…[Read more]

Hi Vicki and Colin

Well I did Goofle it Lol (I had ti LOL0 and it seems to be the same thing I get 🙁 just had a Ultrasound on right shoulder/arm last week.
Had this discomfort/pain for nearly a year now?? Xray showed up nothing lets see what Scan throws up Eh.

I hope the roids work and he is not having infections one after the other,…[Read more]

Well done to you both, Sounds like you are oing to have a great motn with party's.

Enjoy

Love to you Both
Tom and Elaine xxx

Hi David,

It sounds like you are having the greatest of times… well deserved after the ups and downs of this year… and I am so very glad that these great times are being shared with your family. 😀 🙂

The photo is a wonderful example of camaraderie… joy, togetherness and intimacy… perfect. 😎

Enjoy the rest of your stay and…[Read more]

Hi Tina,

Perhaps it's not quite rooftops time but you can shout from an upstairs window… Unless you live in a bungalow of course.:-D

You will get better much more quickly now you are getting an appetite.8-)

Dai.

Hi Andy,

I was given potassium drink tablets and they made me nauseous… and very little makes me nauseous… so they switched to ordinary tablets… and while vile at least I kept them down. Luckily my levels were back up to normal in five days.

I agree with the banana substitute… We have one with our breakfast and one for eleven…[Read more]

Morning Andy

Well you are still up early so I bet no drink last nite Lol.
Am well pleased it seems to be doing good after all your bits and bobs that has been shoved into you.

Dont get too many Nanna's today cos they dont last as long as they used to do :-S

All the best for Monday 😎

Tom "Onwards and Upwards" x

Hi Andy

Just a quick one,potassium,if you eat at least 2 banana,s a day or anything that has lots of potassium in,it will save you taking those horrible tablets,Slim said they played havoc with his stomach,when in ITU he had in through line,hope this helps.
Good luck with everything.Love Eve

Good on you Peggy and I for one hope you get it sooner so you are out for xmas though am sure its going to be wasted I missed xmas and new year in 2009 🙁 but it was well worth it 😎

Keep strong and hope you have no hold ups 🙂

Love Tom "Onwards and Upwards" xxx

Hi Karen

Its a shame I never done a "Blog" or kept notes? as am sure it would help reading what I can recall going through during my 18 month/two years you would be running into the hospital to get it started 😎

We all go through it in differant ways and you just might beat my 16 days 🙂

Good Luck

Love Tom "Onwards and Upwards"…

Hi Vicki and Colin

Am pleased the Hugs were good for you both, its not a lot but its good enough to cross the distance we have between us all 😀

I hope all went well today with whoever you ended up seeing and are soon on the way back home Arms sorted or at least an answer to Why.

Love and Hugs to you Both
Tom "Onwards and Upwards"…

Well Done Andy and Gang, and a well done on the drink front am with Ali i think you would make a Rock Star drink and drugs and then sleep for hours Ha ha.
Stay well My Friend and drink plenty 😎

Tom "Onwards and Upwards"

Hi Tina,

I have heard of the Picc Line before… I looked it up and it really does seem a simple yet effective long term procedure, especially for those who have the devil of a job giving blood or finding a place for Cannula's.:-(

But when I asked at our excellent Day-Case Unit I was told 'We don't do them here'. When I asked why I was…[Read more]

HI Kez,

I am addressing this to you but it is a general statement meant for all those in a similar position to you8-)

[i][b]It is entirely your choice to feel down and utterly depressed and to seek out a dark place for your expression of those feelings… your choice entirely and nothing to do with the rest of [/i]us.[/b]

But remember…[Read more]

Wishing you the very best of luck with the Bendamustine Keith. 🙂

I shall be keeping a close eye on events and all of your reports. I hope that you settle into a good relationship with the drug and that your levels come down as your neuters go up.8-)

You deserve a time of respite and some kind of normality and the is no reason to think…[Read more]

Hi Sarah and Mum

Well I also support your Mum in the decision not to have a SCT I had one but its not for everyone, I wish your Mum a good responce to the treatment she is given and with little sde effects.

Give your Mum my best and tell her i wish her well in the road to recovery, its not over just because she is not having a SCT, stay…[Read more]

Hi Karen

Sorry to hear you are a bit down 🙁 and am sure it will get better as time nips along I have neen in your position and after a few years and many a black day I am now "Spot On" stick with it Girl its going to be worth it 😎

I dont have your request on Face Book ? you will know its me my photo is of me in red dickie bow 😎 one…[Read more]