Trying times, and I should say a little hysteria is quite allowable given the circumstances.8-)

Still, the week will fly and the 'force them back in' expert will come and do his job and Colin will be on his way… finally.;-) The best of luck and it will be over and done with and he will be home in your capable care before you know it.:-D…[Read more]

One of my favourite poms… and the one read by Gill at Stephen's celebratory funeral:

[b]Warning[/b]

When I am an old woman I shall wear purple
With a red hat which doesn't go, and doesn't suit me.
And I shall spend my pension on brandy and summer gloves
And satin sandals, and say we've no money for butter.

I shall sit down on the…[Read more]

Hi Joanne,

Platelets play a major part in the fight against MM. Alarm bells ring when they reach the 30 or below mark and this is normally treated by a platelet transfusion (they look like a grey tapioca):-) .

When you next attend the consult ask for the hard copy of the blood tests (the consultant will have them on the computer).:-| You…[Read more]

Hi Rachel,

I have just finished reading through some of Paul's posts – always honest, aways supportive, always looking at problems from a 'half-glass full' perspective.8-)

I laughed aloud at his first 'Dex' encounter where he went slightly ape when he couldn't find the Pears Soap in the bathroom. My 'Dex' moments tend towards the trivial…[Read more]

Hi Pat,

My experience was very similar to Sarah's… form at home, on to my GP and Badge in the post within a week. My renewal was a very similar process only this time we had to drop the form into a local council help point where they rubber stamped the form and the new badge arrived within 48 hours. Easy Peasy.:-D

You still have to pay…[Read more]

Hi Keith,

Let's get this right.

[b]HGB: 8.5

Nuets: 0.6

Plates: 32[/b]

and they offered you a blood transfusion and you refused.

However well you might be feeling IMHO it's a dangerous game you are playing Keith.

OK…HGB 8.5 is on the cusp… but it's not settled, its dropping. The same with your platelets which continue to…[Read more]

Hi Megan,

Unlike Keith who settled for PN Lite I decided to go for the whole MM experience… PN Heavy feet, complete with 100% pins and needles, painful to touch and feeling cold even when they are doing their impression of an old fashioned radiators. I also have slight PN in my hands but thankfully, (being a guitarist) nothing near as bad…[Read more]

HI tom.

Thanks for being well informed… Sian is lovely and she also has a country pub with accommodation between Hereford and Hay-On-Wye 😎 .

The news about Paul was posted in the Under 50's… you will find a post from his wife there.:-(

Dai.

Thank you all, truly and deeply…

It wasn't just the illness, though that was real and bad enough to be going on with, it was also a feeling that I had hit a brick wall in my progress and general well being.

I am still hanging on where many of my contemporaries have slipped away. We had similar problems, similar prognosis and no reason…[Read more]

Hi Colin and you too Chris,

Wishing you both a smooth procedure with as few side-effects and setbacks as possible.:-)

You have done very well to get Colin to this stage Vicki, just one more push and you will soon have him home and on the road to recovery and hopefully a long remission.:-D

Good luck and best wishes for all on the…[Read more]

Hi Gill,

Your waffles always hit the spot… unerringly.8-)

Thank you for always being just you, please keep in touch… here and especially with Min, Sarah, Tina etc.,

You are in my thoughts constantly… I admired Stephen greatly, he was my role model… and you were and remain my friend.8-) 🙂

Warmest regards:-)

Dai.

My Dear Rachel.

Such devastating news… I was certain that Paul, of all people would be strong enough to get into a full and long remission… you must feel terribly cheated… but this is the nature of MM. IMHO the most important reading in the bloods report is your Neutrophils… the governor of your immune system and if they fall too low…[Read more]

Hi Everyone?

Still alive and kicking, with a little care from my right leg, which is currently carrying a slightly complicated DVT.:-P

This last month has been a bit of a nightmare… with my C: Diff back and winning the fight for a short while. In short my consultants plan (after finding out that 6 weeks on my referral to the…[Read more]

Hi Gill,

Keep us updated when you feel strong enough… I think you know that all your friends on this board have one eye looking for your name on a thread… and our hearts set ready to help in any way we can.:-)

Much love and respect.

Dai.

Hi Sarah & Henry,

I know I replied to this thread a few days ago but a few of my posts have gone AWOL… but never mind, good news is worth repeating… take it easy and take it slow…. but take it all the same. 😎

Use the first few months for mental and spiritual growth… the body will follow in its own good time… don't push, don't…[Read more]

Hi David,

Just to bump up Eve's inquiry… how the hell are you?:-D 😎 🙂

Dai.

Hi Eve,

I appreciate your concerns about Slim's progress but he is recovering from something like the equivalent of major brain or heart surgery… the SCT completely destroyed his immune system…his stem cells were given back and have to do two things:

1. Regraft onto his bones/bone marrow and start rebuilding the blocks of his immune…[Read more]

HI tina,

At the very start of my MM journey I was diagnosed with secondary bone cancer, primary unknown… with another 14 months before the correct diagnosis of MM. THE CT Scan carried out at my small, local hospital showed a reasonably large tumour that had crushed a couple of vertebrae and was in imminent danger of cutting into my spinal…[Read more]

I too am mainly bald (evidence to your left) and when my hair started to fall out Janet gave me a No.1 which, on a man,, looks quite neat and tidy. I stayed like that until my post SCT recovery and when it grew back it was the same as my teenage years, thick curls up and out a la Art Garfunkel… at one point I thought MM had found a cure for…[Read more]