That diagnosis must have come as quite a shock to you Helen!
Just as well you were on anti-biotics. From what I've read about whooping cough, that would have stopped you being infectious to others.
Hope you're better soon. 🙂
Michele x
Dear Dai
Well done on getting through such a rough patch. It makes my cold/cough that I'm coping with seem so trivial!
I really hope things will be on the improve for you again now.
Take care of yourself.
Love
Michele x
Hello Kerry and welcome to the forum.
After 14 years your mum's doing very well. Is she or has she been on Zometa or a similar drug used to strengthen the bones? I know this can be a cause of jaw/teeth problems and needs to be reported to your doctor or specialist so that they can help you.
Best Wishes
Michele
When I first started CTD I gave myself a Clexane injection every day due to the risk of clots when taking thalidomide.
After one cycle it was apparent that Clexane wasn't for me. It caused terrible bruising, red patches AND chest pains.
I was then on aspirin for the next 5 cycles which was fine.
I really hope the hospital can fix Charle's problem quickly.
Keep in touch.
Michele x
Hi Tina
I had my SCT last February and most of my plans for what to take into hospital with me revolved around keeping myself amused and free from acute boredom!
With that in mind, although there'll be some days when you won't be able to concentrate on anything, I found my laptop a godsend, took my knitting in, a book, some puzzle magazines and my diary. I expect the hospital will have a newspaper person doing the rounds, so a small amount of cash to buy things like that would be useful too.
It was made very clear to me from the start that I wasn't expected to lounge about in my nighties all day, so I took plenty of comfortable skirts and tops in. I got up and dressed every day no matter how I felt. I think it did me good doing that. Kept a sense of normality.
As well as your normal toiletries, make sure that you take a pack of baby-wipes in with you. You'll definitely need them when trips to the loo become rather frequent!!!!
A bottle or two of soda water was of great benefit to me and I also had a bottle of lemon barley water. I didn't eat for 4 days but take in anything you think will tempt your appetite.
Your dignity will soon fly out of the window but the nursing staff don't bat an eyelid at anything you'd normally find mortifyingly embarrassing.
What's the most important thing to take in with you? Your sense of humour of course!
All the very best Tina. I hope your SCT goes as well as mine. I escaped after only a week! 😀
Hi Mary
If your MIU is as good as the one in Poole Hospital, Charlie's in a good place as they will definitely keep a beady eye on him.
It will be good to find out more tomorrow. Make a list of questions you want to ask because when those doctors do their rounds they're fast. Keep them there until you're happy with answers and don't be intimidated by them!
I'm really well at the moment thankyou. Nearly 8 months since my SCT and I feel totally normal again. Plenty of energy and not on any drugs. (apart from Zometa every month).
Look forward to hearing your news tomorrow.
Michele x
That's good news David. I'm glad to hear you've been "bailed" again.
Enjoy the autumn!!!!!!!
😀
Hi Mary
I wondered how you and Charlie were getting on.
It must have been very frightening for you and I'm glad Charlie is a lot better now. Had he been having any "funny turns" prior to collapsing?
It could be his body rebelling against the CDT cycles but you've also got to consider that it may be something not connected to his Myeloma at all.
I presume the staff in A & E knew about his current treatment and took that into consideration when trying to work out why he'd collapsed. Did they contact his specialist in Southampton to tell him what was going on?
I'm sure a solution will quickly be sorted and Charlie will be back onto the right track again in a day or two. Meanwhile I hope he can rest. Did they keep him in hospital or is he home again?
Take care for now.
Michele x
A very interesting and encouraging little film.
Thankyou Jean.
Hello Tina
I can't help you with your radiotherapy question because I haven't ever had to have any, but I just want to say "well done" for doing so well with your stem cell harvesting.
It's a great feeling to know that there are two SCT's in the pipeline isn't it? 🙂
Great news Sarah. "Remission" is a wonderful word to us MM'ers.
😀
My hair definitely thinned out when I was on CTD but didn't fall out completely until I had the SCT.
In a way, the thinning out prepared me for having no hair at all and what I thought would be the most dreadful side-effect turned out to be no problem at all to cope with.
It's the huge dose of chemo that will ping out every hair folicle. get yourself a couple of pretty scarfs or woolly hats and when it's cold outside nobody will notice that you're bald.
After about 6 weeks my hair started to sprout again and much to my delight it's now thick and lush. Very soft too. I didn't expect that!
I was told that eating a brazil nut every day (for selenium) and a spoonful of honey would help my hair grow that way and it did.
7 months on, I'm about to have my first trim at the hairdressers……:-)
Hello Pat
After all those tests it must be a relief to know that you've now got the drugs that will put you on the road to remission! 🙂
Of course you'll be feeling nervous about taking them. I was with my first cycle of CTD.
There's no denying that you'll have a mixed bag of days ahead with aches and pains like you've probably never experienced before, but the trick is to take each day as it comes, do what your body tells you to do (rest when you have to) and no matter what, keep that spark of steely determination to tough it out and beat back the enemy!
Let us know how things go and ask any questions that pop up in your mind. We're with you all the way! 😀
Take Care
Michele x
I'm glad I've just read what some other folk are thinking at the moment because I'm pretty sure there are some "imposters" posting threads at the moment who don't seem to have any definite connections with MM at all.
It doesn't take me long to work out who's genuine and who to quietly ignore.
😐
I've just read your good news Chris. I'm so pleased for you.
Make the most of the breathing space before you get those precious little stemcells back!!
😀