hi Dia
thanks for noticeing me I had 3years 6months remission from CDT so i didnt do too badly my PP were only 9 they usually dont start treatment until you get to 30 but i was creating heavy light chains again which destroyed my kidneys in the first place so they started early the regime is not to bad
20mgs of dex and 200mgs of cyclo day one…[Read more]

Hi Debbie and Les

And I dont know your Mum and dad but I wish I was going with them also Lol.
A m sure your Dad (Les) will be lucky with his treatment and I for one hope the road to remission is a smooth one.

Tom "Onwards and Upwards" xx

Hi Lizzy and mom

Its not a problem and am pleased to read Mum is getting better today and Hope it gets better and last longer 🙂

Love Tom "Onwards and Upwards" xx

Hi Keith

I have strong gums and teeth 😀 but i was told during treatment to use a soft brush, and i always use mouth wash every time i go to the loo its hand wash and mouth wash, I dont floss that often and my dentist tells me to but :-S

if in doubt phone hospital 😀

Tom "Onwards and Upwards"

Hi Keith,

I have always had rather sensitive gums and have always used the softest bristles available.:-P

I too have had bleeding gums a few times in the past two years or so… but I don't recall if I was on treatment at the time… probably rather than possibly. An extra flurry of mouthwash regimes has cured it every time so I didn't…[Read more]

Hi Kez & Mel,

That sort of pain is both excruciating and very wearing… I know because I had similar pain accompanied by nasty spasms where I felt I could tear phone books in two! But the pain can and will be sorted… by short term high pain relief and a continuation of the lowering of Mel's PP's. 🙂

The pain apart, everything else…[Read more]

Hi Sue,

Thank you.:-)

We can only hope that Michael will respond to the AB's enough to get him home. I have been there enough times to know that the medics can usually find something that will work… and although Michael's position is substantially different these modern AI's are incredibly good.8-)

Every time that I have been in I…[Read more]

Hi Eva,

Thank you for your kind and supportive words.:-)

I am both appreciative and enlightened by your post… here is my position as I understand it.

I am not neutropenic as yet (Neutrofils 1.6 – the lowest in a while with an average of 2.0). I have been concerned by my low HGB (average over the past 4 months about 8.8… but I am…[Read more]

Hi Lizzy

A Warm Welcome to the site to you an your Mum.

My Run was straight foreward so Cant add nor help you at this time but am sure some one will be along that is on this treatment and give the advice you need.

What Hospital is your Mum getting treated as some on here might be able to help and advize.

Tom "Onwards and upwards" xx

Hi Chris and Colin

Doing great Chris 😀 and Colin you will be the same soon My Friend, dont rush it as we all differ in the getting home Time mine was on day 16 and I have been beat and i have beat others so as you all see we differ in the Home run.

Stay Strong you all

Tom "Onwards and Upwards" xx

Hi Debbie
A warm welcome to you and your dad and sorry am late with the reply, and am sure it has been answered.
But Get that holiday in and dont wait till after or during treatment as I didn't know how I was going to feel the day after let alone four months away :-/ but the Uk is fine as you wont need Insurance as such?

As for Driving I…[Read more]

Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve

Hi Mavis
I am so pleased for you,lets hope you mobility gets better as you get stronger.Love Eve

Hi Debbie

No one says you cannot drive,to me it just seems reasonably not to drive whilst taking heavy drugs,your mums treatment might only go 4 to 6 cycles,so no reason why she cannot drive the rest of the time.
As for insurance you are supposed to inform them of any changers:-/ but if you cancel your insurance and after a year take it up…[Read more]

Hi Sue,

It's 1:30am and I came on board for no reason and every reason. Sometimes I just want to stay away and concentrate on my own condition and my own problems… I have enough to be going on with that's for sure.
But then again I also realise that I have made my commitment to this board, in good times and bad, to share, support, ask for…[Read more]

Hi Sue and Michael

Sorry to hear its a Hospital stay for Michael but am pleased that when he is home a plan will be put in place for Michael and yourself.

Please mdont worry about what you can and cant do that will all wait and do what you are doing now "One Day At A Time" stay well Sue

Love and Huhs to you all

Tom xxx

Hi Vicki and Colin

Your doing Good Colin thats the way it rolls My Friend stick with it and slowley it will get better but it will be slow for you and Vicki.

Vicki am sure Elaine (my young bride) walked out of and into my room many a time during treatment with that heavy heart al ask ang on ??

Am Back yes she said she felt and did the…[Read more]

Hi Pat

had my second dose today app at 1 0'clock got out of the hospital at 4.30!!
my dex is 20mgs two days running and 200mgs of cyclo on the first day having my treatment sub Q only takes a minute to get the injection I wore my very bright pink jumper today very loud but fun:-P having a colour tomorrow hope my hair wont fall out:-(
Love Jo