tom replied to the topic new to all this in the forum Newcomers 13 years, 11 months ago
Hi Les and Welcome to this Merry Band of folk ? yes we are merry most of the time 😉
Think Eve has coverd most of it so at the moment I will wish you all the best in your trip with MM
Tom "Onwards and Upwards"
tom replied to the topic Velcade and side effects in the forum General 13 years, 11 months ago
Hi Newbie
I cant add to this one as i haven't had Velcade, but wish your dad well in his road to remission.
Tom "Onwards and Upwards"
tom replied to the topic You Are My Bower in the forum Off topic 13 years, 11 months ago
aww thats Nice but Dai my Friend as we all know you are the ones with the words for the wright occasion 😎
tom replied to the topic Back in Hospital in the forum Side-effects 13 years, 11 months ago
Hi Keith
Well we are doing this the hard way 🙁 but I think its a Man thing?? we know its on its way but we/I sit and wait it out where we should be knocking on the Dr's Door at first sign of dodgy problems:-S
Am pleased you are better to leave Hospital they aint that good for ur health :-0 I was skin and bones when I first got MM but…[Read more]
eve replied to the topic Back in Hospital in the forum Side-effects 13 years, 11 months ago
Hi Keith
You have been through the wars,while Slim and I have been enjoying ourselves,correct that I enjoyed myself.
I am interested why some people like you and Slim loose so much weight with the Dex but other people put on weight,has anybody come up with a good answer.Slim now weighs 63 k,skin and bones no bum left,try as much as I can but…[Read more]
eve replied to the topic You Are My Bower in the forum Off topic 13 years, 11 months ago
Dai
That was lovely,I find a great inner peace in poems,not very good at lyrics,but do enjoy reading them.Love Eve
eve replied to the topic new to all this in the forum Newcomers 13 years, 11 months ago
Hi Les
Nice to hear from you and you have come to the right place,this lot on here will soon cheer you up.
My advice is take one day at a time,what seems awful at this moment,will not seem so bad in the future,but you are going to feel worse before you feel better.
First have you applied for a blue badge,or any money like attendance…[Read more]
eve replied to the topic never realised that the end would be like this in the forum End of Life and Grief 13 years, 11 months ago
Gill
There never will be enough time,life and death goes on,but when you are in your situation,you just want the world to stop you will cope with Stephens death,Be brave save those tears for after.
I thought you might like this.
If there is a tomorrow when we are not together
There is something you must always remember
You are braver than…[Read more]
eve replied to the topic ASPARTAME??? in the forum General 13 years, 11 months ago
Hi Jacqui
I would like to make a comment about sugar in general concerning MM.
I know Slim has never taken sweeteners but enjoys white sugar in his tea,which I consider is bad.
During his treatment he developed a taste for puddings after dinner,normally he would not dream of eating anything sweet,he would drink wine with all its sugar.Now he…[Read more]
DaiCro started the topic You Are My Bower. in the forum Off topic 13 years, 11 months ago
I wrote this for our wedding… and now I have to write something similar for my eldest daughters civil wedding to her wonderful partner Liz. I am giving Becky away but there are so many reservations imposed by the registry office, including handing over a copy for vetting and possible editing that I thought no 'way'… so Ill be reading it at…[Read more]
eve replied to the topic not sure what's round the corner in the forum Newcomers 13 years, 11 months ago
Hi,
My name is Eve I am a carer.Welcome to the site.
You ask questions,and expect answers with very little information for anyone to give an answer.
From what you are saying the person concerned had severe bone damage which in it,s self brings it,s own problems,as you have an aunt who had Myeloma and is still alive,she should be your first…[Read more]
DaiCro replied to the topic ASPARTAME??? in the forum General 13 years, 11 months ago
Hi Jaqui,
my story is try much akin to Helens re: diet etcetera. There was a sugar shortage back in the late seventies and many people switched to sweeteners which caused a massive demand and supply from companies. Many of them were terrible, with very bitter aftertastes but one or two, Canderel I recall as being amongst the best, produced…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 11 months ago
Hey Andy
Sorry its not Hot where you are the sun is out with a vengance here and I am off to the pub in half an hour or so, you and I will be having a well earned rest and a pint.
Tom "Onwards and upwards" 😎
tom replied to the topic Someone to talk to in the forum Newcomers 13 years, 11 months ago
Hi Peter
Am not sure about your level's am one of those that if the Dr is smiling then am Happy 😀 dunt work for most but works for me and my young bride 😎
Dont worry about how much you are costing the NHS am sure our Goverment dont worry about the ££££££££ they send to country's that dont need it nor want it?
Yep My Gaffers need that me…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 11 months ago
Hi Vicki and Colin
I did as you asked and crossed everything 😀 my legs were crossed that much they had a struggle to get me home from the Club last Nite:-S
Andy am pleased your having a great time sham about the rain though? you should have come to "Sunny" Scunny as its been pretty good here 😎 nearly burn me bald head Lol
You all…[Read more]
tom replied to the topic Spam/junk in the forum Off topic 13 years, 11 months ago
Hi you all, well well spotted that Jean you ought to play for Scunthorpe United Lol. yes some psts have had me think and for that reason I have left them for a bit 🙁 sad I know but I dont want to feed sicko's anywhere let alone on here.
Now we all know how/where to report it to well done the Tech folks x
DaiCro replied to the topic No really – this is good news in the forum Off topic 13 years, 11 months ago
Great news David,
This puts you and your situation in a much better light than a week or so ago.
I know that you will cope with whatever it takes to beat this… so 'Vasbyte' and the best of British.:-)
Dai.
DaiCro replied to the topic Paraprotein news in the forum General 13 years, 11 months ago
Hi Andy,
I hope you get some definite direction from your next visit to the Prof. You are young and fit so perhaps the Allo might be a good option for you… Either that or a decent remission/plateau from your frontline might see you in a much better light for an auto by the time MM starts bothering you.
In the meantime enjoy life and walks…[Read more]
DaiCro replied to the topic Spam/junk in the forum Off topic 13 years, 11 months ago
I hate to voice the possibility but I have had my suspicions about a couple of posts from concerned 'friends' or 'relatives' regarding the onset of MM but then we never hear from them again… I don't know why but something about the posts made me suspicious or a tad uncomfortable… I truly hope I'm wrong but there are some sad people out…[Read more]
tom replied to the topic Not Myeloma then – AL Amyloidosis instead. in the forum Newcomers 13 years, 11 months ago
Hi Pat
Your more than welcome and I hope all goes well today and things are soon sorted
Keep well
Tom "Onwards and Upwards" x