Myeloma Forum | JoannaDyson-Thomas | Activity https://forum.myeloma.org.uk/members/Menthonfan/activity/ Activity feed for JoannaDyson-Thomas. Mon, 06 Apr 2026 16:06:33 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 349af73c80c5bf08bddea49c4c2bb45d Menthonfan posted an update: Hello - well it has been a long journey but I have come […] https://forum.myeloma.org.uk/activity/p/36225/ Sun, 02 Nov 2014 17:22:46 +0000 Hello – well it has been a long journey but I have come through the long tunnel of treatment & SCT. For the first time in a very long time I feel really well & enjoying life! My consultant is recommending that I go on Velcade as my maintenance drug. I received Velcade + Cyclophosmide as drug therapy which was very effective getting my…[Read more]

]]> 0 342c79af18ab1da885db293dd196c5f8 JoannaDyson-Thomas started the topic Starting again. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-again Mon, 15 Apr 2013 14:46:00 +0100 Hello. Started treatment my CTD treatment 25th March which coincided with my being ill with a virus. Ended up in hospital for 1 week with heavy dose of antibiotics. The good news is that the thalidomide part of the treatment has already reduced my para-protein but have to wait a while to recover before I resume my CTD treatment.

Seeing my…[Read more]

]]> 03fe971a6640457d233fc7a20efd02bf JoannaDyson-Thomas replied to the topic Start of treatment journey in the forum Under 50s http://www.myeloma.org.uk/forums/topic/start-of-treatment-journey#post-107087 Tue, 02 Apr 2013 09:22:51 +0100 Hi and thank you for your message with very inspiring words. Started my CTD treatment and unfortunately really dipped after coming off the steroid dosage – very low blood pressure and generally feeling worse than ever (takes being ill to a new level).
Hopefully a blip and I'll have some tweaks with my drug plan. Weirdly I have very sore,…[Read more]

]]> 4655d791671da4a92315c7b3555ed36b JoannaDyson-Thomas replied to the topic Start of treatment journey in the forum Under 50s http://www.myeloma.org.uk/forums/topic/start-of-treatment-journey#post-107083 Mon, 25 Mar 2013 11:22:53 +0000 Thanks Alex and very grateful for your words. Just starting my CDT treatment today and working out what I'll be able to do physically (feeling pretty washed out today) and emotional.

Luckily I have had a good winter health wise but now feeling the physical changes due to myeloma. I know it won't be for ever with 5 months treatment then stem…[Read more]

]]> 955c3697fe67d71a506b726b10c3825a JoannaDyson-Thomas started the topic Start of treatment journey. in the forum Under 50s http://www.myeloma.org.uk/forums/topic/start-of-treatment-journey Sat, 23 Mar 2013 21:22:29 +0000 Hello. I'm a lady of 44 with a brilliant husband, gorgeous 11year old boy and beautiful 9 year girl. February 2013 told I have mm. Emotions have been random, from standing tall and strong to being emotional and sad. I am starting my treatment on Monday and here my journey starts. I yearn to be strong and determined but I'm not in that place…[Read more]

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