[MothasParticipant]

Thanks Adam hopefully it'll clear up soon.

[MothasParticipant]

Scott best of luck, take it a day at a time and you'll get through it.

[MothasParticipant]

Peter thanks that's very helpful. Sounds like you had it pretty bad. I'm not retching up anything but I do have to do an awful amount of clearing of the clear snot and phlegm at different times of the day, and the dry cough isn't much fun….

[MothasParticipant]

I want to thank eveyone's collective wisdom and experience. It's reassuring to see we have had similar experiences.
I have got anti nausea tablets but will use them only if I really need them. Let's see how I get on. I will report back.

Many thanks all

Tom

[MothasParticipant]

Thanks Eva,
I think I can control it with the oral meds I was sent home with. Today I didn't have my normal post lunch nausea so here's hoping it's under control.

t.

[MothasParticipant]

Contact the hospital.
I've been out a week now and they wouldn't release me while my temperature was that high.
I realise your hubby is putting a brave face on it but he still sounds quite weak to me.

[MothasParticipant]

Hi eve thanks for the response, yes I have got anti nausea tablets but have been trying to wean myself off them. One of my doctors told me that your body can become reliant on them and 'make' you feel nauseous if you don't take them.

I did have some last night though after a few days of not taking them.

[MothasParticipant]

A big thank you to everyone who's replied.
I'm back 5 days now, it's a bit up and down but at least the weather is nice 🙂

@Dai, a man that quotes Woody Guthrie is a man of taste!
I managed to pick up my guitar yesterday and noodled around in DADGAD tuning.

[MothasParticipant]

Sorry to everyone I haven't been updating like I thought I would. Internet access is practically non-existent.

Quick update though, my infection has cleared up and looks like I'll be out tomorrow which is day 15.

Nearly there.

🙂

[MothasParticipant]

Thanks for all the replies. I'm not really well enough to give individual responses so please accept my apologies in advance.

Day 5
I have a pump now fitted which gives me continuous anti nausea relief. And a relief it is. I didn't feel too bad today but I'm not really eating anything. Still having diarrhea. The labs have discovered that I have a C-Diff infection which is the most likely cause, but it's the lesser evil of the two types. I now take a huge antibiotic twice a day to deal with this. Nurse says it should 'begin to dry you out' in about 4 days.

The diarrhea is the worst thing to cope with at the moment.

Day 6 (Monday)
Not much more to add at the moment, I did manage some apple crumble for lunch I'm now awaiting multiple toilet visits.

Officially I'm not neutropenic yet…..

more later

tom

[MothasParticipant]

Ok got net access now.
Days 0 (tuesday) to 4 (friday).

Day 0
Transplant was pretty straightforward, felt a bit tired afterwards but went back to the hotel and had an early night. Took just over an hour to give me back my 2 million stem cells.

Day 1
Woke up feeling quite groggy and nauseous which pretty much lasted all day. As the evening came it got really bad and I dry retched at 4 in the morning not nice.

Day 2
After conversation with the duty nurse I was admitted to the UCLH ward in the morning and bombarded with anti-nausea meds. This helped but it was still an extremely unpleasant day, I wasn't really capable of conversation of any sort. Also a bit disappointed to have been admitted so early, in my mind I was to fly through the whole process without admittance. 🙂

Day 3
An improvement, I'm on a automated pump for anti-nausea which really helps. I do have diarrhea though but I'm coping with it. Not really eating as it doesn't hang around very long. Speaking to the medical team it's not unusual to have a delayed-reaction to the melphalan but bad luck to have it to the extend I have had.

Day 4
Again woke up feeling much better, I've been on lots of drips and anti-nausea and at least I can talk to the wife today! My temperature has been hovering around the 37.5 degree mark but I don't feel hot. I haven't had my bloods back yet so don't know if I'm neutropenic yet. More diarrhea today which I can expect for another 3 – 4 days according to nurse.

More later.

Tom

[MothasParticipant]

I'm ok doing this by phone. It will try more substantial update later. Transplant went fine but severe nausea from melphalan today first day I've been we'll enough to attempt communication.
I'm on day 4

Tom

[MothasParticipant]

Carol, Scott and Maureen thanks for the kind words.

@scott, good luck with Kings tomorrow, crossing everything for you.

[MothasParticipant]

Eve you get a typical hotel buffet or cooked breakfast, all very good if you feel up for it and all free. I only managed to tuck into a bit of toast but some brave souls were having the full english 😉

When you drop into ambulatory care they give you 10 quids worth of vouchers to buy lunch and dinner at the UCLH staff canteen. Didn't do this yesterday but it looks ok.

[MothasParticipant]

Thank you everyone. It's started, I'm going to update in this section of the forum.

t

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