Hi Eva & Sue & Eve,

Recalling a conversation with one of the registrars regarding the SCT processes and the Mephalan/Cell returns in particular… I was told that the Mephalan is 'scoured' as soon as the medics think it has done its job… that is, by the time the cells are returned the Mephalan has done its job and has been thoroughly washed…[Read more]

[b]Alert: [/b]

Where would we be without little niggles and interruptions? In a far happier place I imagine.

Yesterday my temperature clocked 38.20 and stayed there for several hours… on a Friday – again… but I didn't phone it in (as they insist I do) because there was no upward movement and my chest was clear… but I was having…[Read more]

Hi Teresa,

E-Mail received thank you… very interesting and very lucid, aimed as it is at the people who matter… us.

Many thanks again, I will keep an eye on any new reports/developments coming from Canada.

Dai.

Hi Paul,

I must say that you are very calm given the circumstances of your treatments so far but DT Pace certainly seems like a big hitter and you don't need to come down too much to start the harvest and SCT processes.

Also, just because your treatments were part of your frontline therapies doesn't mean that you can't try them again when…[Read more]

Hi Theresa,

I'd be very interested indeed.

dragondai@btinternet.com

Send away… and thank you very much indeed 🙂

Dai.

Min,

I can only take a wild guess of what its like for you on your side of MM… so I won't even bother to try.

Suffice to say that I truly do care about your well being… your physical and mental health and your coping levels.

I know you are a strong independent woman but the 'independent' part has taken on a new meaning, with a…[Read more]

Hi Eve,

I hope all is as well as can be expected at this stage. One tip… try and encourage Slim to take on fluids. I know it is difficult, even water tastes vile and is difficult to swallow in anything other than small sips… but the alternative is the fluids by IV… which means being attached to the pump and stanchion. This means that…[Read more]

Hi Peggy,

I developed Peripheral Neuropathy following my CDT (Cyclophosphamide, Dexamethasone and Thalidomide) frontline treatment, exacerbated by my Velcade treatment. It still remains with me although, like my Tinnitus, I manage to blank it out for most of the time. But I too have difficulty lifting my legs… I know I have extensive bone…[Read more]

Jean, Eliz, Theresa, Jo, Tom & Rosie,

Thank you for your lovely supportive replies. 🙂

Yes, I am trying to be honest and reflect how I am feeling but it does sometimes also feel a tad self-indulgent… but I'll decide to be kind and allow myself that small sin. 😉

Today was a bump and run day… being DexDay TM and all. 😀

I have…[Read more]

I regret that I have never been but by all accounts from friends it is a delightful place for relaxing and taking it easy in the very best of convivial settings.

So… you must enjoy yourselves, you must go easy and take it slowly and come back recharged and essentially happy.

Simples.8-)

Dai.

Thank you one and all.

I am a strong person… with some of the things I have had to put up with in my life it was either be strong or fold up like a piece of paper until it was physically impossible to fold any more.

I will cope with whatever happens in the future but somehow this potential early Rev & Dex failure became personal… it was…[Read more]

Good for you Wendy!

An ex-athlete I have now given up running for trundling…. I can get up quite a head of steam when I start my trundling… But I have the same stopping distance as the QEII!

Take your time and avoid any injuries… But enjoy your efforts and the rewards.

With you in spirit.:-D

Dai.

Belated Happy Birthday Helen,

Have the holiday of a lifetime and enjoy every moment… with plenty of pictures to share when you get back.

Much love, 😀

Dai.

Hi Pilgrim,

Your GP is vital to maintaining a link between home and the haematology team at your hospital… for drugs, home-help (when needed) and general communication if or when you apply for benefits.

But… the main players in your diagnosis and medical development are you and your haematology consultant. The consultant will keep your…[Read more]

Hi Scott,

I followed the whole day with interest… even though none of my teams were involved this year.

It was a great match with Chelsea, and Drogba in particular, providing a Man City type comic book ending… unbelievable.

A truly remarkable year for football in the UK, full of incidents, comebacks and fantastic melt-downs and…[Read more]

Hi Michelle,

I am so sorry that the time had to come to say goodbye to your Mum but I am glad that she was surrounded by love and had a peaceful end. Our best wishes to you and all your family for next Thursday and beyond.

With fond regards:-)

Dai & Janet.

Hi Nicki,

We are so glad to hear that Sam is doing so well… Janet sends her love and hopes that you are well and enjoying seeing Sam go from strength to strength.8-)

Hope to bump into you soon.:-D

Dai & Janet

That is good news Tina. 😀

You might get away with only 4 Cycles at this rate.

Well done, keep positive.8-)

Dai.

Hi Gail,

I'm sorry if I came across as advising too simplistically. I understand that some people find it harder than others to acceptance of this damned disease… and that depression can take hold and dominate. It may be that the medics might have to look at the dosage of his Dex… but the stamping of the feet might indicate some problem…[Read more]