Mollymoo started the topic Back in the UK from Bulgaria in the forum AL amyloidosis 10 years, 6 months ago
Hi some of you might remember me and my Husband Eric from when I used to write from Bulgaria.
Well we came home in April and Eric was in very good partial remission but with susspected AL Amyloid with cardiac involvement. It didn’t take long for him to see a specialist and I had had all his medicals records translated which helped speed things up.…[Read more]
Mollymoo replied to the topic Cardiac Amyloidosis in the forum Side-effects 11 years, 1 month ago
Eve we were in Plovdiv on Tuesday for his last dose of chemo here in Bulgaria, I spoke to his Oncologist about my fears and she told me that without a biopsy they couldn’t say 100% that this was Amyloidosis that was causing his heart to thicken. The cardiologist has a very strong suspition and no more. She said that it could be a number of other…[Read more]
Mollymoo started the topic Cardiac Amyloidosis in the forum Side-effects 11 years, 1 month ago
At my Husbands last check up and treatment it was found there had been a sudden change in his heart function and he was transfererd to a cardiology unit for further tests. The Doctor told us that Pathalogical protein was being deposited in his heart and he told me the name of the condition but I couldn’t understand what he said as he is Bulgarian…[Read more]
Mollymoo replied to the topic Anyone from South Yorkshire. in the forum General 11 years, 1 month ago
Oh that is great news, I was fearing that we might have to travel to Leeds.
Thanks Mike
Mollymoo replied to the topic Returning to the Uk for support. in the forum General 11 years, 1 month ago
Thanks Eve, you are very helpfull, I will contact Stuart.
Mollymoo replied to the topic Anyone from South Yorkshire. in the forum General 11 years, 1 month ago
Thanks Eve.
Mollymoo replied to the topic Returning to the Uk for support. in the forum General 11 years, 1 month ago
I am starting to feel better about this already. He is given good treatment over here in Bg but that’s where it ends, there is no after care, Macmillan or equivelant so we are pretty much left on our own, learning what we can about the disease from Google. It was when he had the Swine flu and couldn’t breath that brought it home to me just how…[Read more]
Mollymoo started the topic Anyone from South Yorkshire. in the forum General 11 years, 1 month ago
Any sufferers from South Yorkshire and if there are, could you tell me where you have to go for treatment. When we return from Bulgaria, we will be settling in Rotherham and I am wondering where we will end up having to go to recieve Erics care. Thanks x
Mollymoo replied to the topic Returning to the Uk for support. in the forum General 11 years, 1 month ago
Thanks for your reply’s Eve and Helen. I will keep you informed as to what happens when we get back home. Hope you are bothe doing fine as well. xxx
x
Mollymoo started the topic Returning to the Uk for support. in the forum General 11 years, 1 month ago
Hi All
I don’t quite know where to begin but I guess letting you know that we are presently living in Bulgaria but will be returning to the Uk on 8th April. My Husbabd was diagnosed wit MMSeptember last year and 8 days later was recieving tretment, CyBorDex (you might refer to it as something ele. He was told that he had stage 3 IgA and that due…[Read more]
