Hi Eve

Our different perspectives just highlights the differences in how this flipping disease, the treatments and our ways of dealing with these change between individuals. I guess you could summarise as "each to their own".

Similar to Slim, I have been in treatment since March but have not achieved full remission. Valcade was not…[Read more]

Hi Jim

As all above, so sorry that you find yourself in this select club. I am 49 for a few more weeks, and was diagnosed in January of this year a week after being diagnosed with diabetes. Total shock and still coming to terms with it with tearful episodes at times especially when on entinox or having another needle inserted.

I started on…[Read more]

Carol
0!!! That's fantastic! I am even more keen now to see what my latest "scores" are. Your post is definitely encouraging and these bursts of encouragement do help me to get past the harder days. Ice cubes seem destined to become my new bestest buddies.

Best wishes to Helen for the SCT, i hope that with my last paraprotein count at 4.1 I…[Read more]

Hi Carol
I am on the trial and on the Revlamid leg but not as far down the journey as you. Whilst I can't answer your questions, I will be watching to see what may await me.
Best wishes to you for your continuing journey.
Mike

Hi Helen

Sorry to hear of your Mothers diagnosis. I think from your post that your Mother is in the first cycle and has just got through the first four days of multiple Dex tablets each morning. I am on the RCD trial and just at the end of cycle (month) 4 and have to say that those four days on Dex, twice in each cycle, have been the only ones…[Read more]

Hi Debs

trust the bed day was effective. The effects of velcade are not sounding so good. Had sciatica (hoewever you spell that one) as part of initial symptoms and being less mobile was not great at all.

Sleep patterns are completely off the wall now with two hours tuesday night and a very welcome 7 last night. I am hopimg that the 4 hour…[Read more]

Hi Deb
First cycle went better than I had any hope that it would as far as side effects, and whilst the Consultant and team were pleased with the tesults, I didn't note them in my relief and must remember to pick them up at my next consultant 01/06/11, along with cycle 2 results.

Just started second batch of Dex on cycle 2 so not sleeping and…[Read more]

Hi Debs

Not been on the discussion board for a while as I found I needed to get my own head around things. First cycle went better than I could ever have hoped with just the, what seems to be usual, side effects of the Dex.

I am almost a week into the second cycle now having just got passed the first 4 days of Dex again and it feels a little…[Read more]

Hi Bridget
Thank you for your comment – I really must take on board the bit about sharing side effects with the Good Guys – I am not good at that apparently.
Mike

Hi Eve

Thanks for your comments. I am sure my wife will be keen to read your comments. Hope the journey is good for you and your partner.

Mike

Hi Debs
Been "randomised" today (another new experience)and selected for the Revlimid arm – think thats the terminology. Didn't take your comment as patronising as I am still on a learning curve in that respect and will be for some time I think.

Your experiences sound encouraging – thanks for sharing those and your good wishes.