[MeikeParticipant]

Fantastic News Dai! Here is too a very long remission time!!

David was supposed to start his 6th cycle today but he has been admitted feeling under the weather. So they are waiting to see whats what and do a few tests and a scan.

Hope the last two cycles are being kind to you!!

Love
Meike

[MeikeParticipant]

Dearest Min,

I don't know what to say. Peter's passing has come as complete shock and so sudden. My heart goes out to you and your family! You are a remarkable woman who has been supporting her husband in the most loveable way. You are also incredible at advising, helping and supporting other members of the MM family. Please keep strong! And please stay on the forum!

Lots of Love
Meike and Family

[MeikeParticipant]

Hi All,

Sorry we have not been here in a while?things have been a tad busy. Thank you all for your kind and encouraging words! David has now completed his 4th cycle of Velcade and by the look of it will be doing an other 4 before preparing for SCT?

The last couple of weeks have been difficult for David. His pain levels in his back have increased dramatically and after having been referred to an Orthopaedic Surgeon was called into Hospital last Sunday to have surgery to some of his crushed vertebrae. He finally had his surgery on Friday and is slowly recovering from that. He is still in allot of pain but we are hoping that it is post Op rather than bone pain.

It is incredible how different MM effects each individual. No path is the same, but all are bumpy with large obstacles and deep valleys along the way!

David, I really like this new word- Vasbyte – I will be telling my David about you and your journey, I think he will take strength from that! I have to agree David is a delightful name! He also is a delightful person usually!! Full of life and fun.

Pam, I am so sorry for your sad loss! Dads are very special for their daughters no matter what age they are! I know my girls absolutely adore their daddy!

Take care!

Meike

[MeikeParticipant]

Hi Dai,

Thank you so much for your very encouraging reply!

David has started his 3rd cycle of Velcade on Friday and had a couple of good days on Dex, we even took a trip to our local B&Q yesterday for some manly shopping. He took great delight in using one of those electric scooters they have in store for people who are not so mobile?

Today is an other matter?lots of pain and coming off the dex does not help, he has developed a numbness above his wee belly pot tummy and his breathing is becoming difficult.

We are very blessed to have amazing friends who call in all the time. Some cook and bake for us which is such a help.

Christin and Mat build a path out of our front garden to make it easier for David to get to the car. They did such a great job on it?Daddy gave his usual advice and supervision throughout from his hospital bed! Yes, we did get a hospital bed which has made a huge difference to David being much more comfortable.

He has finally fallen asleep?lets hope he gets a few hours!!

Keep lecturing!!

Meike

[MeikeParticipant]

Hello everyone,

I'm Christin's mum.

To say the least this has been some roller coaster ride so far. The side effects of the steroids are not very pleasant but we can manage..just need to stay calm! Its the pain that David is in is very concerning and hard to watch someone you love being so uncomfortable! We are having an appointment on Tuesday with the pain doctor, so hopefully she can tweak and adapt the pain relief to make him more mobile.

Christin has been a God send in helping caring for her daddy! I am so proud of her.

Meike

[Author]

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