Myeloma Forum | SharonAshworth | Activity https://forum.myeloma.org.uk/members/Mollymoo/activity/ Activity feed for SharonAshworth. Wed, 08 Apr 2026 13:49:43 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5333e9b439530373944d1e9238f5707d SharonAshworth started the topic Back in the UK from Bulgaria in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/back-in-the-uk-from-bulgaria/ Thu, 09 Oct 2014 21:26:54 +0100 Hi some of you might remember me and my Husband Eric from when I used to write from Bulgaria.
Well we came home in April and Eric was in very good partial remission but with susspected AL Amyloid with cardiac involvement. It didn’t take long for him to see a specialist and I had had all his medicals records translated which helped speed things up.…[Read more]

]]> 90a19699f59cdc93f24061fdc54f41ad SharonAshworth replied to the topic Cardiac Amyloidosis in the forum Side-effects http://www.myeloma.org.uk/forums/topic/cardiac-amyloidosis/#post-114072 Thu, 27 Mar 2014 15:33:10 +0000 Eve we were in Plovdiv on Tuesday for his last dose of chemo here in Bulgaria, I spoke to his Oncologist about my fears and she told me that without a biopsy they couldn’t say 100% that this was Amyloidosis that was causing his heart to thicken. The cardiologist has a very strong suspition and no more. She said that it could be a number of other…[Read more]

]]> 57220eb36176e6b7c10ae3feb584c258 SharonAshworth started the topic Cardiac Amyloidosis in the forum Side-effects http://www.myeloma.org.uk/forums/topic/cardiac-amyloidosis/ Mon, 24 Mar 2014 16:57:16 +0000 At my Husbands last check up and treatment it was found there had been a sudden change in his heart function and he was transfererd to a cardiology unit for further tests. The Doctor told us that Pathalogical protein was being deposited in his heart and he told me the name of the condition but I couldn’t understand what he said as he is Bulgarian…[Read more]

]]> 2ae639a69e032b318756e8fafa5f0911 SharonAshworth replied to the topic Anyone from South Yorkshire. in the forum General http://www.myeloma.org.uk/forums/topic/anyone-from-south-yorkshire/#post-113952 Mon, 24 Mar 2014 16:36:08 +0000 Oh that is great news, I was fearing that we might have to travel to Leeds.

Thanks Mike

]]> cdc42ed70df64b6280df6f77ff8f6a81 SharonAshworth replied to the topic Returning to the Uk for support. in the forum General http://www.myeloma.org.uk/forums/topic/returning-to-the-uk-for-support/#post-113883 Fri, 21 Mar 2014 21:39:16 +0000 Thanks Eve, you are very helpfull, I will contact Stuart.

]]> 4203b6b672d2a3ef801a082645848e53 SharonAshworth replied to the topic Anyone from South Yorkshire. in the forum General http://www.myeloma.org.uk/forums/topic/anyone-from-south-yorkshire/#post-113882 Fri, 21 Mar 2014 21:33:53 +0000 Thanks Eve.

]]> 815aecd2dd913d4a0580b4c6031ec5b8 SharonAshworth replied to the topic Returning to the Uk for support. in the forum General http://www.myeloma.org.uk/forums/topic/returning-to-the-uk-for-support/#post-113867 Thu, 20 Mar 2014 10:29:09 +0000 I am starting to feel better about this already. He is given good treatment over here in Bg but that’s where it ends, there is no after care, Macmillan or equivelant so we are pretty much left on our own, learning what we can about the disease from Google. It was when he had the Swine flu and couldn’t breath that brought it home to me just how…[Read more]

]]> f9ba30b8280309fb6f3ee5c46d899baf SharonAshworth started the topic Anyone from South Yorkshire. in the forum General http://www.myeloma.org.uk/forums/topic/anyone-from-south-yorkshire/ Thu, 20 Mar 2014 09:13:00 +0000 Any sufferers from South Yorkshire and if there are, could you tell me where you have to go for treatment. When we return from Bulgaria, we will be settling in Rotherham and I am wondering where we will end up having to go to recieve Erics care. Thanks x

]]> b26bcc2cb3ca7ac0e9fae3d85d896da2 SharonAshworth replied to the topic Returning to the Uk for support. in the forum General http://www.myeloma.org.uk/forums/topic/returning-to-the-uk-for-support/#post-113859 Thu, 20 Mar 2014 09:08:22 +0000 Thanks for your reply’s Eve and Helen. I will keep you informed as to what happens when we get back home. Hope you are bothe doing fine as well. xxx
x

]]> fd47e4cc15be1edeea2edad3f3504c9d SharonAshworth started the topic Returning to the Uk for support. in the forum General http://www.myeloma.org.uk/forums/topic/returning-to-the-uk-for-support/ Wed, 19 Mar 2014 12:08:00 +0000 Hi All
I don’t quite know where to begin but I guess letting you know that we are presently living in Bulgaria but will be returning to the Uk on 8th April. My Husbabd was diagnosed wit MMSeptember last year and 8 days later was recieving tretment, CyBorDex (you might refer to it as something ele. He was told that he had stage 3 IgA and that due…[Read more]

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