Myeloma Forum | MikeBarker | Activity https://forum.myeloma.org.uk/members/MikeB/activity/ Activity feed for MikeBarker. Fri, 10 Apr 2026 22:51:28 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 622d4e8b378a391cd4f9b854a44c7058 MikeBarker replied to the topic New and need advice on Myeloma XI in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-need-advice-on-myeloma-xi/page/3/#post-85252 Thu, 10 Nov 2011 08:47:54 +0000 Hi Eve

Our different perspectives just highlights the differences in how this flipping disease, the treatments and our ways of dealing with these change between individuals. I guess you could summarise as "each to their own".

Similar to Slim, I have been in treatment since March but have not achieved full remission. Valcade was not…[Read more]

]]> 6c3dd35473e5a8657075d14eaa7dcd9c MikeBarker replied to the topic New and need advice on Myeloma XI in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-need-advice-on-myeloma-xi/page/3/#post-85250 Wed, 09 Nov 2011 20:15:53 +0000 Hi Jim

As all above, so sorry that you find yourself in this select club. I am 49 for a few more weeks, and was diagnosed in January of this year a week after being diagnosed with diabetes. Total shock and still coming to terms with it with tearful episodes at times especially when on entinox or having another needle inserted.

I started on…[Read more]

]]> ce09e5fdabf988ca1302d2252523cdfb MikeBarker replied to the topic Myeloma 11 trial (Revlimid) in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-11-trial-revlimid#post-97878 Thu, 04 Aug 2011 08:35:55 +0100 Carol
0!!! That's fantastic! I am even more keen now to see what my latest "scores" are. Your post is definitely encouraging and these bursts of encouragement do help me to get past the harder days. Ice cubes seem destined to become my new bestest buddies.

Best wishes to Helen for the SCT, i hope that with my last paraprotein count at 4.1 I…[Read more]

]]> c871134a8cce167979fe4b146b369b1e MikeBarker replied to the topic Myeloma 11 trial (Revlimid) in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-11-trial-revlimid#post-97876 Tue, 02 Aug 2011 19:53:40 +0100 Hi Carol
I am on the trial and on the Revlamid leg but not as far down the journey as you. Whilst I can't answer your questions, I will be watching to see what may await me.
Best wishes to you for your continuing journey.
Mike

]]> 20dc253758b8896068913bbdda7ac1b2 MikeBarker replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid#post-97581 Mon, 18 Jul 2011 23:00:54 +0100 Hi Helen

Sorry to hear of your Mothers diagnosis. I think from your post that your Mother is in the first cycle and has just got through the first four days of multiple Dex tablets each morning. I am on the RCD trial and just at the end of cycle (month) 4 and have to say that those four days on Dex, twice in each cycle, have been the only ones…[Read more]

]]> be13421de1071f629677f395d6a3a9c3 MikeBarker replied to the topic Next Newbie! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/next-newbie/page/2/#post-106860 Thu, 19 May 2011 14:25:43 +0100 Hi Debs

trust the bed day was effective. The effects of velcade are not sounding so good. Had sciatica (hoewever you spell that one) as part of initial symptoms and being less mobile was not great at all.

Sleep patterns are completely off the wall now with two hours tuesday night and a very welcome 7 last night. I am hopimg that the 4 hour…[Read more]

]]> 621e3897c5ded9299686fad15656743a MikeBarker replied to the topic Next Newbie! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/next-newbie/page/2/#post-106858 Wed, 18 May 2011 02:55:44 +0100 Hi Deb
First cycle went better than I had any hope that it would as far as side effects, and whilst the Consultant and team were pleased with the tesults, I didn't note them in my relief and must remember to pick them up at my next consultant 01/06/11, along with cycle 2 results.

Just started second batch of Dex on cycle 2 so not sleeping and…[Read more]

]]> 1570ba6ff21808b7d8206942550a1e9a MikeBarker replied to the topic Next Newbie! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/next-newbie#post-106855 Wed, 11 May 2011 22:09:45 +0100 Hi Debs

Not been on the discussion board for a while as I found I needed to get my own head around things. First cycle went better than I could ever have hoped with just the, what seems to be usual, side effects of the Dex.

I am almost a week into the second cycle now having just got passed the first 4 days of Dex again and it feels a little…[Read more]

]]> 6b544ca022e792e60d62db555c8617be MikeBarker replied to the topic Next Newbie! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/next-newbie#post-106847 Wed, 06 Apr 2011 21:49:03 +0100 Hi Bridget
Thank you for your comment – I really must take on board the bit about sharing side effects with the Good Guys – I am not good at that apparently.
Mike

]]> 944303ec6bf5bcb9743fb9c0abc5ad7a MikeBarker replied to the topic Next Newbie! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/next-newbie#post-106843 Wed, 06 Apr 2011 21:46:26 +0100 Hi Eve

Thanks for your comments. I am sure my wife will be keen to read your comments. Hope the journey is good for you and your partner.

Mike

]]> 0a15b4a9ec9ef5739ad9931bbc6fa50d MikeBarker replied to the topic Next Newbie! in the forum Under 50s http://www.myeloma.org.uk/forums/topic/next-newbie#post-106848 Wed, 06 Apr 2011 21:36:35 +0100 Hi Debs
Been "randomised" today (another new experience)and selected for the Revlimid arm – think thats the terminology. Didn't take your comment as patronising as I am still on a learning curve in that respect and will be for some time I think.

Your experiences sound encouraging – thanks for sharing those and your good wishes.

]]> 5e859d17c560cacd9f5867e5aeef6479 MikeBarker started the topic Next Newbie!. in the forum Under 50s http://www.myeloma.org.uk/forums/topic/next-newbie Wed, 06 Apr 2011 16:20:00 +0100 Hi All

Recently diagnosed during diagnoses for Type 2 Diabetes – thank goodness it was found but not a great start to the year of my fiftieth!

Start treatment tomorrow on Myeloma XI so essentially bricking it at the moment.

What I have read so far has helped and I guess I am going to need more of the same over the coming months. It's…[Read more]

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