MicheleCook

  • Michele replied to the topic yet another relapse in the forum General 11 years, 7 months ago

    Hi Terry

    Only you know your own personal financial circumstances and whether you enjoy the job you're currently doing or not.

    All I can say is that if I could afford to give up a job I didn't enjoy, I would.
    The impression you give is that you don't enjoy the work you do and you'd rather be using your time up restoring your cars. Maybe…[Read more]

  • Hi Terry

    As long as you don't have an extraction, I was told that there's no problem with just a filling, but you must tell your dentist of any drugs you're on, particularly biphosphonates. (eg Zometa).

    I'm sure the most painful bit for you will be the cost!

    I hope you get it sorted quickly and easily.

    Michele.

  • Michele replied to the topic Red hot cheeks in the forum Side-effects 11 years, 7 months ago

    Hi Debs

    Just a thought, but could your cheeks be anything to do with your hormones?
    I sometimes get a hot face and I presume it's just a natural thing.
    Chemo. leap-frogged me past any sort of menopause, but I suppose our bodies still have a few side-effects to spring on us every now and again.

    Hope this helps. 🙂

  • Hello Dai

    It's strange that you should post this thread today.
    Just recently I've been pondering on the fact that as wonderful as this forum is, the actual MM PATIENTS tend to have their comments and messages lost amongst those posted by carers/family members who naturally only post thoughts from their points of view and at the end of the day…[Read more]

  • Well I for one don't blame you Dai. I'd have done the same, especially on such a rare sunny day. Infact I think I'd have gone at the 1.5 hour mark…

    I always think it's ironic, but life's literally too short for us with MM to waste time in any sort of waiting room!

    🙂

  • I know that feeling Tom! It's great news and will hopefully be repeated many many times.

    Felt like the first day of Spring today. First blob of frogspawn in the pond. Spent the afternoon out in the sunshine. It really did me more good than any pill!
    A bit different to last year when I was in the middle of SCT…..

    Michele x

  • Before I was diagnosed with MM it was rare for me to even take a paracetamol let alone anything else. I had and still have the idea in my head that if the body can fight something off on its own, let it do it!

    However, I'm not stupid and knew that I had no choice but to take all drugs prescribed to me when I was on CTD and during the…[Read more]

  • Michele replied to the topic Still feeling good in the forum General 11 years, 9 months ago

    Hi Janet

    It's so good to hear about how well you're doing. 6 years on and still doing well is excellent news.

    My stem cells are having their 1st Birthday Party on Sunday (10th) and I'm living a totally normal life again at the moment.

    MM is one of those weird diseases that has no set pattern for any two people, and this forum seems to…[Read more]

  • Michele replied to the topic Spam on the forum in the forum Off topic 11 years, 10 months ago

    Thanks for doing that Stuart.
    Is there any way a more secure firewall of some sort could be put in place to stop these scumbags registering?

  • Hi Grayham and welcome to the site.
    We don't mind having an Aussie join us.:-D
    I'm really glad you found Myeloma UK. It's a brilliant site and it definitely helps you to understand what's going on in the MM world.

    I was diagnosed in May 2011, had 6 months of CTD and then a SCT in February 2012. I recovered very well and am now living life to…[Read more]

  • Hi Lesley

    Yes, it's a terrible shock to be diagnosed with MM and frightening too. I hadn't got a clue about and had never heard of it before May 2011.
    It felt as though my future life had concertinered and I honestly thought I only had a couple of weeks to live. I was only 49 at the time too.

    Let me assure you that this is NOT the…[Read more]

  • Michele replied to the topic Cramp in the forum Side-effects 11 years, 10 months ago

    Hi David

    I had a really enjoyable Christmas and am looking forward to an active New Year. That started today when along with my husband (also a David) I started ripping wallpaper off in the hall. New year, new decor! 😎

    I had a bit of cramp at night a few months ago and was told by my nurse to drink some tonic water in the morning (for…[Read more]

  • Fortunately I didn't have any itchy rashes post SCT but did when I was on CDT and that was caused by a drug I was taking at the time.

    Was your husband given a new drug to take just before he was discharged? It could be an allergic reaction.

  • Hi Jean
    Sorry to hear that Frank's P & P levels have dropped. I don't know about phosphate but I know the potassium levels can be quickly boosted by bananas.

    Try to have a Merry Christmas.
    Michele xx

  • Hi Keith,
    Have you had any problems with your spleen? It's just that when my dad's platelets dropped down to 3 it was because he had an infection in his spleen. I think that's on your left side. :-/

    Hope you feel better over the Christmas break.
    🙂

  • A very Happy Christmas everyone and wishing you all a healthy, good quality of life New Year.
    Take Care and don't misbehave (too much) over the next few days!!
    😎

  • Great news Helen.
    Your posts are similar to mine (fortunately) more positive and upbeat. Please don't feel guilty about good news. I think it's important for us to tell of good news. As you say it balances out the not so good news and hopefully encourages those on the road behind us.

    Remember, we were the frightened, poorly ones once and have…[Read more]

  • Michele replied to the topic Zometa 'flu' in the forum Side-effects 11 years, 11 months ago

    I sometimes, but not always have a bit of a sniffly nose a few hours after my infusion and then a few aches 2-3 days later.
    It doesn't last long at all and is a very common side-effect.
    Shows it's working!
    🙂

  • Thanks for your comments.

    What I should have added was that it didn't take me until now (10 months) to feel my old self again. looking back I really started picking up back in May, just after my hair had started growing. So, 4 months really. 🙂

  • I don't usually start posts but thought my news would encourage others who are on the road behind me.
    I've been to see my specialist today and have been told that all my blood-counts are very good, the myeloma's inactive and the SCT was obviously a success. "M-spike" is still less than 1.
    I feel so happy and relieved!

    Now looking forward to…[Read more]

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