Hi Helen
Well you must be feeling rotten ,I asked should Slim have all his childhood injections again,and was told,only needed them if he had donor cells,sounds if there might be a case for having boosters.

At least you now know what it is,which must give you some peace of mind,are you having to have a lot of time off work,this cannot go down…[Read more]

Hi Sarah Jane

It,s all a bit mind blowing at first,and naturally you are worried about your child.Try to take one day at a time,and get help to sought out your problems,the easiest way to do it,is contact the Mac Millan Nurses.

They can help you with all forms,get things in place now because you will not feel like doing it later,blue…[Read more]

Hi Charlie and Mary

Glad to hear Charlie,s at home,not a bad thing to start on Velcade. I think it it is about time they used it as a first line drug,rather than second.
We all know everyone is different with all the drugs ,so I can only speak for Slim,Velcade worked,less side effects plus felt much better in himself,unable to sleep much,but…[Read more]

Vicky,

I have followed your Dad's progress and grew concerned that they took him off all treatment until they got his infections under control… that didn't sound good from all that I have seen, heard and learned during my 4 years on this board.

I feel for you and all your family, especially your Mum. I am sure there will be others along…[Read more]

Hi Lorna,

I don't feel cheated, just immensely saddened that our time together has come to be a countdown through the various stages of a terminal disease, rather than a slow but happy decline through old age. But then again I know of so many people only a few years older than me (59 on Xmas Eve) who have suffered from heart disease or other…[Read more]

Trying times, and I should say a little hysteria is quite allowable given the circumstances.8-)

Still, the week will fly and the 'force them back in' expert will come and do his job and Colin will be on his way… finally.;-) The best of luck and it will be over and done with and he will be home in your capable care before you know it.:-D…[Read more]

One of my favourite poms… and the one read by Gill at Stephen's celebratory funeral:

[b]Warning[/b]

When I am an old woman I shall wear purple
With a red hat which doesn't go, and doesn't suit me.
And I shall spend my pension on brandy and summer gloves
And satin sandals, and say we've no money for butter.

I shall sit down on the…[Read more]

Hi Joanne,

Platelets play a major part in the fight against MM. Alarm bells ring when they reach the 30 or below mark and this is normally treated by a platelet transfusion (they look like a grey tapioca):-) .

When you next attend the consult ask for the hard copy of the blood tests (the consultant will have them on the computer).:-| You…[Read more]

Hi Michael
sorry to hear about Jo same name as me I had cdt when first daignosed in jan 2009 could not have SCT due to renal failure it actually worked for me I was in full remission until the beginning of this year my PP's are still very low but my light chains are rising so due to my damaged kidneys I will have to start Velcade sooner than most…[Read more]

Hey Kerry Happy Birthday Young Lady Hope you have a good one 🙂 xxx

Wow you two aint doing this the easy way are you??.

I bet your well peed off I hope the get them all back in nice and safe 🙂

Love Tom "Onwards and Upwards" xxx

Hi Michael and Jo

A warm welcome to the forum and am sure you didnt want to join 🙁 but you will find great people in here and will answer any Q you may have and you will have many, make yourself at home and dont worry about making a mistake it will all fall into place soon.

As for the Velcade am sure its not used as a "Front Line…[Read more]

Hi Kevin Am sure that will be a help for those that are due or just starting CTD and if i may add that I concur with that 😀 and for you and those like you comming up and due to a SCT I can tell you I had mine done in December 2009 and Like your and mine CTD the SCT is well worth it.

I am here nearing 3 years post Transplant and feel Great…[Read more]

Gosh you two Pat and Peter (must be something to do with the letter "P" but you two just might just might make me blush Ha ha

Love Young Tom "Onwards and Upwards" xxx

Hi Kerry and Melvin

Sorry but welcome, am sure you will probally know us all by now if you have read the posts for months 😀 and feel free to pop in and Vent all you want you and melvin have like us all here been dealt a rough deal but am sure you two will whip it into submission.

Good Luck Melvin on your road to remission

Tom "Onwards…[Read more]

Hello Kerry

So sorry to hear about melvin what a shock for you both most of us here are over 50 so I can imagine how heart breaking it is to be diagnose under 40 you must be wondering what next we here are all at different stages and we dont give up i know you will give Melvin strength to get through this
Good luck Jo

Hi Rachel,

I have just finished reading through some of Paul's posts – always honest, aways supportive, always looking at problems from a 'half-glass full' perspective.8-)

I laughed aloud at his first 'Dex' encounter where he went slightly ape when he couldn't find the Pears Soap in the bathroom. My 'Dex' moments tend towards the trivial…[Read more]

Hi Pat,

My experience was very similar to Sarah's… form at home, on to my GP and Badge in the post within a week. My renewal was a very similar process only this time we had to drop the form into a local council help point where they rubber stamped the form and the new badge arrived within 48 hours. Easy Peasy.:-D

You still have to pay…[Read more]