Christine

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Viewing 15 posts - 1 through 15 (of 42 total)
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  • #121062

    Nanna59
    Participant

    Thankyou Carol and Jeffrey.
    The noise is much worse and I am waiting to see an ENT specialist so I will let you know how I get on

    Kind regards
    Chris

    #120288

    Nanna59
    Participant

    Thanks Carol

    Do you think it has anything to do with your treatment at all?

    Kind regards

    Chris

    #120127

    Nanna59
    Participant

    Hi Julie
    Thanks for this
    The stem fell transplant is not a pleasant experience I won’t lie to you, but you can do it. If I can anyone can. I had mine 15 month ago and I’m currently in remission so try to think about the benefits it will bring and take the advice offered by the nursing staff and the many people on here who have gone through it already.
    Do make sure you use the mouthwash they give you and try to drink plenty of water when you can
    Let us know how you get on
    Kind regards
    Chris

    #118744

    Nanna59
    Participant

    Congratulations Andy
    I’m so happy for you
    I always find your posts very encouraging!
    God bless
    Chris

    #118743

    Nanna59
    Participant

    Signed!

    #118742

    Nanna59
    Participant

    Hi Mavis
    I am seeing my consultant this week so I will discuss it with himnand get back to you
    God bless
    Chris
    x

    #118715

    Nanna59
    Participant

    Hi Mandy

    Tony is right, you can do it even though no one is saying it’s easy. I am one year post transplant and trying to lead a ‘normal’ life again.

    Try to stay positive, things do get easier as time goes on

    God bless
    Chris

    #113396

    Nanna59
    Participant

    Hi Ann

    Congratulations on your great news and on returning to work!
    I am so happy for you

    I was told in December that I was in remission and thought that I would just forget about Myeloma and get on with my life but that’s proving more difficult than I thought

    You are doing the right thing I think, getting back to normality

    I hope that it lasts for a very long time!

    Kind regards
    Chris

    #112102

    Nanna59
    Participant

    All the best Tom with the new regime Monday
    You are such an inspiration
    Can I ask did they take enough stem cells on your first harvest or do you need to go through that again?

    God bless
    Chris x

    #111814

    Nanna59
    Participant

    I just want to wish everyone going through Stem Cell transplant at the moment lots of love and strength. It’s a hard time but you come out the other end and soon forget the awful days. I had my transplant in September and am now in remission so hang in there!
    God bless
    Chris x

    #111727

    Nanna59
    Participant

    Hello Jean
    Thanks for your reply.
    I have been having trouble logging in
    I thought everyone was given the choice of maintenance treatment
    It’s surprising how treatment differs in different areas
    Cx

    #111703

    Nanna59
    Participant

    Yes that’s true Tom
    I’m so glad you have had no damage
    Even though Im only just in remission I am worried about the return of the wretched thing!
    I need to switch off from it and enjoy it
    How long did it take you to start to enjoy it?
    C x

    #111702

    Nanna59
    Participant

    Great
    Thankyou for this Maureen
    It’s a big thing to consider when Ive had such good treatment in Yorkshire
    Cx

    #111680

    Nanna59
    Participant

    Thanks for your very sound advice Tom
    You are so right and there are a lot of things to consider
    So sorry to hear that your Myeloma has returned but love your positive attitute
    It’s very encouraging!
    Love
    Chris x

    #111667

    Nanna59
    Participant

    Thankyou Tony and Michelle for your replies
    It’s a difficult decision to make and I appreciate your opinion.
    It’s good to get the view of someone who has gone through it already
    I did wonder whether I wanted to take even more drugs after the year I’ve had to be honest but then I think will I regret it if I don’t?
    Eee decisions decisions
    🙂

Viewing 15 posts - 1 through 15 (of 42 total)