eve replied to the topic A Postcard from Venice in the forum Off topic 12 years, 10 months ago
Dear David
I think you have cracked it,something for everyone,just watch your back when throwing those balls,have a lovely anniversary,love Eve
eve replied to the topic Sad news in the forum Under 50s 12 years, 10 months ago
Dear Rachel
I am so sorry,Paul seemed to be doing so well,and if any one should have been able to get extra time,it should have been Paul,as he was one of the younger and fitter one,s on this forum,my thoughts are with you and his parents.
I lost my grandson with an infection all so unexpected,the shock and numbness,leaves you drained,I…[Read more]
tom replied to the topic Has anyone heard from Dai? in the forum General 12 years, 10 months ago
Hi All
Yep our Dai is going through the mill of Late I got these to inform me how he is doing 🙂
::::::::::Hello Tom, Dai is quite poorly at the moment he has some sort of stomach bug, but he also had DVT in his other leg and it has travelled to his stomach, they are considering surgery but allowed him home yesterday. Good news is his…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 10 months ago
Hi Mary
Am pleased Charlie is home and am sure he will stay at home for some time 😎
Its a roller coaster ride getting treatment for MM it has its ups and downs am afraid 🙁 but its as we say Doable 😎
Give my Best to Charlie and wish him well, tell Charlie mine also had its ups and downs but after this lenth of time I (and he will be…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 10 months ago
Hi Mary well it is an Uphill struggle 🙁 but it will be worth it am sure, they will find out why and sort that out so as you also say Onwards and Upwards, Stay strong and stay focused.
Good Luck on the road to remission.
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Hair in the forum General 12 years, 10 months ago
Hi Peter and all
I lost all Hair cept my eye lashes but I gould feel those falling out as the time went, but me I was balder than a Coot (if a coot is bald??)
so no more nasty Nose hair nor ear hair that needed trimming lol
Nettie I trid the The L'Oreal oil and it was great folk could see the shine in the dark Lol.
so for all of us that…[Read more]
tom replied to the topic Zometa – is this available on NHS in the forum Treatment 12 years, 10 months ago
Hi Peter
Well I felt like I had Flu a few days after my Zometa aches and Pains you know Like flu, it soon passed then after a fair few month my veins fought the needle each month and used to play hard to get and when they did find one and blood was flowing it would Collapse and Nurse (bless) would have to have another dig in Lol.
Go ahead…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 10 months ago
Aww you two thats great news 😎 And just to let you know I had a few tears after reading your Bags are Full, am that happy for you both I cant smile wide enough, but i am gonna have a vodka for you two.
Love Tom "Onwards and upwards" xxxx8-)
tom replied to the topic My dad in the forum Newcomers 12 years, 10 months ago
Hi Louise
Hope its all sorted now and i wish your Dad Luck in the treatment that has been given, it will have its rough days but it will be well worth it
Tom "Onwards and Upwards" xxx
eve replied to the topic teeth and gums in the forum Newcomers 12 years, 10 months ago
Hi Kerry
Welcome to the site,14 years is a long time,so your mum is doing very well.
What little I know about Zometa is Slim having a tooth out,was not a problem just had to be 2 weeks clear of having Zometa,told only 1%| of people get osteonecrosis very rare,so nurse or computer your best bet.I do know as time goes by Zometa does not work…[Read more]
eve replied to the topic A Postcard from Venice in the forum Off topic 12 years, 10 months ago
Hi Helen
I was wondering were you were,good holiday shame about chest infection,i think there part and parcel of having a SCT,leaves your immune system so low,I think with winter coming on,I might just dose Slim with vitamins although he will moan about more tablets.
I enjoyed Venice when we went,but not to Slims taste hated the queues,went…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 10 months ago
Hey you all hope you dont mind me tagging in here to wish you all the best for the SCT xxxx
tom replied to the topic teeth and gums in the forum Newcomers 12 years, 10 months ago
Hi Kerry try this
http://www.myeloma.org.uk/patient-services/ask-the-nurse/
this should open up a page on here so you can ask the Nurse.
Hope it works
Love Tom xxx
tom replied to the topic teeth and gums in the forum Newcomers 12 years, 10 months ago
Your More than Welcome Kerry, and dont forget you can Phone the Nurse/ send an Email to them.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Sleeping so much! in the forum Side-effects 12 years, 10 months ago
Hey Jane
Am not sure if you are aware of this BUT this is the Rant room so Rant as often as you like its good for us 😎 and whats good for us is OK here 😀
I think I also was stage brought up but I just have too many teeth Lol, and have been told many a time I have eyes that sparkle, thats it Bull over for the moment.
Like Jean says if…[Read more]
tom replied to the topic teeth and gums in the forum Newcomers 12 years, 10 months ago
Hi Kerry
Sorry to hear about your Mum but may I say a well done to her and her team 14 years is great and am sure more to come.
As for the Zometa am not sure how long it stays in the system? but am sure I read in here that some one had it removed (cant recall who or when?)
Good Luck to your Mum and give her my regards, and hope all is…[Read more]
tom replied to the topic Recently diagnosed in the forum Newcomers 12 years, 10 months ago
Hi Mike
And the show must go on 😀
Good Luck on your treatment, I was told 2009 that I had MM, treatment was 5 courses of CDT then SCT in dec 09 now in remission and doing great, some times it was Uphill struggle but trust me well worth it all 😎
Oh and I am 57 years young 😎
Ask if you need to know owt.
Tom "Onwards and Upwards"
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 10 months ago
Hey Chris
Thats Good news 😀 it wont feel it for a bit but its well worth the odd bits that happen during your recovery, lets hope its as good as I can remember Mine being pretty good.
As for the Panic to get everything done before you go in trust me it will wait till you get out and better.
Fingers crossed for a fast recovery and home…[Read more]
tom replied to the topic Hair in the forum General 12 years, 10 months ago
Hi Peter
I just might google that later see if they need a Chrome Dome for testing Ha ha, Lord Knows about the Colour it might be as i have Ginger in me also ha ha.
Tom "Onwards and Upwards" and Giner he he
Great Pic BTW 😎
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 10 months ago
Hi Mary and Charlie
Please stay positive as I know from myself its the only way to be.
I hope its all soon sorted and soon on the road to remission
Lots of Love Tom "Onwards and Upwards" xxx