Well done Wendy.

I'm coming up to 7 months on 10th September.

It's great to feel well again isn't it?

Carry on celebrating!

Michele x

Hi Lyn

Your husband Pete is entering territory that I was in last December!

The only advice that I can give is; take each procedure a step at a time. The initial priming and run up to harvesting as one, harvesting as the second and the SCT as the third. 🙂

The day Pete goes in to have the chemo. infusion will no doubt be a long, boring,…[Read more]

Hi Gill

I have been receiving Zometa on the NHS since June 2011 and have been told that I'll continue having monthly infusions until it stops working.

My father was treated a few years ago as a private patient (PPP) and was told that once he started along that route he wouldn't be able to switch to the NHS.

It was a continuous battle for…[Read more]

Hello Amanda and Bob

Welcome. I'm so glad you found the MM UK forum. It's very friendly and very useful. No subject seems to be too much trouble for the folk on here to discuss.

I look forward to chatting to you as well.

Best Wishes
Michele

Nearly there then Pat.
You do seem to be having lots of tests done. No wonder you're a bit fed up!

But, look at it another way….they're being very thorough and at the end of the day if it helps them pinpoint what's wrong with you it can only be a good thing.

🙂

Hello Pat

I think I was very fortunate to have my MM diagnosis made very quickly owing to my brilliant doctor. I'd had 2 bloodtests done with a 5 week interval between the 2 looking for something else. When she saw the 2nd result (and a bence jones urine test that she'd ordered too) she immediately booked me in to see my specialist and 48 hours…[Read more]

Hi Sandra

The only thing I can remember with my teeth was that when I was on CDT, they seemed to "rattle" a bit and made little clicky noises!

I didn't lose any though fortunately. My dentist is fully aware of all I've had done and knows I'm having Zometa.
Tom's right, fillings etc. are OK, it's just extractions that are risky.

I'm…[Read more]

Hi Cathy

Unfortunatley the high dose of chemo. your husband was given nearly always has sickness as one of its unpleasant side-effects.

I was sick on and off for about 2 weeks. The SCT also made me feel as though a barrier had been placed between my mouth and my stomach and I totally lost my appetite for 4 days. Fortunately it came back…[Read more]

Hi Megan

If Phil's PP levels have more than halved in 2 cycles I'm sure they'll continue their downward slide.
My PP levels were 45.6 at the start and they dropped to 16, 7.5, 3.5, 1.5, then just showed a trace.

As you can see, there was a massive drop after cycle 1 and after that it appears to slow down, but when you think of the drops in…[Read more]

Hello Megan

I was only 49 when I was diagnosed with MM in May 2011, but it seems that no age is too young anymore. 🙁

I'm glad you found the brilliant site and have found all the forum chat so useful.
Come on anytime to join in with good or bad news. I personally feel that to be able to share experiences and help others also helps…[Read more]

Hi Scott and welcome.

I just wondered what makes you think you may have MM? Have you had symptoms that have led to your doctor taking blood/urine tests to look for the signs?

I really wouldn't worry about something that may never happen and even if MM is diagnosed, please don't be scared. There's so much that can be done to treat MM even…[Read more]

Dai

I couldn't believe I was giving away the chocs. myself! I gave them to my brother though so they went to a good home.

Don't worry, the "sweet" tastebuds soon returned along with my waistline!!! 😉

Will it happen again? Who knows……..

Hi Tina

I don't remember having any problem with my appetite straight after CDT but I did have days during the dex. bits when I only had small portions. After the dex days I ate anything in sight!

Also, I had major appetite loss after my stem cell harvest and during and after my STC.

My taste buds definitely changed too. I preferred…[Read more]

Hello Jacquie

All of us MM'ers fully understand Geoff's (and your) shock. It's as if an express train has mowed you down isn't it?
All I can say is, once you've unscrambled all those illogical, confused thoughts and have come to terms with what MM is and the incredible amount of treatment that's available for it, you'll be much calmer and will…[Read more]

Yes, I know what you mean about the mix-up with Myeloma and Melanoma.
If I do tell people what I have I always say Myeloma first, then when I get the blank look I usually say "bone marrow cancer". The trouble is I then get the shocked look swiftly followed by one of pity. (I hate that!)

😐

Hello Tina

Good idea having a little break. Whereabouts in Dorset are you going? I'm just outside Poole.

Have a lovely relaxing time.

michele x

So sorry to hear that David. What a bummer. 🙁

Look after yourself and try to keep chirpy.

Michele x

Hello and welcome.

I was diagnosed in May 2011 when I was 49 and like your husbands, my MM was picked up via a bloodtest for what I thought was a disease I'd caught on holiday in Australia where I was bitten by loads of mozzies.

I had 6 cycles of CTD. It wasn't an easy time but I can assure you that it was all worthwhile because the drugs…[Read more]

John, I was interested to see your comment about "the vested interests of the giant pharmaceutical companies."

I've often thought that secretly they don't really want cures found for myeloma or any other diseases. Why would they? They're doing very nicely thankyou supplying all our "treatment" drugs………….

Hello Pete

It's a shame that you've had to suspend your group but I think everyone with Myeloma copes in their own way and not everyone needs or wants to use support groups.

Keep in touch on this forum though!
🙂