Nanna59 replied to the topic loud whistling in ear in the forum Side-effects 10 years ago
Thankyou Carol and Jeffrey.
The noise is much worse and I am waiting to see an ENT specialist so I will let you know how I get on
Kind regards
Chris
Nanna59 replied to the topic loud whistling in ear in the forum Side-effects 10 years, 2 months ago
Thanks Carol
Do you think it has anything to do with your treatment at all?
Kind regards
Chris
Nanna59 replied to the topic Dry Skin in the forum Newcomers 10 years, 2 months ago
Hi Julie
Thanks for this
The stem fell transplant is not a pleasant experience I won’t lie to you, but you can do it. If I can anyone can. I had mine 15 month ago and I’m currently in remission so try to think about the benefits it will bring and take the advice offered by the nursing staff and the many people on here who have gone through it…[Read more]
Nanna59 started the topic loud whistling in ear in the forum Side-effects 10 years, 2 months ago
Hi all
I am currently in remission after a stem cell transplant in Sept 2013. For the last 6 months I have felt a pressure and loud whistling in my left ear. My new GP says she thinks it could be an after effect of the chemotherapy. Has anyone else experienced anything similar?
Thanks Chris
Nanna59 replied to the topic Three Years! in the forum General 10 years, 5 months ago
Congratulations Andy
I’m so happy for you
I always find your posts very encouraging!
God bless
Chris
Nanna59 replied to the topic Help needed! in the forum General 10 years, 5 months ago
Signed!
Nanna59 replied to the topic Zameta in the forum Treatment 10 years, 5 months ago
Hi Mavis
I am seeing my consultant this week so I will discuss it with himnand get back to you
God bless
Chris
x
Nanna59 replied to the topic Getting to the scary bit now!! in the forum Newcomers 10 years, 5 months ago
Hi Mandy
Tony is right, you can do it even though no one is saying it’s easy. I am one year post transplant and trying to lead a ‘normal’ life again.
Try to stay positive, things do get easier as time goes on
God bless
Chris
Nanna59 started the topic Zameta in the forum Treatment 10 years, 5 months ago
Hi
Has anyone been offered Zameta in tablet form and if so did you suffer any side effects?
Thanks
Chris
Nanna59 replied to the topic Post SCT/remission in the forum General 11 years ago
Hi Ann
Congratulations on your great news and on returning to work!
I am so happy for you
I was told in December that I was in remission and thought that I would just forget about Myeloma and get on with my life but that’s proving more difficult than I thought
You are doing the right thing I think, getting back to normality
I hope that it…[Read more]
Nanna59 started the topic Vertibroplasty in the forum Treatment 11 years ago
Hi All
I saw a consultant last week regarding vertibroplasty but was put off by the rare side effects e.g. possibility of being paralised or even death because of an embolism. Has anyone had this procedure done and if so how was it for you?
Thanks
Chris
Nanna59 replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 11 years, 1 month ago
All the best Tom with the new regime Monday
You are such an inspiration
Can I ask did they take enough stem cells on your first harvest or do you need to go through that again?
God bless
Chris x
Nanna59 replied to the topic Buddy's wanted – Stem cell harvest – Dec 2013 in the forum Treatment 11 years, 2 months ago
I just want to wish everyone going through Stem Cell transplant at the moment lots of love and strength. It’s a hard time but you come out the other end and soon forget the awful days. I had my transplant in September and am now in remission so hang in there!
God bless
Chris x
Nanna59 replied to the topic Maintenance advice please in the forum Treatment 11 years, 2 months ago
Hello Jean
Thanks for your reply.
I have been having trouble logging in
I thought everyone was given the choice of maintenance treatment
It’s surprising how treatment differs in different areas
Cx
Nanna59 replied to the topic Maintenance advice please in the forum Treatment 11 years, 2 months ago
Yes that’s true Tom
I’m so glad you have had no damage
Even though Im only just in remission I am worried about the return of the wretched thing!
I need to switch off from it and enjoy it
How long did it take you to start to enjoy it?
C x
Nanna59 replied to the topic Scottish Borders in the forum General 11 years, 2 months ago
Great
Thankyou for this Maureen
It’s a big thing to consider when Ive had such good treatment in Yorkshire
Cx
Nanna59 replied to the topic Maintenance advice please in the forum Treatment 11 years, 2 months ago
Thanks for your very sound advice Tom
You are so right and there are a lot of things to consider
So sorry to hear that your Myeloma has returned but love your positive attitute
It’s very encouraging!
Love
Chris x
Nanna59 started the topic Scottish Borders in the forum General 11 years, 2 months ago
Hi everyone
I have had fantastic treatment since being diagnosed but am considering moving house
Is anyone being treated in the Scottish Borders area please?
Thanks
Chris
Nanna59 replied to the topic Maintenance advice please in the forum Treatment 11 years, 2 months ago
Thankyou Tony and Michelle for your replies
It’s a difficult decision to make and I appreciate your opinion.
It’s good to get the view of someone who has gone through it already
I did wonder whether I wanted to take even more drugs after the year I’ve had to be honest but then I think will I regret it if I don’t?
Eee decisions decisions
🙂
Nanna59 started the topic Maintenance advice please in the forum Treatment 11 years, 2 months ago
Hello all
Not been on here for a while am struggling to find my way round.
I had my sct in Sept and was told on 23rd December that I was in full remission (Thankyou God)
I have been asked to consider going on the maintenance trial but reading all the side effects of Revlimid and Vorinostat scares me rather. I could do with some advice from anyone…[Read more]