Myeloma Forum | NeelieMarsh | Activity https://forum.myeloma.org.uk/members/Neelie/activity/ Activity feed for NeelieMarsh. Mon, 06 Apr 2026 07:49:40 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 0d466c7c044f9d9557848b30d0133ed4 NeelieMarsh replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it#post-85762 Wed, 04 Apr 2012 18:20:24 +0100 I feel utterly shocked at what some people have had to endure before they get a diagnosis, it is truly a scary thought that GP's will now be in control of their own money.

Fingers crossed that this wonderful charity and its supporters will be able to raise awareness to enable others to get a speedier diagnosis.

Xx

]]> 7b014f5f5b385905b271845e58314a0d NeelieMarsh replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it/page/2/#post-85764 Wed, 04 Apr 2012 18:16:27 +0100 Hi, I'm in Mansfield (Nottinghamshire), my dads name is John, and he is being treated at Kings Mill Hospital, with a possible referral to Notts.

xxx

]]> 9002d57ae4745ef3c59cea6a965a79aa NeelieMarsh replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it#post-85760 Wed, 04 Apr 2012 08:52:03 +0100 WOW! 😀

Thank you to all of you for your kind words,
It's amazing how reading your replies have helped me to see things in another light.

I've always strived to make others happy, give advise, or a listening ear, and it was kind of embarrassing for me now to be the one needing somebody to help me out and give me a ray of light, but you…[Read more]

]]> 585139dbd6e91fadeb6af4fa089a4c47 NeelieMarsh replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it#post-85753 Tue, 03 Apr 2012 11:15:40 +0100 I'm so sorry to hear about what you had to suffer before you got any answers, I feel selfish now to be complaining about a 6 month wait.
Thank you for the helpful and encouraging reply.

Best wishes for you Bridget x

]]> ad729b1edd2121f0676c4ce5479a136f NeelieMarsh replied to the topic Don't google it, I couldn't even spell it! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it#post-85751 Tue, 03 Apr 2012 10:06:47 +0100 Thank you for your time replying eve,

It's hard to have faith in the nhs when they won't listen (minority I admit).

I read that in the average gp's working career they may only see 1 maybe 2 patients with myeloma,
I'd never heard of it personally but I knew something wasn't right with my dad and I think the doctor should of realised this…[Read more]

]]> a56291f49353a27c0708713158f1a353 NeelieMarsh started the topic Don't google it, I couldn't even spell it!. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it Tue, 03 Apr 2012 08:40:04 +0100 Hi, what a relief to find this site.

My dad was diagnosed with mm yesterday after months of excruciating back pain.
We were told not to look it up on the Internet, which straight away made alarm bells ring for me, so the minute I got home I did just what I was told not to, and after feelng pretty scared I came across this forum which holds so…[Read more]

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