MeikeWhite

  • tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 10 months ago

    Morning Chris
    Hope those stems flow in nice and easy and are kind to you during the grafting and growing, hope ur counts shoot up fast.

    Tom "Onwards and Upwards" oh my SCT seems years annd years ago 😎

  • eve replied to the topic Staging??? in the forum Newcomers 12 years, 10 months ago

    Hi Kerry

    There are books you can get to tell you all about MM if you ask Ellen the nurse I am sure she will send you some,plus what ever hospital,Melvin goes to should have given you some.

    I asked and was told they do not do staging any more,which was completely different from what the books said,when we went to Kings in London,I was told…[Read more]

  • Hi Kerry

    I have just found your original posting,full of so much detail,it does explain why you feel so frustrated and angry,I can only say I am sorry I missed it completely,like so many others.

    After reading this,I think you should sit down with your consultant,and ask a few questions,the compression of the spine is not good,I do not know…[Read more]

  • tom replied to the topic Low Blood Counts in the forum Treatment 12 years, 10 months ago

    Ur welcome Keith 😀
    I am pleased ur Doc is pleased with you and is keeping an eye on ur Platelets 😎
    As you know I am spot on thanks
    You Keep getting fitter and soon all will be sorted for you.

    Tom "Onwards and Upwards" x

  • Hi Kerry

    Good Luck on that and I dont envy you doing it as am told its a lot of hard work that takes up any spare and unspare time that you have/dont have? i dont want to put you off by the way.

    But we have had a few on here that are and have done things for Myeloma Uk and its worked and will for those that are still being done be a great…[Read more]

  • Hi Sarah
    They will not use radiotherapy on your spine unless you have compression of the spine and cannot bear the pain,chemo will do the job just as well.

    Just concentrate on your tablet regime,it helps to do a board with the days and times you have to take them,as it is easy to forget what day you are on,some hospitals provide a chart worth…[Read more]

  • BADGER replied to the topic I feel so miserable! in the forum Newcomers 12 years, 10 months ago

    Kerry just let it out ot must be so hard for you to see Melvin suffer so much and the children must be suffering to not knowing what will happen to their belooved dad you sound a strong person so i am sure you will get through this
    Love AND A (((HUG))
    jO

  • Hi Andy,

    Your bloods look quite good except for your Nuetrofils… got to get them up sharpish.:-)

    HGB 10.4 is a luxury to me… I normally have to settle for 8.4 to 10.0.:-| But my Plates are usually around the 140 mark, so no trouble from them.

    I would love to have a go at an allo… risks allowed for and accepted… but I doubt that…[Read more]

  • eve replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 10 months ago

    Hi Chris

    All sounds good,ask your wife to bring your favourite mug in,it helps with the drinking,rather than have hospital mugs.

    It all takes a few days to kick in,do not worry,nurses have seen it all before,you should be able to have a walk round when it is quiet.You will not see them much as they keep away only do what is needed,because of…[Read more]

  • eve replied to the topic I feel so miserable! in the forum Newcomers 12 years, 10 months ago

    Hi Kerry

    I think Tom has summed it up,you are just feeling what we have all felt at one time or another,you will work your way through this,but find some space just for yourself,instead of being a task to walk the dog,make it a pleasure,your own space.
    The only time you have to worry is when you are bawling at strangers,or crying in front of…[Read more]

  • tom replied to the topic Recently diagnosed in the forum Newcomers 12 years, 10 months ago

    Hi Mike

    No problem re the reply time as and when thats what this group is all about 🙂

    Yes My SCT went great (little uphill) and well worth it, would I do it again?? Too True I would now doing good and drug free, you my friend will be the same.

    Good Luck

    Tom "Onwards and Upwards"

  • tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 10 months ago

    Hi Chris

    Good Luck My Friend and hope its a smooth one.
    Keep well and healthy

    Tom "Onwards and Upwards"

  • tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 10 months ago

    Hi Vicki and Colin

    And a Lovely Looking Couple if you dont mind me sauing 😀
    Am sure you will cope with the flurry lord you have been doing it for long enough now He he. I hope its a printing error but ad give them a ring to make sure its not this thursday I would hate you to miss the day after all this time, I used to love Krypton Factor so…[Read more]

  • tom replied to the topic I feel so miserable! in the forum Newcomers 12 years, 10 months ago

    Hey Kerry That my Girl Is Normal, I am the one with MM so am being looked after by my lovely wife Elaine (the young bride) I was told in Jan 2009 that I had Myeloma, done the CTD then the SCT (all good now) BUT Prior to my MM Elaine (the young bride) was told in Jan 2008 (yep one year prior to mine to the day near as) that she had breast cancer…[Read more]

  • tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 10 months ago

    Wow are we seeing new photo's here 😀 all looking great.

    Keep strong you all looks like winter is dragging itself closer for us 🙁

    Love Tom "Onwards and Upwards" xxx

  • Hey Andy and Steph

    Well you are avin to give this a good fight M8 🙁 but I know you can both do it 😀

    Its an Uphill battle this MM when it runs smooth so I do feel for you two, I hope you get a good Match near home.
    Keep strong you two

    Tom "Onwards and Upwards" x

  • Hi Andy

    glad your readings are a bit better hopefully you will find a match so you will be able to go ahead with your SCT
    kEEP WELL
    Love Jo

  • tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 10 months ago

    Hi Mary and Charlie

    Am sure the Drug free will come to you two also mine was over two and a half years before I stopped taking them :-/ but well worth the journey 😀

    Good luck for tomorrow 😎

    Love Tom "Onwards and Upwards" xxxx and the odd glass of Vodka xxx;-)

  • Hi Vicky

    Your More than welcome and I hope you are all going through this as well as you can yes I still think about you all after your Loss.
    Take Care and be strong.

    Love Tom xxx

  • tom replied to the topic starting treatment in the forum Newcomers 12 years, 10 months ago

    Hi Polly

    Sorry you had to start treatment 🙁 but my advice would be "Take one Day at a time,rest when your body tells you, and more important use this site to ask complain and have that moan that I know you will have from time to time" but its well worth it.

    Keep well and stay strong

    Love Tom "Onwards and Upwards" xxx

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